Post 5k I drove up to Teri Hawaii - a local kine ono (tasty) food joint. Had a Large Teri Beef Saimin (Hawaiian ramen) Fried won ton and then a Rainbow Shave ice (Snow Cone) with vanilla ice cream. Then drove up to the Pantages for the Tina Musical
What a Blast that was, despite the nasty*ss Ike part of her saga.
Like at "To Kill a Mockingbird" hearin' the N word really hits you like a hammer and there were audible gasps from the crowd.
I may be thought of a crank saying this, but all the QOL posts by one or two HU members are getting very old and not helpful. Many of us cannot do the "fantastic" travels and activities that it seems just like bragging from these two. I was a vociferous supporter of QOL for PCa victims. I was unable to stop my MO from prescribing a therapy which cratered by life for a year. I found out how little research has been done on the importance of QOL for any stage of the cancer. I don't like having my notifications on new posts which do not give me any new info on therapy/treatments. Enough already. I'm very happy for these gentlemen and I support what they are doing to improve their QOL. Getting a eulogy for Tina Turner, one of my all time favorite singers and actress, is not appropriate, in my humble opinion, for equal time on here. Just my two cents. I have heard the same complaint from others. Please just stop, or at least, do it just once in a while, e.g. annually.
It's hard to skip by them when every other posting is this guys life. A LOT of members have left or become inactive because of his nonsense. NO ONE cares what he had for dinner. This is a cancer page.
Mahalo HikerWife, glad that you dig them, that's kinda why I do them 😁.
It lifts my mood too, over 8 years on ADT, 39 chemos, 28 IMRT, over 30 Lupron shots and I still Love Life💙
Dunno, where you're located and if you know about Mt Whitney. I summitted in 2014 and probs had PCa then but didn't do PSA for 4 yrs and it was 552.2 on 10/13/2014
I'm in "The Ocean State", RI! The smallest state, but with 400 miles of coastline. Eric didn't do a PSA for 4 years either. And here we are. Keep on QoL-ing, Randy, and don't let the trolls get you down.
I'm sorry but I think we should just talk about the misery of having cancer, not what we are trying to do about living with it and keeping a sense of humor Lets us all post grim statistics and medical reports. Those are fun to share. But seriously it could get a bit out of hand if everyone shared as much as Dockham but I do always enjoy his posts. Might not play every video. I can post about what is keeping me feel like it is worth living through chemo etc? Anyone interested?
spencoid2 -- Some folks with APCa (I speak for myself here) are trying to live the best life possible while it lasts. In reality, for a lot of us who will die from something else, APCa should not be cause for doom and gloom. Life is a trip that will end for all.
My MO has warned me that spending a lot of time on the internet reading about a disease does absolutely nothing except cause needless worry and wrong or irrelevant info. This site is an absolute breath of fresh air, a mix of those giving others ideas for improving remaining life, and others seeking medical advice and just plain airing their pain. All of it is OK!
I agree fully. However I could see a case where the fun stuff got so pervasive that it would be hard to find the "serious" medical stuff. As far as I can tell that has not happened yet so why not have a little fun mixed with the doom and gloom? I have stage 4 that might or might not be responding to chemo. If not something next until all stops working. For now I just keep living and having fun as much as possible. Have gotten a bit more impatient with idiots especially if they want to waste my time. But that is probably the case with all old guys sick or not
hi Maggie drum ….. you are not alone not liking QOL posts, so don’t feel bad. It’s fine. Several others mentioned that , so we added “ QOL “ in the header of our posts so you can just skip / avoid reading them ….and not be bothered by them . We get a “ lot “ of positive participation in our QOL posts and ,” mine “ anyway , are free and open for anyone and everyone to jump and take the thread to any direction they may please. The thought being more about camaraderie and just sharing whatever together … a social aspect to add to an otherwise glum - morbid subject matter of “ daddy died “ , I’ve failed all treatments etc. , it’s hospice time ( I’ve already escaped hospice once ) ….a group of this type is , by nature , is very depressing and sad a lot …. QOL posts are encouraging others to get out “ anywhere “ ( off that couch ) and do something upbeat “ anything “ fun while we are waiting for the axe to fall. Brighten up our perspectives, use our waiting time for family and events , travel … just across the street to the park….like me this morning. Posted above. Absolutely every croaker ( esp me ) on here is advanced stage 4 with death in our faces …. I have to say that changing the subject to something light hearted and not about death is uplifting for me. Many others have expressed the same thought.
Again , My QOL posts are intended to be social among us group croakers and caregivers. Nothing more than that. I’ll be bold enough to claim that almost no one on this group is more debilitated and cancer wracked than I , ….if I can do something pleasant and relate it to others like me … that’s the whole shebang. If I can do it, you can too. All our QOL posts are usually quite different, I don’t expect everyone , anyone … that is crumbling facing oncoming death to be “ all that “ congealed mentally, would you. QOL is venting too … like you right now. I have to say “ thanks “ for getting on and venting. This is Randy’s post and I don’t- can’t speak for him, but I suspect he feels just the same. He’s trying to invoke dialogue… camaraderie …social connecting . He invoked you. Kewl …
Being a croaker like he is , I give him wide kudos for his efforts , however they present. His heart and mind are in the right place …especially hearing those thundering hooves like he is beginning to hear. He sure works his behind off at it … he shares his immense energy trying to help. I apologize to Randy for hammering his post … Ima trying to quit doing this yayahahahaya.
Thank you for voicing your opinion. I respect that we all see this site differently and appreciate that these posts are not for you. The members of this site represent a diverse group, and while I like the QoL posts, I understand that not every post is for every member. I certainly don’t endeavor to read every post, either because of the relevance, or because I don’t have any pertinent need, advice or feedback.
In addition to providing valuable information and learning from other’s experiences, this site has helped me get through many times when I’ve felt ill, have been isolated, or just feeling wiped out and listless. The posts, the interaction, and the chats can buoy my spirits, motivate me, or sometimes I just enjoy the interactions. I also appreciate the in memorium posts. To me it is important that our fallen members be remembered and aknowledged.
I guess that for me this forum not only serves as an information source, but also as an online support group. Malecare has provided me with an opportunity to virtually meet and share with people from around the world. We are brought together by our common need, and here we have a chance to share support, advice, and encouragement with each other.
My thanks go out to everyone who takes the time to post, and to all of you who have offered me compassion and support.
If I had read your reply I probably wouldn't have bothered. Great summary of the importance of lifting the mood, and encouraging us all to LIVE, while we are still able.
we better knock it off …. Before people think we are going steady. Yayahahahaya yayahahahaya. Death can be a lonely thing brother , misery loves company. You said it best.
ok ima sorry buddy …. You still look great , the best , ….. in a dress and that big infectious smile …. You “ pop “ brother. He doesn’t hold a candle compared to you. You remain my guy. Yayahahahaya.
yayahahahaya … the Randy in a dress episode was a while back . He wears a petite and looks good in it. I think he was wearing his daughter’s dress or something, I forget the exact details. The dress, his wind blown hair , big smile … hubba hubba. Yayahahahaya.
For all of with no genitals and ADT vanquished sex drive … little point to any of it anyway yayahahahaya.
Yeaaaa buddy …. Lol , you need my ginormous ADT boobs , a little smoky eyes , black 5” stilettos ….. and some undergarment treasures from Spartacusretail.com ( whatever that is, never heard of it myself, but their packages are very discrete , so I hear yayaya yayayayayaya yayayayayayaya )
Hubba hubba ( how old and brown shoe is that exclamation ) …… may I say that you look great buddy , better than rich corinthian leather ( me ! … hey we’re old and wrinkled ) … I don’t look “ great “ in ANY pronoun clothes. What’s worse looking than a 14” diameter ankle stuffed down into a ladies 14wide stiletto …..ugh. Yayahahahaya yayahahahaya. I have no what I just said , it’s the drugs , yea … the drugs made me do it …. That’s it. Wooohooo .
you know what buddy …. Now since you are the recreational social director on the group , I had a thought, suggestion that might shut up some of the foul mouth complainers here !!
You’ve got QOL food , entertainment and exercise totally nailed … how about expanding to friendly , welcoming QOL camaraderie discussions among us croakers ! about things like “ QOL - a question about how are any of us dealing with depression, what’s working for you ? “ , or QOL - how much pain are any of us having, how are we dealing with it ? “ or QOL - discussion about how we are handling our relationships… wife , children , etc. “ ….. “ QOL - let’s share how we are dealing with our own mortality , the depression , the anxiety, crying ?? “ . …. Topics like that. Sprinkle them in with your great food, travel and exercise posts . Basically open the scope of your QOL posts to be more inclusive , have a broader range of inclusion relevant to all us croakers , material. Generate a space for us guys facing death to unload ourselves, to get ideas from others … or just a friendly place to “ vent “ , “ unload “ … ( we, all are in the same boat up the river with one paddle , after all ), to make them feel better. Stuff kinda like that.
Dunno, it’s just a thought but seems like a natural extension of your hard work buddy. It might be hard to get people to actually participate , at first, but maybe if you open up those channels of emotional release, some , maybe many would start to be receptive to the benefits of spreading our heavy burdens over a broader space. It could bomb , but think how QOL beneficial that could be. It’d be experimental at first and you’d have to fish around with adjusting the topics probably.
Making the group a welcoming home for death sentenced men has the potential to be very beneficial for the men and their families - caregivers alike ( huh Darryl ) .
your post made me get off my couch this morning and put several miles on the etrike on local trails. Then had some OMG mouth watering chuka ika squid salad , dragon rolls , OMG sashimi …so fresh it was almost wiggling yayahahahaya. Of course pickled ginger, my Uber dangerous real wasabi , and soy sauce condiments. While I was out on the trails, the hammer was so nice to drive down to the Central Fish ( Japanese ) company downtown. They are the freshest , best selection… in town. Almost bliss overload ….. yummmmmmmm .
Keep adding fuel to the fire Sonny Boy. Why don't you marry the guy? No one cares what you eat. How about some useful prostate cancer info? You and your little friend are turning this group into your private chat page.
I’ve already said that some here don’t appreciate - understand the social camaraderie element the QOL posts try to create. Honestly Randy works his buns off trying to add some pleasant social content , kinda aspect. He’s in the middle of trying hard and understanding what works or not. There isn’t a swinging D on this group, save TA and Darryl that will work so hard trying to lift the pall of death here.
Like Ive said many times …..pleaaaaase skip the QOL posts if you don’t like them. They are specially worded for you to be able to skip them and move on. Randy is in his learning phase. If everyone , or nearly so … skips one of his QOL posts , he’ll digest that experience and change up to be more relevant. He’s a bright guy with a medical degree … a guy widely applauded for his humanitarian contributions for decades. He’s the right guy to steer the new social arm / aspect of the group … help him if you want to say something. Help all of us have a social place where death facing croakers can come and vent and unload. Where we can just be comfortable amongst their peers. Who understands “ us “ better than us ? Is there a more perfect , suitable place than this.
there just naturally has to be people with “ grumpy old man “ syndrome in a place like this group buddy. Even in the absence of death sentence cancer, a whopping lot of guys in the 60s-70s ( especially) , 80s etc. experience geriatric syndrome , working in a V.A. Medical Center for decades, I’ve seen it thousands of times. The “ grumpy old man “ thing can actually become really abusive and even seriously violent. Actually being shocking to the uninitiated, if they hadn’t seen it before.
As if that’s not enough, let’s pile on a heaping bunch of death cancer and stir that mess up. WOW, the potential in that mess is awful. Considering the age crosss section of a group like this, it’d be nearly impossible for a hefty component of grumpy old man syndrome not to exist here. Terminal cancer isn’t going to sweeten anyone up as well yayayayayaya yayayayaya. Prolly those guys need , more, a helping hand of compassion more than anything. Nothing much but heavy meds does much for it, and usually not “ all that “.
Don’t take it personal buddy, ….. maybe , if anything, you are actually helping in the respect that you are providing an outlet for venting , that may have built up for ages.
You still da kewl one buddy , very few in your league here brother. Love what you do …. , a lot of beneficial good comes of it, you absolutely know it.
Hey Bruddah Kal, all good, I ain't gon stress about any grumpys on here. Imma live my life as I wanna, with a Happy 💙 - just still being upright and able to work, hike, cook, and QoL is all a #Blessing 😊BTW, this pic popped up on a Facebook Memory, took my Cerebropalsy pt to Van's Warped Tour in Ventura with my daughter in 2014😁
well buddy … it’s Friday morning ( the 23rd ) and ima feeling pretty good in the aftermath of a seriously challenging week. Upbeat and optimistic ( real good drugs help too lol ) It’s been a screwy chaotic week …. How does this bizarre crazy chit happen to a white haired ( blonde really ) old …. slobbering on himself , …near octogenarian ( 77 ) in a wheelchair ?????? WTF. Yayahahahaya yayahahahaya …..that may be a somewhat embellished visual …..but it’s close .
It’s a nice cool morning , the house quiet ( the hammer out ) doors and windows open, soft smooth breeze…. doves and mockingbirds singing … no physical pain to speak of at this moment. Groovy laid back soft 70s music ( Jackson Browne right now ) wafting quietly my from surround in the room. All the drama from the past week hardly even a memory now. Niiiiiiice …..
That’s a kewl pic brother , like your shirt sentiment yayahahahaya great looking lady there, I’ve known a number of gals like her, in my wayward youth …. Literally all had good heads and attitudes and enjoyed going out and having fun.
I hope your weekend is starting up same as mine buddy, maybe take a comfortable break in a scenic / fun relaxing place … hit that Delta-8 vape a couple and sit back and relax. Unload your mind from all those interfering thoughts of this past week and just chill for a while. ( keep that meatball sub and cold brew handy after the delta kicks in tho yayahahahaya )
LoL, that was her Tank and I told her the I wanted to wear it for the pic. I think that I had taken her to 2 or three Warped Tours. Very sad tale as her Mom when preggers with Chels - water broke and Mom did't get treated for days and chels is paralyzed from that . She's still on my Facebook, he G'Pa was a local Hawaii guy and of course we bonded like Ohana
Got no weekend plans, but will get hikes in and gotta do laundry and get ready for a trip next weekend to visit an HU Member. No meatball sub tho that sounds great now, having a Coors Light and whole wheat penne with ground turkey tomato sauce
Gonna catch up on this Season's BattleBots championship rounds
Last night I wrote you a rambling reply to this one .. but I kinda wondered off again and I thought the part about children playing with remote control 4’ chainsaws had drifted off a bit into the abyss and really wasn’t appropriate content ( as if my stuff ever is , to hear some say yayahahahaya yayahahahaya ) . So I abbreviate this quite a bit. I hope you read the other one tho. Yayahahahaya.
I knew, sure as shoot’in , you would post seals and crofts summer breeze , just because it was so apropos. Yayahahahaya. Believe it or not, it was played on soma fm. ( easy listening 70s music , One of my favorite from Home in S.F. .. chill salad I like as well ) yesterday too. Some kinda glitch if the fabric of reality thing ? Prolly not but thought provoking. 😂
I love battlebots too … I’ve made dozens and dozens of remote control camera and sensor platforms over the years. My current fleet of fpv quad copter drones fits right into that category as well. They are remote control , flying , camera and sensor platforms with FPV ( first person view, just like you’re sitting right in it flying it like an aircraft ).
Getting ready for SvenGoolie tonight, getting my snacks and …er …ah … consciousness, altering substances / beverages. all ready. “ Ghoul without a face “ , playing tonight.
Wow, about you building those "bots" I I'm not surprised at all that you did that - that's so f'in awesome. You have a ton of tech skills - I love it . Oh oh song time youtu.be/lUx-pm2-N8c
Ohh, SvenGoolie, I've heard if it gonna have to check it out.
great list of relevant tunes buddy. I mentioned feeling really “ well “ yesterday ….. primarily a combination of momentary low pain burden and I had detoxed myself off opiates during this week and I was clean starting Thursday night and all day Friday.
Long term opioids use drags down your mental state , into the dirt. They are ever so important for the piles of discomforts ( pains ) , but they really drag down and kill your spirit. Danged if you do, danged if you don’t. It sucks. Yayahahahaya
Too bad battlebots is over for the season, but , since you are so close to me, you should have SvenGoolie on cable 375 tonight.
Tried to leave funny picture of a bot , but mods blocking my photo posts lately.
Glad you detoxed just to get back to a normal state of mind and not zombied out. Long term chronic pain can lead to depression and suicidal ideation :-(, but long term opiate use has it's own issues. But you doin it right Kal, on/off as you see it - you know your body and how much you can handle and dose accordingly.
I really admire you my Brother, as K-xo and I spoke of lovingly you last Sunday 💙
You da Man - always even keeled and sympathetic even with the Grumpsters complaining on HU 😁
Keep it up gentleman. I skip over so many posts so I don't understand why people who do not care for these can't just skip over them. IMO if the site/forum manager i.e. Darryl doesn't have issue with them then discussion over. They are welcome!
Mahalo Treedown, and 5 months ago admin pm'd me this:
"Hi I think your QOL are a success. Reminding us all why we are doing the treatments, etc. You can see others picking up the idea, too. Please be so kind as to include "QOL" in the beginning of your post titles. There are indeed some people who are in pain and want to skip over hopeful posts. Puting QOL in the beginning will make it easier for them. You are more than welcome to use "Qol" a second time in your title, if you want to make it witty. Thanks for developing this idea!!!"
yessir yessir brother. A little bit of “ hanging out “ and social camaraderie is good medicine for our sad cancer souls and hearts. The group providing a home for that is an excellent way to help croakers too. Full spectrum service from HU is a plus.
Only some of us apparently. What surprises me is that people come on here just to get pissed off and troll other members. But thats life and death I guess.I for one get as much from the camaderie and laughter as I do the information. There's some funny ass members on this site and laughter is very much another form of treatment as is a positive attitude. This place is like a comedy club for people with PC sometimes.
I know some of the grumpy antagonist can be really caustic, but maybe they are calling out for help too, and just don’t know how to go about it in any other way. That my glossy bit yayahahahaya. Prolly , more the truth sometimes, there are just a-holes that have always been a-holes …. caught aPCa and are lurki g here now too.
Either way , we are all still brothers in cancer tragedy … death sentenced … gots to extend all of us , nasty and nice , a warm hug and some understanding, no matter what.
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Lets us all post grim statistics and medical reports. Those are fun to share. But seriously it could get a bit out of hand if everyone shared as much as Dockham but I do always enjoy his posts. Might not play every video. I can post about what is keeping me feel like it is worth living through chemo etc? Anyone interested?
. She's still on my Facebook, he G'Pa was a local Hawaii guy and of course we bonded like Ohana
Is another MRI needed? 
QoL and watercolour painting
