Now? Hospice.

[jcoil]

DC went to his last chemo appt on 1/30/25 but was cancelled. They rushed him 1 unit of RBC instead. PET scan was lit, it’s all through his body now. Doctor said there is nothing more they can do for him. Recommended hospice and, through tears, DC agreed. He is comfortable, clean, and safe. He’s bedridden 98% of the time. He drinks protein shakes, eats tangerines and PB&J sandwiches. Seems his taste is slowly returning after all the chemo, which is good because now he “wants to” eat instead of “have to” eat, although not much at a time, but we’ll take what we can get. Hospice has been amazing. His vitals are normal and he no longer has HBP. Probably from the weight loss. He is 6’2” and so incredibly thin. Hospice wants to get him a hospital bed but he refused at this time. Mentally, I don’t think he is ready for that. Makes it too real. We watched the Super Bowl yesterday together and he was talking about next years teams…at least he is thinking of other things and not the inevitable. I think he leaves that part up to me.

I’ll keep in touch.

[pjd55d]

on this next stage of his journey, know that there lots of people out here who are thinking positive thoughts of support for DC and for you jcoil

[Xavier10]

I remember when my Dad died of a different kind of cancer, hospice caretakers brought that hospital bed in what I thought was a little early. I wish they wouldn't do that. Just try to be there for him when the time comes and make sure they keep his painkiller medication at a reasonable dose, which I am sure they will, being trained. Peace be with you

[Mikeski]

My Dad spent 6 weeks in hospice care. In addition to keeping him comfortable, they provided counseling for him as well as for his caregivers (us).

It was very supportive and helped us through the process. I highly recommend it if it’s available to you.

Praying for you both.

[j-o-h-n]

to jcoil, You're a sweetheart...

Good Luck, Good Health and Good Humor.

j-o-h-n

[Alicat1]

God be with you. I'm in pain too ill pray for you all. Christ is King. He loves us and heals us.

[turkeyjoe1]

He is so lucky to have you. Peace to you both.

[xxxsmith]

Sorry to hear the worse... Google "Fenben" and prostate cancer and review your options... there may be some hope, because many others have benefited, and it appears you have nowhere else to turn.

[TEBozo]

God bless you.

[normanbyrott]

My greatest sympathy for you both. My chemo was support for the rt to my pharynx not the main treatment, and after 4 I'd had enough of feeling destroyed so refused any more. Continued with the rt which seems to have been successful. My taste returned 4/5 months later and appetite one month after that so I would say he's not doing too bad at all. All in all it is a horrible experience and you are both fighting it and refusing to give in, please carry on doing what you're doing and you both seem to be doing all you can. I am another on here who is praying for you.

Very best wishes.

[dmt1121]

This is so much harder for caregivers than the patient. Hopefully he will be ready soon to focus on his pain management and to spend time with friends and family before he passes.

Lean on your family and friends for moral support during this very difficult time and give into a need for breaks to recharge yourself. Good luck!

[swwags]

He is lucky to have you at his side.