Waiting for locusts! : Well, spouse's... - Advanced Prostate...

Advanced Prostate Cancer

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Waiting for locusts!

Biobro profile image
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Well, spouse's missed Pluvicto was scheduled for last Friday. So only a 3 week delay. He got a slot vacated by a patient who dropped out. Previous Monday his liver enzymes were slightly elevated so they did a test on Wednesday. Enzymes going vertically wrong, so Pluvicto cancelled, diet down to veg broth and poached chicken, liver scan and MRI plus appointment w hepatologist made for this past Tuesday. Monday night the final result from the extensive blood work of the previous week comes back. It is Hepatitis E. Which even his primary care doc had never ever seen. And we had never even heard of!

Health department is now all over us trying to figure out how he got it. I'm waiting for my test to come back. He's off ibuprofen until his liver enzymes drop below 100. And liver doc signed off on Pluvicto treatment with extra liver monitoring. Liver enzymes dropping fast. And he's back on his original Pluvicto schedule -- so just a complete missed cycle which they will tag on to the end.

We did not have that on our Bingo card for this past week! Alas PSA is rising fast with the delay.

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Biobro profile image
Biobro
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5 Replies
SeosamhM profile image
SeosamhM

Zikes, Biobro! What a terrible ride! I'm glad that he's back on Pluvicto and hope that you come back negative for Hep E, and...please... don't discover Hep F, Hep G,...etc....! Good luck! - Joe M.

Kaliber profile image
Kaliber

yikes …. I’d never heard of “ E “ as well. Keep us posted about this unusual event, thanks.

❤️❤️❤️

j-o-h-n profile image
j-o-h-n

With the current inflation rate nothing is lo-custs anymore......

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 03/25/2023 11:45 PM DST

Kaliber profile image
Kaliber in reply to j-o-h-n

lol

Biobro profile image
Biobro

Thanks everyone for your support. Sometimes all one needs to do is vent! And board members here understand.

Update:. His liver numbers continue heading in right direction. Yay! Still a bit nervous about LU177 treatment though as they are not yet back to normal and it's the RO who has the final say. Worst thing about this was that he couldn't take ibuprofen for arthritis pain. Oncologists and liver doc all said blithely take oxycodone. That was a disaster. He's taken it previously very occasionally for bone met pain after Pluvicto. Maybe 20 mg tops. Using it for arthritis a) didn't work and b) the beastly stuff gave him Parkinson like symptoms. So next project is to get him to pain doc to get a future plan in place for if anything like this happens again.

This is like fighting bees! 😸

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