I would welcome any insights others may have on my situation as the cardiac ward, anticoagulant clinic, GPs, hospital surgeons and surgeon who I am under review with, give greatly differing information with each communication.
I was diagnosed with moderate mitral valve regurgitation in July, in September I saw a cardiologist who stated I would have no symptoms other than the heart murmur and palpitations I have been experiencing the last two years but surgery would be inevitable in later years. I am 40, fit and healthy, exercise regularly and no other health concerns .
On October the 8th my heart went into overdrive -a long lasting and thudding palpitation.I exprienced pain and discomfort in my left arm and a feeling like I had a blockage in my throat, heavy sweats and nausea. After 2 hours of this I called the non emergency NHS line to be told to take myself to A &E. I made to do so and passed out so called 999 when I was able to stand up again.
A paramedic was called and confirmed a heart rate of 220 which was spiking at much higher rates so an ambulance was called and the whole blue lights etc emergency admission ensued.My blood pressure was 80 over 50 and blood sugar at 0.4 hence the passing out. I was diagnosed with paroxysmal AF and arrhythmia.
I spent three days on the cardiac ward having the chemical cardio version rather than the electro method. Since being discharged I have been on warfarin and beta blockers and had one small AF episode.
I have had one ECG since being discharged which was normal but have had episodes of prolonged palpitations which I cannot judge whether AF or not.
A week ago a letter from the surgeon I saw in September but have not seen since my emergency admission told me to stop the warfarin and beta blockers which I have. I am due to see this surgeon again on January 12th.
My confusion arises due to various medics telling me I was only on warfarin to prep me for cardio version which post discharge I was never scheduled to have, so have I been on warfarin for nearly three months for nothing?
Every hospital surgeon I saw and GP has said the AF will occur again, yet the cardiologist I am under says it was a one off and will never happen again ( am assuming he does not know about the second AF which happened in the warfarin clinic).
I was told in hospital that the Mitral Valve issue complicates the AF and makes it more likely to occur (which both the British Heart Foundation and Atrial Fibrillation Association sites seems to agree with) yet the cardiologist says this is not the case so bringing surgery forward to repair or replace the valve is not an option.
I have kept a heart rate diary, stopped anything that could cause AF like caffeine etc, altered my life style to reduce stress but the irony is that the anxiety and confusion I feel isn't going to help.
Any insights, opinions or comments even if it to say don't worry you're overreacting would be really welcome! Thank you