Hi everyone, since a serious car crash in 2015 I've suffered severe heart/bp issues which I think are as a result of blood not getting to the brain properly due to severe spasm and Hypermobility of the atlas/axis/occipital.
If anyone has any personal experience or research I'd be really grateful
Thanks so much
Mel
Do you have atrial fibrillation as this is what the site is for?. There may be more appropriate forums if you search Healthunlocked.
Yes but it’s taken two years to get my diagnosis as my husband and I have been fighting to get custody of my severely disabled young nephew and a diagnosis of aafib along with the other issues would have ended our legal case and he would have been placed for adoption out of our family.
And so I had a TIA as well as other issues. I have afib and I’m under Dr Dutta Roy at Homerton as well as being on 50mg of atenolol a day with alterations being made as I’m severely tachycardic then bradycardic, so I’ve been referred to Professor Lambru at St. Thomas’s Pain Clinic (was meant to be an inpatient two years ago but the case...) but we’re back on tract, with support from some of the country’s leading specialists who all feel my afib etc is to do with vagus vagal nerve, occipital and other nerve entrapment at occipital, C0, C1, 2 and 3 as systematically my heart and severe hypotension with rare hypertensive episodes are only part of the picture.
I use several personal ECGs like Kardia etc and can send their afib reports when ever I’ve been able to afford to get them read but my Hospital reports are allnat the hospital so only have Dr Dutta Roy’s reports.
Hope this helps and if you have any experience of whiplash causing afib, super ventricular, ventricle severe hyper/hypo tensions as well as the usual syncope etc I’d genuinely be grateful.
Many thanks again
Mel
I had whiplash back in 1993 - ongoing chiro adjustments and rehab neck exercises help. It will never be stable but you learn to manage it.
After head on collision in 2005, my neck and left thyroid area were traumatized. Since then palpitations after eating, with heavy exercise, bending certain way... exasperating! My neck injury it seems affected my vagus nerve and my life has been up and down since. Vagus injury....is the pits.
JoWilmer ive no idea what research I’ve been in that’s brought me back to this really old post that I added years ago but then I read what you’ve written and saw the date.
I burst into tears.
It’s impossible to get people to accept that this isn’t depression or some other ‘here take these pills...’ situation, it’s real.
I didn’t even know about the vagus nerve until a few weeks ago when I started seeing a new gp at my current practice who was stunned by the severity of spasm my sternocleidomastoid, occipital and upper cervical neck are in.
Timing seems to be key because two years ago my last gp was telling me I was crazy but at the same time I was having seizures and a tia!
The vagus nerve is like the silver thread connecting all of my random symptoms together and as I’ve got hypermobility my neck and spine is already unstable with spondylosis and spondylitis/arthritis of my whole spine since childhood resulting in C6/7 being replaced successfully (I felt well for the first time in twenty years afterwards) then four months later was the middle car in a severe three car pile up!
I made the papers and they got my age twenty years younger, good old silver linings ☺️
Your post has filled my soul with hope that even if the damage cannot be improved that professionals will stop treating me like a crazy lady and accept that if I was well and wasn’t making this up, I’d be back at work in a job I love, earning an excellent income while helping vulnerable people around the world instead of being incapable of letting my now five year old hug me around my neck, watching her do any movement based activities like going on a swing, pushing her on said swing, due to severe eye tracking or doing basic stuff like loading the washing machine while sat on the floor without going into afib etc...
I pray you get help yourself sweetheart, I know your suffering and wish you every success in finding the right team to help you recover xxx
Oh your journey so mimics mine! I have learned a lot since you posted and have now manage my various conditions - linked by ANS (Autonomic Nervous System of which the vagus nerve is a part) much better and still use chiro + plus Pilates and posture exercises + massage including fascia release methods. Unfortunately GPs and many doctors do not know or fail to connect this stuff. There is now more information and research coming on line.
It IS manageable with the correct help. I found Egoscue methodology and exercises extremely helpful in the acute stages but it was only regular massage by a very excellent and highly qualified masseur who was able to relieve the spasms enough to enable me to exercise the neck to strength muscle to support the neck.
There was a post a few weeks back I think from EngMac about chiropractic treatment which he claims has eliminated his AF so there is obviously a connection. Similarly I recall meeting a young lady (well anybody under 60 it to me ) at a conference a few years ago who was a professional violinist who's physiotherapist felt that her AF was a result of nerve damage from the playing position used by such musicians.
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