Catheter out after 6 months and Old Faithful erupts, or rather dribbles. Will the dribble become a stream?

[Ausi]

What a pleasant surprise during my Uro visit, which was to replace the catheter and check things. When he pulled out the cystoscope I started to feel wet. It’s now a week after this happened, I can get the dribble to spurt but that’s it and I can’t control the incontinance. Any activity almost leaves me with a puddle in my super absorbent large pad.

All of this started due to the nasty side effects of a trial, 177Lu J591 drug which put me in hospital because of low platelets and clotting hence the catheter.

Questions:-

1. Is it just a matter of time and the dribble becomes a stream and my incontinance improves?

2. Do pelvic floor exercises help.

3. Do incontinance pills work.

4. When I was leaving my appointment and felt warm and wet I mentioned incontinance to my Uro and he replied we might be able to help, next appointment. I didn’t ask him what would he do. Would it be surgical or an exercise regimen.

Thanks for your help.

[Hidden]

Aye chihuahua Ausi! It’s Good that the blasted cath is out now ! I’m sorry that treatment damaged you. I had a foley and tubes out of my back for over a year . That was over six years ago now . Some men put a valve surgically to stop incontenace . One friend said it’s a bitch of a surgery . I know how a bad urology can wear you down . You will find your fix to all of this in time . Hang in there buddy . It can get better! 🙏☃️

[Ausi in reply to Hidden]

Thanks Slim, that’s reassuring, after it coming out I’d rather not have anything go in!

[Hidden in reply to Ausi]

It should be exit only! Hang tuff . ✌️

[tango65]

Do Kegel exercises as much as you can and see if you could get some control in about a month at least. If that does not work discuss about artificial sphincter or a sling to elevate the urethra in to the pelvis. The sphincter works in most of the cases,.

my.clevelandclinic.org/heal....

[Ausi in reply to tango65]

Thanks Tango, yes I’ll give the Kegel a go, hopefully the AUS won’t be needed. I guess it takes time to get the muscles working again.

[tango65 in reply to Ausi]

In some places there are physiotherapists who can coach you to do the Kegels correctly and perhaps more efficiently. Consult with your urologist if they have that kind of service.

I remember when they took my catheter after the RP and I could not hold any urine. Twenty one years later and many Kegels I have a minor stress incontinence.

[Ausi in reply to tango65]

I noticed an exercise room at the Uro’s so I suppose it’s for this, I think they’ll include me, Thanks.

[tango65 in reply to Ausi]

Best of luck!!

[maggiedrum]

I wasn't told that I needed to bring pads when my catheter was removed after my prostatectomy. I did need the maxi pads at first for a few weeks. I found the pelvic floor exercises certainly helped. I also got three physical therapy sessions with a therapist who specializes in incontinence, primarily for women who have it for other more common reasons.

It helped me identify how to do the pelvic floor exercises but it is basically squeezes like you are trying not to poop. Several sets multiple times a day. I got to the mini pads and wore them a long time. It slowly got better and better. I found that as soon as you feel like you "might" have to go - go! Then it was only occasional small squirts, and just like it says in any literature, you can also have accidents when laughing or doing other sudden things.

I got tired of the mini pads and finally quit them accepting an occasional accident which only got my underwear. I always, always sit on the toilet and don't try to use a urinal. If you do you will find that you are just as likely to use your pants as part of the urinal. I miss urinals but old men can't use them as well as they used to anyway.

[Ausi in reply to maggiedrum]

Thanks Maggiedrum, it’s good to know that the old dormant muscles can work again with a bit of encouragement, there’s plenty of incentive to get them going. It’s not much fun sitting on the throne waiting for the dribble to stop!

I’ve just read your bio, you sure have had a hell of a time with it, I wish you all the best.

[maggiedrum in reply to Ausi]

Ausi, I certainly empathize with you. It really is not a good QOL experience. Almost made me just want to leave my PCa alone and not get treated. Of course, sooner or later, the prostate would have given me the opposite problem with no dribble or squirt or anything without a catheter. It was going that way anyway. Good luck with your rite of passage. Pun intended.

[Ausi in reply to maggiedrum]

Thanks

[Ausi in reply to maggiedrum]

Even now I’m finding it a bit better down under, pun intended!

[garyjp9]

I know a brother who had the AUS surgery. It took a few weeks to get it functioning properly, but he is very happy with it now.

[Ausi]

thanks Gary, does he feel it being there when sitting, walking, uncomfortable or pain?