Dizzy??: Curious....does anyone else... - Atrial Fibrillati...

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Dizzy??

Delle profile image
18 Replies

Curious....does anyone else have vertigo and light-headedness with AF and associated drugs?...mine is worse when lying down, but I have serious balance issues when just gently turning my head to check if the road is clear.......GP stumped...me useless...just wondering I'm the only one!

All input most gratefully received, 💜

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Delle profile image
Delle
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18 Replies

Yep - join the club! I've tried different drugs, stopped drugs, taken drugs to raise blood pressure and ....... still dizzy spells. Mine is worse when stood still, feels like I am on a tightrope and constantly trying to remain balanced.

azriverrat profile image
azriverrat

Short answer yes. Better lately as last ablation mostly worked. A bit of flutter left but controlled by lower amount of medicine.

But yes afib and or controlling medicine can mess up circulation, blood pressure etc. Thus dizziness when changing positions or in some positions.

CDreamer profile image
CDreamer

What is your resting heart rate?

Dizziness needs to be investigated, especially if experienced when lying down. How is cognitive functioning? Do you suffer from Brain Fog?

If you have balance issues it could be caused by a number of issues such as drugs but also poor propreception, low Vagal tone, inner ear infection etc.

No easy answer but you need to get to the cause.

ken280 profile image
ken280 in reply toCDreamer

i have suffered from brain farts but, from Brain Fog?

CDreamer profile image
CDreamer in reply token280

A common expression for symptoms which entails difficulty in cognitive functioning, a sense of extreme fatigue and apathy. It really is like thinking or behaving, responding etc through a fog and feels like everything slows down.

It is a physical symptom and can indicate lack of oxygen or in my case lack of neuro transmitter.

ken280 profile image
ken280 in reply toCDreamer

I haven't had this yet but, I really do feel for anyone that goes through this journey with Af and the meds side effects.I do have many sensation from my center chest area and I always think it feels as if I am going to pause with the feeling of doom surround me and feeling of bubble and popping in my heart that the pacemaker doesn't pick it up. I am also so tired of waiting for something to go wrong,I see I have my second check up on DEC 8th then doctor free for one year and I am going gold panning for the winter in my mountains of British Columbia,will get outfitted in the next week or two and just got a new 30.30 lever rifle and my shot gun, with a couple more,all my gold panning equipment,Snowshoes and snow mobile getting to the rivers when the water is but, a trickle.The wife is packing and is every excited to go, hummm! Really can't live without her but, I hate seeing the pain of all the trouble with doctors I put her through 2 ablations a pacemaker after 20 trips to emergency and her waiting as I open my eyes,God bless our ladies! I will sit under a starry sky and sip some hot chocolate when I see that star blazing across the frozen night I will send my wishes to all of you,wishing you could be here,after all we are connected by the heart.Good luck everyone,enjoy.

CDreamer profile image
CDreamer in reply token280

And forget about AF - enjoy!

Vony profile image
Vony in reply token280

This description is exactly how I feel in the last few weeks. It is really awful.

Finvola profile image
Finvola

I've had awful vertigo caused by viral labyrinthitis but there is also a condition called Benign Paroxysmal Postural Vertigo (bppv) which is treatable and is caused by a floater in one of the ear's balance canals. There is quite a bit on the web about both conditions.

Delle profile image
Delle in reply toFinvola

Finvola...yes...have Bppv...terrified the first time it happened but recognise it now...my biggest fear is stroke...no doubt it's the same with everyone....:(

Juliewoo profile image
Juliewoo in reply toFinvola

I could of written this! Me too :(

Do you still have symptms of AF or do you have a steady heart beat? I say that because the only time I've had what you describe was when I had an active arrhythmia. I had to be extremely carefully, standing sitting, even moving my head, everything needed to be done sloooowly. As soon as we got the right drugs for me, it went away, same when I had my ablation. I'm normal right now, steady heart beat, but take my drugs away and I'd be in your situation re dizziness.

Delle profile image
Delle in reply to

Koll, thanks...yes although it started a paroxysmal AF it's now constant...waiting to see cardiologist for Holter monitoring, but long wait for the equipment...just hate having random dizziness whilst lying in bed...but it appears not to be just me, which is a comfort of sorts, just sorry for everyone else suffering the same way!

in reply toDelle

If you've got AF almost all of the time, is waiting for a monitor going to be of any help? I'm not medical so that is a question? A normal ECG is going to show what's going on without any wait !

I was in your position a few years back, and got a private referral from my GP straight to an EP of my choice. Cost me £150 I think, and was it worth every penny x 10. He did an ECG there and then himself in his office.

Just a thought!

Koll

Delle profile image
Delle in reply to

Thanks Koll...something I've thought of too...happy for private appointment but my cardio does not have a private practice...unsure how it would be if I saw another cardio.. :/

I have Vavlular disease as well as AF, yep truly blessed!! As I'm still relatively new to all this...HUGE AF event 10 June...16 hours in resus...I'm feeling totally lost....being alone doesn't help either.

My GP took me to the surgery , ran an ECG...not really much good since they are so small...she then drove me home...can't fault her...I was really sick then, just four weeks ago.

Having regulars fortnightly GP appointments...but really need to have something sorted...the other thing is that I HATE taking my BP and pulse...just really don't want to see whats happening, I find it all too scary....first class wuss...I hold my hand up!

Vony profile image
Vony

I also get very dizzy randomly..sitting and standing and this is different to the intense dizziness of a pause which I have daily. i often wonder what it is. i know deep down it is not vertigo as I have no other symptoms of vertigo and none of the typical features and when dizzy, i also have a pressure in my chest but no obvious palps. when the pressure is not present I feel completely normal. out of interest, when did your AF become persistent..after how many years and how regular or intense were your symptoms? My EP maintains that if I went into permanent AF it would be easier to manage...but I absolutely hate being in arrythmias. Mind you, somedays I feel so rotten I actually wish for this permanent AF which my EP says I will barely notice!!!

Delle profile image
Delle in reply toVony

Hi Vony...I was only diagnosed after my big AF event on June 10th this year...after 16 hrs in resus and a week in hospital I was discharged in sinus...was great until September when I became ill with something that I initially thought was flu, still not good now and have been all but housebound since then...thank heavens for online shopping or my kitties and I would be sunk.

This is when my AF became persistent...!

Being me, I never even connected feeling ill with my heart, truly thought I had some dreadful bug so spent most of my time lying on my bed feeling like death....:(

Too independent for my own good I'm afraid..!

GP wants to change my BB...I'm on Sotalol...no idea why I was given this since NICE advises not to...my GP wants me off them but is waiting on the cardio to sanction this...crazy world this cardio place hey? So feel in limbo now, just waiting for God the cardiologist to make a decision on my life!

Not yet seen an EP, maybe this is the route I should be taking, but being pretty ill and alone it's difficult to arrange things...so I've just been literally lying around waiting on the NHS.

Hate how rubbish I've become since this started in September....I was so strong and independent now I'm totally useless...well that's how it feels anyway! And then there's Christmas around the corner.....aaarrrgggghhhh!!! ;) x

Juliewoo profile image
Juliewoo

I too suffer with terrible dizziness. I was diagnosed with labyrintitis ( not sure if that's the correct spelling) March 2015 and with AF January 2016. I don't know if I'm coming or going half the time. My head feels heavy and my ears feel like they're stuffed with cotton wool. I work full time and most days wonder how I get through the day

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