Help for my brother: I’m doing some... - Advanced Prostate...

Advanced Prostate Cancer

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Help for my brother

HelpForBrother profile image
12 Replies

I’m doing some research to try and help my brother. 62 with stage 4 prostate cancer. Had a 26 PSA. Is taking the hormone shots every 6 months and completed radiation. Cancer is in his pelvic bone and lymph nodes. Doctor said he has maybe 10 years at best. I’m trying to get him to look at alternative treatments like fenben and ivermectin. I appreciate some of the testimonials that I have read.

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HelpForBrother
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12 Replies
mrscruffy profile image
mrscruffy

Fire his Doctor. I was told 3 years and am now going on year 9 with a new Doctor

HelpForBrother profile image
HelpForBrother in reply tomrscruffy

That's great news for you. Are you doing anything different besides the typical radiation or chemo treatments? Like fenben or something else?

mrscruffy profile image
mrscruffy in reply toHelpForBrother

SOC only, consisting of Lupron, Zytiga and radiation. For last year have started Lynparza. Don't buy in to all the different supposed cures etc. Don't believe in "micromanaging" my disease. Everybody is different I no longer fear dying and am ready when it is my time. Maybe tomorrow maybe 20 years from now, who knows

pjd55d profile image
pjd55d

ya know, the predicting life expectancy is ...? 8 yrs ago I was told 5-7 yrs ... fooled them. Still here, still living my life and enjoying it. They just don't know.

What will happen today ? - who knows. Tomorrow ? - same. Next week, year etc ? - and not just the cancer. All of life

Staying informed, paying attention to symptoms, second opinion - all positive.

Living every day fully engaged and supported with the presence of the people you love is pretty good medicine

HelpForBrother profile image
HelpForBrother in reply topjd55d

Thank you and good luck for a long and healthy life.

Darryl profile image
DarrylPartner

ask your brother to join this community

HelpForBrother profile image
HelpForBrother in reply toDarryl

I did. I just found it today and shared it with him.

speranza10 profile image
speranza10

But apart from radiotherapy and injections every 6 months, what other treatment are you having?

HelpForBrother profile image
HelpForBrother in reply tosperanza10

It's my brother that has it. I don't think he is doing any other treatment for it. He had his first hormone shot in September and then radiation for a number of days. And I'm pretty sure that's it. He goes in for bloodwork every two months and shots every 6. I've been pushing him to look at fenben and other alternative treatments for a few months, but he kept saying that he would stick with what his oncologist recommended. He finally agreed yesterday to look at other stuff.

speranza10 profile image
speranza10 in reply toHelpForBrother

In cases similar to your brother's, in addition to radiation and ADT, another drug, Zytiga (abiraterone), should also be taken for two years. Talk to your oncologist about it.

tn12 profile image
tn12

Can you fill out your bio ( with your brother's stats) for details of diagnosis etc... would be helpful

HelpForBrother profile image
HelpForBrother in reply totn12

I added all that I know.

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