Is there a group specific for Hypertrophic Cardiomyopathy, or is this the place to ask related questions?

[HCMj]

[Beancounter Volunteer]

HI HCM

I don't think there is a specific group for this, what you will probably find is that many of the "Heart" groups inclouding this one the AFA group will have cardiomyopathy posts in general.

There is a Heart Community on Health Unlocked, and probably that's the best place to post you can find it here

healthunlocked.com/heartuk

But if you get stuck or just want to let off steam come back and we will listen, but probably not many fellow sufferers here.

Be well

Ian

[Mrs-Gilly]

I found the Cardiomyopathy Association (.org) a couple of days ago and have registered with them. Have had a nice welcome from Sarah Dennis, Information Manager. I haven't located a forum such as this AFA one yet.

I had a cardiogram yesterday and feel awful today after an uncomfortable, worrying night. Maybe a stressful 2 bus journey to reach the hospital by 9.30 in the morning rush hour through roadwork delays didn't help. A month to wait for my next appt with cardiologist. Keep taking the pills I guess.

Hope this helps and the best of luck.

Mrs Gilly

[excalibur]

Hi HCM again. I think you would find the Cardiomyopathy Association able to give more specific information. Thy don't have an internet forum, but do have a phone helpline, local support groups and a network of key contacts. You can contact them either by phone or web: cardiomyopathy.org/Contact-...

I found them very helpful

lance

[BillieAnt]

The cardiomyopathy association has a message board & a Facebook page - there are many of us on there who also have HCM. The CMA website has loads of up to date info, news on testing etc etc - do look at it if you haven't already.

cardiomyopathy.org

[BillieAnt]

cardiomyopathy.org/CMA-Adul...

This is the CMAs message board & this is the closed group on Facebook:

facebook.com/groups/cardiom...