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Propafenone

Sharon1234567 profile image
14 Replies

Hi everyone. Just had my 3rd fast AF event in 8weeks requiring chemical cardioversion with fleicanide IV. I never know how long to leave my very irregular and fast heart beat before I go to A/E .

I am now home and resting. The last event came on while I was swimming which is unusual for me as all my other attacks have been whilst at rest.

My question is I have now been discharged from hospital with a 300mg dose of propafenone to take if I go back into fast AF to try and stop a hospital admission. Has anyone used this medication like 'A pill in the pocket' before. I know fleicanide can be used but not heard of this drug before nor had the staff on the discharge ward I was on. It was a cardiologist who suggested it. I am on Bisoprolol and warfarin as well as Bp medications.

I am scheduled for an ablation on the 9th December. Prior to this admission I was undecided about going ahead with it after reading some of the negative comments about ablation. I am now determined to go ahead with it and put my trust in my EP.

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Sharon1234567 profile image
Sharon1234567
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14 Replies

Yes, I was on propafenone for 2-3 years a decade ago and it worked very well in that I had virtually 100% steady heart (previously I had 24/7 AF). But it affected my memory very badly after a while and had to have an ablation to get off it.

The brand was Arythmol. Later on, I also tried Accord, but it made me feel badly depressed within days. Both should be the same I suppose but not for me.

Koll

Forgot to say I was on 2 x 150mgs propafenone (Arythmol) a day.

Sharon1234567 profile image
Sharon1234567

Thank you for your input. Let's keep in touch about our ablation recovery it will be good to compare and support each other.

Loo61 profile image
Loo61

Sharon if your heart is structurally normal and its just an electrical problem (my ablations yielded a 90% success rate) go for it!

Sharon1234567 profile image
Sharon1234567 in reply to Loo61

Thank you so much for that. I have been told that 1st time ablutions are only 50% effective so it s good to hear that. I am worried that my AF could be even worse after the ablation as someone was on this forum.

Rellim296 profile image
Rellim296 in reply to Sharon1234567

Some first ablations I think are very successful but I think EPs tend to be cautious and do too little rather than too much. Ablation is a bold step forward that we take in the knowledge that the success rate is usually somewhere around 70%. There are a lot of shades of grey in the other 30%. Ask your EP what hopes he has for you. I have no regrets and feel I have improved very significantly since my ablation in March. Although I haven't been totally AF free, it has only crept in occasionally and I have completely given up flecainide which pleases me very much indeed as I was on 300mgs a day. I feel very much better off.

Rellim296 profile image
Rellim296 in reply to Rellim296

PS I wasn't happy taking so much flecainide on a daily basis and would have preferred to have it as a pill-in-the-pocket. I think cure may be better than prevention.

cat55 profile image
cat55

Hi I have Propefanone as pill in pocket, have only used it once after being in A.F for a couple of hours. Worked well. Best wishes Kath

Sharon1234567 profile image
Sharon1234567 in reply to cat55

Thank you. Hopefully I won't need to use it but I hope if I do it works as well as for you.

Loo61 profile image
Loo61

Well I've just had my second one and am fine after both! Read my posts Loo53 and Loo61 :-)

PS2.... I also forgot to say that my ablation 10 years ago was a total success. Kept me clear for 8+ years, now got something else but still no AF, or not much anyhow. My 2nd ablation was aborted because the small amount of AF I had coming back, had gone away, so they didn't do anything.

One was done under GA and one under sedative only and both were a breeze.

K

BobD profile image
BobDVolunteer

I took propafanone as PIP with no problems.My only side effect was a metallic taste in my mouth but it was preferable to AF. I really don;t know why people are so worried about ablation I had three and would have another tomorrow if needed.

Bob

Mamamarilyn profile image
Mamamarilyn

I take Propafenone 3x150 daily in separate doses and it's working very well, touch wood. We tried a variety of meds before that and this is by far the most successful...but that's just for me! The number of 'tired' days has decreased significantly and I haven't had Koll's scary problem of memory loss...but then I'm 69 and can't remember where I left my mobile...........aaaaargh!

Independ profile image
Independ

I have been given Biosoprolol as a pill in the pocket. I would recommend ablation (I've had four!) I'm far better although not absolutely - still have one every four/five months, but they are nowhere as bad as they used to be. I would sometimes have to sit completely still for up to eight hours as they were so bad.

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