Fingers and toes crossed please my fr... - Atrial Fibrillati...

Atrial Fibrillation Support

32,399 members38,733 posts

Fingers and toes crossed please my friends.

dedeottie profile image
31 Replies

I went for my 3 month post ablation appointment today. I am glad to say that I saw my consultant and not the nurse although,she is also very good. He says that I can now start to come off flecanide: 200 mg for 2 weeks 100 mg for 2 weeks then stop altogether. He doesn't anticipate a problem as I have had no A.F. since the procedure. I am very nervous about this and like Bob , think I may hang on to the last 50mg for an extra week or two! If I experience any A.F. I have to note it down and take enough flecanide to control it.

I have to stay on bisoprolol till my 6 month appointment.

He was going to take me off warfarin as he thought my score was only one ( for being female ) but when I reminded him that I had had 3 T.I.A.s previously , he changed his mind as that gave me a score of 3. I will be on it for life which is fine by me.

He said that although it took a long time , it was a textbook procedure whatever that means.

SO, Here we go, fingers and toes crossed for the next stage. I can't believe I've come so far. A big thanks to all of you on here who have been with me through it all. X

Written by
dedeottie profile image
dedeottie
To view profiles and participate in discussions please or .
Read more about...
31 Replies
BobD profile image
BobDVolunteer

Great news and I will keep all my bits crossed for you as well.

jeanjeannie50 profile image
jeanjeannie50

Good to hear that you're doing well. Keep it up.

Best wishes.

Jean

meadfoot profile image
meadfoot

Marvellous result, so pleased for you, well done. Its a new lease of life for you now, enjoy every minute of it. How about giving yourself a nice big treat, you deserve it.

Dee.

MickN profile image
MickN

Great news Dee, and good luck going forward

Rellim296 profile image
Rellim296

It's such cheering news to hear this, partly because it's always encouraging to hear about such good progress and partly because you were so reluctant to move towards having an ablation. So glad it's all gone so well.

Good luck with the flecainide, or perhaps I should say without the flecainide!

souljacs4 profile image
souljacs4

The best is yet to come Dee, enjoy each day.

Finvola profile image
Finvola

Great news Dee - thank you for sharing it with us and very best wishes for the future.

davegm profile image
davegm

Dedeottie

Good news indeed. Take it easy with the weaning off process.

dedeottie profile image
dedeottie

Thanks all for your good wishes and I will update. Bob my mind is working overtime wondering which bits !

RajaRua profile image
RajaRua in reply todedeottie

Hi Dee, How was the Ablation? Was it very painful? How long did it take you to recover?

Biddy (in Ireland)

dedeottie profile image
dedeottie in reply toRajaRua

Hi. The ablation lasted 5 and a half hours but was much better than I thought. I was really well sedated and was kept pain free. I would have another if I need too. Afterwards the only pain I had was from the groin entry point. I had some visual migraine for the first 2 weeks. Which seems to be quite common. I was very tired for a week but then began to get back to normal but better because no A.F.

I am so glad I have had it done.x

RajaRua profile image
RajaRua in reply todedeottie

That's really good to hear Dee! And well done and good luck with coming off the Flecanide! I'm on 150mgs for the past 18 months and haven't really had any AFibb since starting on it TG. I'm also taking Magnesium in Powder form and in Spray form which is so far helping me to sleep a lot better. Magnesium is essential for the heart. Look it up. Enjoy your AFibb-free life Dee.

Biddy

dedeottie profile image
dedeottie in reply toRajaRua

Thank you. I have also started to use a magnesium spray but I'm having trouble getting the spray to actually spray! Never mind, I am just rubbing it on but won't be getting a measured amount. I agree with you about the sleeping. I have had much better sleep since I started. Glad the flecanide is working. When it works for you it is a great med. X

RajaRua profile image
RajaRua in reply todedeottie

Hi Dee, I'm making my own Magnesium spray now. I read about it on another forum called earthclinic.com. It couldn't be easier!! Get a packet of Magnesium flakes from you health food store and a bottle of distilled or sterile water from the chemist. Bring 1 cup of the water to a boil then take it off the heat and add 1 cup full of Magnesium flakes. Stir and leave to cool and dissolve. That's it! I bought a brown glass spray bottle from the health food store and it has a good spray. I've been using 'Better You' Magnesium spray and the spray doesn't work that well on them I find! Making your own is far cheaper also and it really does feel the same and has the same effects!! :)

dedeottie profile image
dedeottie in reply toRajaRua

Thanks. I will give that a go. X

wendicarro profile image
wendicarro

Great news Dee! onwards and upwards as they say.

Wendi x

Hi,

Congratulations on a successful Ablation.....Give yourself a well deserved pat on the back...

Carol ...

Swale profile image
Swale

Excellent news, if you were like me I bet you were happy to stop the medication. Fingers crossed for the future.

dedeottie profile image
dedeottie

Thank you. I will certainly be glad to stop the meds although I am glad they were there when I needed them ! X

Brilliant.......can I ask the regime suggested to you for coming off Flecainide.

I take 200mg (100 morning and 100 evening) and my cardio says the best way is to go down to 150mg by taking 50mg 3 times a day i.e. 6am, 12pm and 6pm. As I have never had AF in the morning but always evening/night, I queried whether 50mg in the morning and 100mg at night would be better but he said no, better to smooth it out.

dedeottie profile image
dedeottie in reply to

My regime is a little different. I take 100 's a.m. and 150 pm. First I have to leave out 50 making it 100 am 100 pm and stay like this for 2 weeks. Then I have to take 100 am and nothing pm for another 2 weeks. Then stop completely although I will probably stay on 50 for an extra week just to be sure! X

in reply todedeottie

Thanks Dee, good plan to stay on 50 for an extra week. I usually adopt a more cautious plan than the medics/Alternative Practitioners suggest.

porridgequeen profile image
porridgequeen

Great news,couldn't be happier for you.

CDreamer profile image
CDreamer

Well done, I remember just how nervous you were! Start believing now that it will be ok. I stopped Flec cold turkey, had to really and absolutely no adverse results. Not advocating it as tritrating down is obviously going to wean your body off relying upon the drugs.

Very best wishes, brilliant news!

dedeottie profile image
dedeottie in reply toCDreamer

Thanks. I'm on positive thinking now! X

Buffafly profile image
Buffafly

Congratulations to all!

Jenbo6 profile image
Jenbo6

Oh well done you!! Posts like yours give us all hope. Thank you.

frenchgoose profile image
frenchgoose

Great news...i weaned myself off very, very slowly. I understand how you feel..its like taking a comfort blanket away!! Slowly does it!! And the way you want to do it is the best!!

shirlygirly profile image
shirlygirly

Very good news, hope all goes according to plan.

Shirley.

pennytupence profile image
pennytupence

Brilliant news,everything crossed for you☺

Fussyface profile image
Fussyface

Best wishes, hope you stay in rythmn for ever xx

Not what you're looking for?

You may also like...

Hello A.F. again Grrr

Reduced my flecanide to 50 mg once a day post first ablation. I have been reducing gradually. After...
dedeottie profile image

Anti coagulation

Hi Everbody Two years ago I had cyroablation at Barts Hospital . My A.F was very bad prior this...
Jacky52 profile image

Whether or not to increase my dose of flecanide?

I would be grateful for your opinions. I have been on flecanide 100mg x2 for 3 and a half months....
dedeottie profile image

Follow to my aborted ablation

Today I had the follow up meeting with my E.P. You may remember that he had to stop the procedure...
dedeottie profile image

E.P. appointment 're return of A.F.

Further to my recent posts about the return of A.F. following ablation. I have to come off the...
dedeottie profile image

Moderation team

See all
Kelley-Admin profile image
Kelley-AdminAdministrator
jess-admin profile image
jess-adminAdministrator
Emily-Admin profile image
Emily-AdminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.