cardiac discharge

[rubyr61]

to cut a long story short i am an heart patient with a mecannical mitra valve ,heart failure ,and AF my cardiologist as just discharged me after having a double sided angiogram for possible pulomonary hypotention which came back no problems my problem is i am struggling to breath for the last 12 years the last 2 years being hell but they can find out why , the considered opinion is all my problems together are causing my breathing problems there fore no one can help me so they have dis charged me my concern is i still have problems with my heart but no one is looking after me .has anyone else been discharged dispite still having problems ????

[etheral]

Hi Ruby. Wondering what meds you are taking? Do you know your pO2? Assuming you have pulmonary hypertension and the hypotension was a misprint. Have you been discharged from all medical care or one specific doctor? Something sounds amiss to me. Best, etheral.

[rubyr61 in reply to etheral]

my meds are enalapril 5mg a day and warfarin plus bumetanide i do not have pulomary hypertension the only dr that i am under now is a geriatric doctor who deals with elderly patients with lots of problems i feel that as i am now 72 and they cant sort my breathing problems out they have given up on me .

[etheral in reply to rubyr61]

The drugs you are taking include a calcium channel blocker, diuretic and anticoagulant, all of which sound appropriate. I' m sorry I cannot advise you further as I am not familiar with the UK medical system except what I read here.Additional drugs for chronic CHF in the US include Entreso or Lisinapril.. Perhaps someone more familiar with your system can advise you further. Be st, etheral

[bantam12]

Yes I was, at my last appt my cardiologist changed my meds then said he wouldn’t be giving me a follow up appt ! So I was cast adrift with new meds and the problem not sorted, previous appt he was talking about doing another angiogram so it was all very odd ! He said my GP could take over but my GP won’t get involved with my heart problems.

A neighbour also at the same cardio clinic was discharged after being in hospital for a week with suspected heart attack, like me she has a pacemaker and ongoing problems yet they’ve chucked her out as well !

We think they have so many patients that anyone who can stand upright is being sent packing !

[rubyr61 in reply to bantam12]

my gp told me on monday that it was good that i had been discharged i said I DONT THINK SO who is going to look after me as my heart problems are not going to go away and she said we will so if you need attention to your heart it will be back to the drawing board ie waiting lists ,if i have any problems it will be A&E 2 can play that game

[bantam12]

My GP said same thing, she would just refer me back to cardiology if needs be which is ridiculous with the never ending waiting lists, previously if I had a problem I could just call my arrhythmia nurse or consultant secretary at the hospital.I have other chronic health problems and I’m concerned this new plan to get rid of patients is going to mean I’m discharged from my other clinics, again these are conditions my GP can’t deal with.

[rubyr61 in reply to bantam12]

i dont know what is going on but i dont like it i just get the impression they dont want to know anymore it make me mad , my cardiologist only works 2days a week and the rest of the time private and soon to retire but i bet he will carry on with his private work it make you sick more sick then ever

[BlueINR]

Perhaps you should see a pulmonologist.

[JOY2THEWORLD49]

HiWe on forum do not know the meds that you are taking.

I had the same with breathlessness on exertion with Metropolol. Strangely NZ use it as Frontline in our stroke ward.

I experienced while I was having problems with raised BP aged 58.

Also the uncontrolled HRate at 86bpm was not helpful.

Ihad had trouble with cough with INHIBRACE and was changed to Metropolol then. But these are ACE product and BetaBlocker.

I struggled with elevation esp as well as EXERTION.

They blamed Thyrod pills except it was that. I was discovered with Papillary Thyrod cancer.

So Stroke caused by AF but underlying problem the Thyroid cancer.

Have yiou had a Neck Scan? Mine was seen on a Carotid Artery Scan at hospital on day 4 in hospital.

No one thing on suspicion.

Control of AF is one and you should be under 100. I am now at 93 at rest average daily HR. At night 48HR. I had pauses with metropolol.

I had sweating from face. Tired out and skept after a short shopping trip.

Last year in March after waiting for Heart Specialst - no stroke followup I was changed to Bisoprolol. HR dropped to 156 average, Another monitor.

No pauses.

Now uncontrolled still.

Noone was doing anything.

Asked by Locum to go to private Heart Specialist. who did an extreme history.

o meds except B12 alternative taking B12 Solgar Gold Top.

Once a day became two days a week, nugget under tongue.

He put me on CCBs A Calcium Channel Blocker. Diltiazem. Care as my HR dropped 50hbm straigt away.

Between Healthline and nurse at Heart Foundation Diltiazem was reduced to 120mg a.m and reduced Bisoprolol 2.5mg at night.

During this time PRADAXA (Blood thinner) was reduced to 110mg twice a day.

I am 73 yrs.

So CONTROL is number one.

Reducing PRADAXA also helped.

Less exertion was also a factor.

I had exertion problems before stroke caused by thyroid cancer and AF.

On reflection they the staff did not say but 4 months after cancer was removed it was thought that I would return to normal heart rhythmn.

I have not and I am 2 years 6 mths from stroke and 2 years 2 months since cancer removed.

I hav never been offered cardiac conversion or ablation.

Again they hoped that HR would return to normal.

BP 123/70-77 93 Day 48 Night HR average.

Monitored again with Diltiazem.

Ultra sound shows normal heart function but it is the electrical fault wich is abnormal.

Rate and rhythmn (irregular) so I hav to take blood thinner all my life.

It is history and all the above happening that needs to be gone through.

Walk I can but give me a pack to carry and exertion problems happen. I am zapped of energy.

I need to stop.

Recently I had a TVT Surgical Mesh Removal. Stopping PRADAXA was 'heaven'. But I cant.

Awaiting 4 moths re Ablation answer.

cheers JOY

[rubyr61]

you are scaring the daylights out of me. hope everything turns out alright

[Seena2019]

@rubyr61 - struggling to breath is a key symptom in heart failure. Even I am struggling with breathing issues. In my case my HF is due to LVDD (Left Ventricle Diastolic Dysfunction).