New MED

[lms0006]

Hi,

I'm a 69 yr old female have had AF for 10 years have had 3 ablations and 19 conversions currently on Tikosyn for 3 years now having episodes. MD is advising Amodorone (sp?) It scars me alot. Anyone on it and what side effects do you experience?

[Victoria55]

I wish I could give you some advice, but I have never taken Amodorone. I'm sure some one on this site will be able to give you some info! Wishing you well

[aika]

I was on amiodarone along with propofenol after a Vtac incident where my defib/pacemaker fired mutiple times. Thereafter was placed on amiodarone for 2 months and began experiencing neurological conditions and horrible sleep issues. Of course everyone reacts differently and if you should decide to try this, please watch your symptoms and report all to your EP & Cardiolgist.

[Lofty77]

Amiodrone I was put on this drug ,for me it caused shortness of breath and ten minutes exposed to the sun was getting sun burnt ,came of within two weeks..As every explains on this site it effects us all differently.

[seasider18]

I developed a tremor and had deposits for on my cornea but the worst part was it disturbed my equilibrium and small turning movements became dangerous

[nymima01]

My mother has afib for over 25 yrs. She was placed on tikosyn and digoxin at the same time over 5 yrs ago. She has been seeing a new EP/cardio doctor for the past year and he took her off the tikosyn and digoxin right away because he said she probably had an immunity to both drugs after 3 yrs. He offered amiodarone or an ablation if she was still having episodes of afib. She turned down both. She puts up with the afibs which are a daily occurrence, but she says after 25 yrs, she is still here and feeling pretty good otherwise. She also takes Metoprolol, Eliquis, losartan, magnesium, and a thyroid med. She practices meditation and square breathing to help control her anxiety with the afibs. I strongly agreed with her decision to leave well enough alone and even if she was not of sound mind I would have done the same thing she decided on. Amiodarone does help many, but I don't think it is a long term fix. Just do your homework, and make an educated decision.

[resqme1065]

I was placed on amiodaraone after an ablation as my heart was in afib perhaps worse than prior to the ablation. Short term, 3 M. I too was not happy to take this drug but went alone with the plan.

I could not tolerate the loading phase and within a weeks time I was reduced to 1/2 the prescribed dose.

I had sleep issues.....always tired. Slept very late, up 3 hrs or so and would fall soundly asleep for 5 hours.

I had trouble with equilibrium. My body never felt like where it was, ie if I was sitting in a chair I felt as if the chair was falling over. If I closed my eyes I had a difficult time telling where my body was. Proprioception is what i think it's called.

My eyes were very sensitive to the sun.

I wasn't hungry and ate very little. Lost 8# while on it. I won't complain about that though even though I didn't need to lose weight.

I didn't return to the gym while on it bc worried about falling. I did not like that.

And yes, everyone experiences different side effects or maybe none! This is what I experienced. I would say, it is not a drug to remain on long term. Read it's history.....only drug to not go through FDA rigorous testing.

Good luck and keep everyone posted.

Judy

[Franny50]

Hi, I've been on Tikosyn for 1 1/2 years. It's great stuff, IMO. Occasionally, perhaps once every two-three months or less, I feel like I'm going back into afib, usually after eating/drinking something bad like Chinese food with tons of MSG or having diet drinks with aspartame, etc.

I noticed when they initiated me on Tikosyn in the hospital, they gave me a big IV shot of potassium. Since then, whenever my heart starts getting a little jumpy, I pour a half teaspoon or so of No Salt salt substitute (potassium chloride & potassium bitartrate) into my beverage or drink a low sodium (high potassium) V8 juice, and things generally calm down within a few hours.

Of course, no doctor will ever tell you to augment your potassium and magnesium, as it's just not in their "doctor book". But it seems to work for me, so I suggest it to you, since these food products are commonly available in most grocery stores in the U.S.and certainly not harmful in any reasonable amount, or they could not be sold in stores.

[Ajitriturado]

I posted about this elsewhere today. See if you can find the other thread.