Hi everyone -
After a removed lymph node was found to have cancer in it after my prostatectomy, I’ve migrated myself over to this Advanced Prostate Cancer group. I keep joining these new clubs. I must be popular.
Does anyone know of a great Medical Oncologist specializing in prostate cancer in the Seattle area? I’ve seen one at Virginia Mason, who seems fine, but I’d like to get more than 1 opinion.
Hey. Check out Heather Cheng at Seattle can er Care. Love her and her team.
Thank you!
and how does the"average" patient determine that beforehand?
A retired medical oncologist, Ed Weber, co-hosts a monthly prostate cancer support group at the Swedish Medical center in Seattle (seattleprostate.com/news-ev..., so if you’re in that area he’s very knowledgeable and is great at explaining things, and he’s happy to give you an opinion about your case.
Thank you.
As a prostate cancer patient and a physician, I can’t say enough positive things about Robert “Bruce” Montgomery at Fred Hutch/UW. I recently saw him for a new patient appointment in a transfer of care from another MO also at FHCC/UW. I could go on and on.
I’ll look into him, thank you.
So Dr. , other than referrals from another PCa patient, how is the average man supposed to find/choose someone??????????? Keeping in mind that most men do not live near places such as Fred Hutch? Aned even for those lucky enuf to live near, selecting one MO from a group of MOs......or in my case, choosing one RO from a group of ROs? Just purely hit or miss?
Selecting a physician can be very challenging. In the case of Fred Hutch (and probably most top quality centers), I think you are likely to find that all the physicians are highly competent. In my case, I made a change due to stylistic differences, not competence concerns. If you don't live near a top quality center, one idea is to try to get a recommendation from one via second opinion consultation, etc. You can also keep the second opinion consultant involved via periodic visits, and get ongoing input from them for proposed treatments.
Not an answer to my question re your " I want an MO who knows about hormonal therapies and truly understands hormonal cancers. "
Suggested reading on how hormonal therapy works and any suggested treatments? I get my first shot on Wednesday followed by 8 weeks of proton radiation.
PCaWarrior wrote in Bio -- "I was diagnosed GG5 in 2018."
Not sure what GG5 is, but if it's GL 5+5 or or Gleason 10, then same as me.
For my treatment protocol (in 2015), I didn't see a Medical, Surgical or Radiation Oncologist but instead an Interventional Oncologist (Interventional oncology (IO) is an umbrella term for minimally invasive cancer treatments that often use medical imaging during the procedure.) So far so good having treatment beginning with a bilateral Orchiectomy + Cryoablation for the right half of prostate GL10 tumor +IRE for lesser GL6 and GL7 in left half + a 1 time in situ the GL10 cryo'd tumor injection of Opdivo + Keytruda +Yervoy and since 2016 Cypionate(Testosterone) injections.
Different strokes for different folks.
Had your prostate cancer metastisized outside the prostate? Lymph node effected? Never heard of Optivo as a treatment till reading your post.
Injection offered was a triple non FDA Approved 1st use experiment that I agreed to since at the time I had no mets. visible with scans back in 2015 and thought maybe it might help boost immune to prevent future mets. So far still good even WITH TESTOSTERONE injections.
Opdivo + Yervoy has gotten FDA Approval
+The combination of nivolumab (Opdivo) plus ipilimumab (Yervoy) demonstrated significant anti-tumor activity when treating patients with metastatic castration-resistant prostate cancer (mCRPC) and immunogenic signature, according to data presented at the virtual AACR Annual Meeting 2021.*
Most folks have neither the time nor the background to delve into the subject in the way that you evidently have.....did some of those MOs(how many interviewed?) toss you out ?
Hormonal basics taught in HS> wow, guess things have changed since my HS days!!
MOs that don't understand ifference between Lupron's mechnism and an androgen receptor blocker? Hard to believe?
Thank you for the references.
Grade I got - did forget 🙃
I am a big exerciser now. 3-4k miles on the bike a year. Rowing machine in the winter. Have home weights and do a 3-4 minute workout every morning. Just got back from a vacation where we hiked 5-7 hours every day. I'm a little concerned on how I'll do sans T.
well, finding one good MO would seem to be essentially interviewing them...though yes in form of consult to pick their brains.
That is incredible about the Orgovyx !!!
Consult urologist or medical oncologist ?
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Anyone familiar with this Oncologist?
