Diagnosis and possible discharge - Atrial Fibrillati...

Atrial Fibrillation Support

32,402 members38,737 posts

Diagnosis and possible discharge

P0rtnahapp1e profile image
11 Replies

Hi everyone!

Still in hospital and on 5 ltres O2, but the results are back and it turns out that I’ve had an early Christmas present from my 2 and 3 year old grandchildren, known as Respiratory Syncitial Virus, (the illness that is, not the grandchildren).

They just sneeze all over you, rub their snotty nose on their sleeve and move on, whereas my heart failure couldn’t cope and my lungs swilled with fluid.

If they can get my oxygen levels back up I can go home, so they’ll be gradually reducing them now.

A positive aspect was that I got to see my consultant who is behind with appointments through no fault of her own, and get up to date with my AF and HF. She is sending me to a geneticist in Belfast as she can’t find a cause for either condition, and without a cause obviously she has no cure to suggest.

In the meantime I must avoid all infections, (?!), and in the event of catching anything, must present at A&E immediately. (So much for my flu jab!)

As an aside, has anyone any experience of Punctate Inner Choroidopathy? I know this isn’t the correct forum, but a young member of my family was diagnosed with this over a year ago, in one eye, and found, while I was here, that it is now in her other. Quite devastating.

Am adding a pic. No, not me, but my new glasses. One had bought them online and had Specsavers put one’s prescription in them when one opened The Times!

Do so hate it when one is slavishly copied, but they do say imatation is flattering. 💕

Hope you are all as well as can be expected. Xxxx

Written by
P0rtnahapp1e profile image
P0rtnahapp1e
To view profiles and participate in discussions please or .
Read more about...
11 Replies

Gosh you really have been through the mill this past year. I do hope things go better for you now. You have such a good sense of humour.

Love the picture......instantly brings to mind Jenny Joseph's poem ...When I am an old woman I shall wear Purple !

Best wishes

Sandra

jeanjeannie50 profile image
jeanjeannie50 in reply to

I thought the same thing re the wearing purple poem, hope you don't spit P0rtnahapp1e! A great photo and I love the glasses. I really hope you can soon leave hospital.

Wishing you well.

Jean

Finvola profile image
Finvola

You look smashing - definitely a colour scheme which suits you - I love purples and pinks.

A lot of positives in your post regarding onward referral, seeing your consultant - and a reason for the problem in the first place. Kids are walking virus factories - ! I hope your oxygen levels return to normal and you can get home quickly.

I'm sorry to read about your relative's eye problems - very distressing for you and the family.

Sending you very best wishes for a fast escape home.

P0rtnahapp1e profile image
P0rtnahapp1e in reply toFinvola

Finvola Thanks so much for your good wishes.

Just one small point. That isn’t me, it’s the Queen 🤣

bisop profile image
bisop

Must say you look amazing in that purple colour, very flattering. Here is a link to info regarding your grandchild's eye problem. Hope all goes well for you. Have an amazing day.

bing.com/search?q=punctate+...

P0rtnahapp1e profile image
P0rtnahapp1e

IT’S THE QUEEN. !!!!!!! 🤣🤣🤣🤣🤣🤣

Fastbeat profile image
Fastbeat

Love the glasses,but the Queen are you sure?

P0rtnahapp1e profile image
P0rtnahapp1e

The point I was making was that it was definitely not me. 😩

Fastbeat profile image
Fastbeat in reply toP0rtnahapp1e

🤣🤣👍👍

Jollies profile image
Jollies

Hopefully you will be sorted soon. Have to say I love purple! X

cwc123 profile image
cwc123

Hi P0rtnahapp1e

Came across your post by accident. I have sight problems which have been diagnosed as possible PIC. I see my specialist every six weeks and have had injections in my eye to improve my sight. The Macular Society directed me to the University Hospital in Birmingham which has a PIC specialist. I contacted them and am waiting for an appointment. Their details are here

uhb.nhs.uk/punctate-inner-c...

I would also advice your family member to contact the Macular Society and there is a forum on this site for people with Macular problems.

Good luck to her. Problems with your site can are very scary.

Not what you're looking for?

You may also like...

a quick hello

I gave you all a break for a few weeks. It’s been a little bit crazy at my house. We have adopted...
DawnTX profile image

cardiac discharge

to cut a long story short i am an heart patient with a mecannical mitra valve ,heart failure ,and...
rubyr61 profile image

Causes and Symptoms, Stress and Cures

Posted this on Facebook yesterday, thought I’d share here too There is a group on Facebook called,...
Kaioatey profile image

Patients day and other thoughts.

Here are a few of my thoughts on Patient's Day which this year was excellent. I never fail to learn...
BobD profile image
Volunteer

Visitors in wards without masks

Out of 8 visitors yesterday 4 of them had no masks on and two had them not covering their noses....
Samazeuilh2 profile image

Moderation team

See all
Kelley-Admin profile image
Kelley-AdminAdministrator
jess-admin profile image
jess-adminAdministrator
Emily-Admin profile image
Emily-AdminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.