Lupron side effects : been on Lupron... - Advanced Prostate...

Advanced Prostate Cancer

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Lupron side effects

Reltubs profile image
34 Replies

been on Lupron for 2 years! Muscle lose, stomach is bigger, legs are weak and testicles are smaller! Anyone else have same problem? How can we counteract the effects?

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Reltubs profile image
Reltubs
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34 Replies
Tall_Allen profile image
Tall_Allen

Exercise can help preserve muscle mass - get permission from your oncologist first- metastatic bone lesions can fracture easily. Reduce caloric intake to match reduced metabolism. Nothing you can do to increase size of your testicles.

Boywonder56 profile image
Boywonder56 in reply to Tall_Allen

take a hammer to em......not THAT hammer kal ....like chicken in a chines restraunt

KocoPr profile image
KocoPr

Use this sites search engine it is good and you will see we beat this subject to death

Kaliber profile image
Kaliber in reply to KocoPr

lol

❤️❤️❤️

Lettuce231 profile image
Lettuce231

Testicles ? I bought smaller boxers 😕

spencoid2 profile image
spencoid2 in reply to Lettuce231

I had mine wacked and can wear women's underwear if I want to but I don't. Nice to have the option.

dhccpa profile image
dhccpa in reply to spencoid2

Nothing like freedom of choice. Let's hope SCOTUS doesn't take up that one!

spencoid2 profile image
spencoid2 in reply to dhccpa

if they do they had better show what they are wearing under those robes. i don't trust hypocrites.

PSAed profile image
PSAed in reply to Lettuce231

I did 2 years Lupron.... shrunken testicles... however when finished the HT they returned to normal size. Reminded me of the old song:

🎵 like a rubber ball I'll come bouncing back to you 🎶

😀

Lettuce231 profile image
Lettuce231 in reply to PSAed

Mirror, Mirror on the wall, give me the biggest testicles of all 🙏His legs dropped off 😱

Cramlingtonboy profile image
Cramlingtonboy in reply to Lettuce231

I heard it as 'Mirror mirror on the door, make my gonads touch the floor'.

Lettuce231 profile image
Lettuce231 in reply to Cramlingtonboy

Heavy weight champion, the old song " stop dragging my nuts around " Tom Petty 😳 ouch ! 😆

Boywonder56 profile image
Boywonder56 in reply to Cramlingtonboy

at least they dont hang in toilet water anymore😜

Lettuce231 profile image
Lettuce231 in reply to PSAed

All day it's been nagging me 😨 Booby Vee ?

dhccpa profile image
dhccpa in reply to Lettuce231

Yep.

Lettuce231 profile image
Lettuce231 in reply to dhccpa

I love pop quizzes 🤪 Bouncy Bouncy, Bouncy Bouncy 👍

dhccpa profile image
dhccpa in reply to Lettuce231

Elvis had a song "Please don't drag that string around," but I guess our strings are rapidly getting undragable.

Lettuce231 profile image
Lettuce231 in reply to dhccpa

There's a song in everything 💿. Elvis the pelvis did well, " I'm all strung up " aha oh yeah, I'm all strung up 🎼

Alicat1 profile image
Alicat1

Same here. My balls are the size of peanuts. I just accepted it. No one looks there anyway.

EchoII profile image
EchoII

All I can say is join the club. Luperon is not the only one that produces those side effects. Orgovix , a newer drug, has exactly the same side effects, loss of muscle, belly fat, disappearing testicles, fatigue, etc. People advise exercise, but try exercising when you are so fatigued that climbing the stairs exhausts you so much that you have to take a one hour nap to recover.

vintage42 profile image
vintage42 in reply to EchoII

"Orgovix , a newer drug, has exactly the same side effects, loss of muscle, belly fat, disappearing testicles, fatigue, etc."

I have been on Orgovix for 6 months and notice the first two effects but not so much the second two. I do 30 minutes every other day on 7 strength-building machines at a club, a routine designed by a physical trainer for me, and have good energy with no fatigue.

Mgtd profile image
Mgtd in reply to EchoII

I hear you and maybe this will help. Can you sit in a chair? While sitting can you hold out your arms? Can you raise a leg off the floor?

If you said yes then you just won the exercise lottery. Here is how to collect your money. Buy a book on using resistance bands and READ it. Then go to WalMart or Amazon or were ever you shop and buy a set of resistance bands. You will see them colored by level of resistance.

Start slow and try for a couple of minutes 2 or 3 times a day.

One last help search and red about Chair Yoga.

Hope that gets you started.

TrashPanda72 profile image
TrashPanda72

don’t forget the best side effect: you are still here fighting the good fight!

EdinBmore profile image
EdinBmore

Check out previous posts regarding the effects of Lupron; there an abundance of them here. Also, check out YouTube and other PCa organizations. You'll find a lot of support and suggestions for dealing with low T. Some weather the effects with a shrug; others are devastated. I fell in the second group. Wouldn't wish it on anyone.

Good luck to you.

EdinBaltimore

samahieb profile image
samahieb

Exercise- particularly weight training

janebob99 profile image
janebob99

Many men use transdermal estrogen (patches or gels) to fight the hot flashes, osteoporosis, increased blood glucose, increased cholesterol, and worse lipids, which are all common side effects of Lupron ADT.

Bob in New Mexico

SteveTheJ profile image
SteveTheJ

Everyone's response to Lupron is different. Weight-bearing exercise is good but keeping a positive attitude is the best thing you can do for yourself.

Derf4223 profile image
Derf4223

A fitter body via exercise is the goal and getting there a journey of starting out doing what one can and prudently increasing intensity and modes as you progress. Nobody says you have to get there in a week or a month. In my lifetime I have found that getting from couch-potato unfit to fit takes longer and longer. This time around I am still getting fitter after about 1.5 years with no intention of stopping. It certainly has reached the point where things I struggled with like starting a snowblower/lawnmower are easy now, etc. Even if it has had no impact on my APCa arc, it has very much impacted my QOL.

Mgtd profile image
Mgtd in reply to Derf4223

Great advice and good news. Keep up the good work! I agree it is a marathon not a sprint and you are done. Great post!

Okay4now profile image
Okay4now

I'm 74 also, been on Lupron for 5 years, have all the SE's you mention, plus "brain fog." Now that one could be due to antidepressant meds, or years of excess wine consumption, or just being 74. I don't remember who to credit, but someone posted a video with Dr. Robert Newton, an exercise oncologist. He recommends impact intensive exercise (running, jumping, etc) to counter the loss of bone density. And bone health is probably my biggest concern, so thank you to the gentleman who posted that clip!

Roxysdad profile image
Roxysdad

4 + years on Lupron and all the above side effects .,,I started BAT the same time I stopped Lupron..,it took 6 months of BAT and my 2 pistachios and Vienna sausage are back to normal size…but so far I’ve been unable to get rid of the 12 lb Lupron tire around my waist…And I swim 4x a week, eat good, only a glass of wine on occasion.,..I stopped BAT a couple of months ago to get my PSA down , but will start Bat again shortly..,I’ve decided not to go Pluvicto due to my age, (86 …in 2 weeks)

Boywonder56 profile image
Boywonder56

we all do...those who dont....i prob wouldnt want to be them anyways.....way too much discipline.....plus i got a good lady...aint running streets...looking for a favorite mistake...

Break60 profile image
Break60

I switched to estradiol patches, three . 1 mg each changed weekly and lupron side effects went away.

j-o-h-n profile image
j-o-h-n

I tried calling the makers of Lupron..... their direct telephone number is 1-800-FUC-KOFF.

Good Luck, Good Health and Good Humor.

j-o-h-n

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