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CRTP Biventricular

BStanding56 profile image
11 Replies

Today I have been for my preassessment for my CRTP fitting on Monday, I was told that more than likely I will feel no better until I have had the second part , Ablation which I will then be totally dependant on the Pacemaker. Does anyone else have this pacemaker and has it made a difference. Thank you for reading my post.

xBeth

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BStanding56
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TheStand profile image
TheStand

Beth, I do not have it but know many who do. Did they explain that it would not get rid of the AF. I have spoken to many who thought it was going to fix it. About 90% of those who had it done are in permanent AF but say that it does not effect them (almost no symptoms) but still are on meds. What other treatments have you tried.

We call the procedure "Pace and Ablate" and most consider it the last step, when nothing else including amiodarone has worked.

I don't know if you have read it but AFA has a very good PDF on the procedure and why it could be used. They also state that it is used hen meds and other procedures are not appropriate or have failed. Here is the link to the article:

atrialfibrillation.org.uk/f...

Hope this helps

Tim

Offcut profile image
Offcut

My third ablation could decide if a pace dependant option is my next option. I have been told.

TheStand profile image
TheStand in reply toOffcut

That is the common path to that procedure. Like I said, when they have tried everything else then that is the last step. As I said above, I do know quite a few who have had it done and they say although they are still in AF it has relieved the symptoms to a manageable level.

I just feel that it is so Finale. There's no going back after it. I hope the ablation works.

Tim

mumknowsbest profile image
mumknowsbestVolunteer

Hi All

I had this procedure 4 years ago, and yes it is final but nothing else had worked and I had had 4 ablations. As Tim said it does not stop the AF just masks the symptoms. I am still on meds but at least life is more or less normal and no fear of passing out with the af

Eileen

Beancounter profile image
BeancounterVolunteer in reply tomumknowsbest

HI Eileen, fully agree with Bob D great to see you here, your experience and advice will be much in demand I am sure.

Ian

BobD profile image
BobDVolunteer

Good to see you have come over to The Dark Side Eileen. I know that you are the acknowledged expert on pace and ablate.

BobD

BStanding56 profile image
BStanding56

I have paroxamal Af I have had cardioversions Ablations to which there have been a much better quality day to day life, however what has started to happen is that I have collapsed a few times because a nosedive in either bloodpressure or bradachardia, this has really knocked my confidence big style. My blood pressure at times has gone up to 230/100, when they try to lower it with medication it can nose dive. to be honest my gp who has been great does not know how to treat me. My consultant feels this is the best way forward for me. I am currently on Amiodoryn after the last out of collapsing while in Af. I cannot tolorate bisop and other various meds have been tried:( Thank you for your supportx

in reply toBStanding56

Hello Beth -- have chatted to you on the Other Side in the past as we have had similar experiences. I wish you all the best with your procedure & will be very interested to hear how you get on. Pace/ablate was suggested to me but I went for my 3rd ablation 4 weeks ago & just wait to see if this settles things down.

Best Wishes

Sandra

BStanding56 profile image
BStanding56

Thanks Eileen, chatted a little last year sometime about the possibility that this could be on the cards

BStanding56 profile image
BStanding56

Tim, Have looked at the. PDF about Pace and Ablate, yes it is excellent and is reassuring, Thank you . To be honest I feel as if I have had enough of the whole lot of it as I am sure you all feel the same. Before I had my ablations, I was very symptomatic, passing out all over the place, could hardly walk because of mainly the effects of medication etc, it was no quality of life. I suspect this has been brought about by stress, I did have a very stressful job. which because of the AF had to retire from I remember reading in either magazine or newspaper many years ago, that some people to some extent thrive on stress, but in the end you have to pay for it:(

BStanding56 profile image
BStanding56

Sandra, I really wish you well, and hope that sorts it out for youxBeth

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