Scarring on prostate from radiation c... - Advanced Prostate...

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Scarring on prostate from radiation caused bladder blockage

Brightman profile image
12 Replies

I am currently in hospital recovering from a hip replacement. I was due to have surgery 5 weeks ago but an MRI showed that PCa was still present on my acetabulum after previous scans suggested it had gone. So I had to wait for the orthopaedic oncologist to help my orthopaedic surgeon to treat the bone with cement. It was all successful but I had the posterior rather than anterior approach which means that recovery will be slower. The surgeon couldn’t put in a catheter so a urologist had to be called to use a camera to see what was going on & wires to clear things out in order to place a catheter. He saw the scarring and will refer me back to my urologist to perform a small operation to help with this. Has any one else had this problem?

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Brightman profile image
Brightman
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patandemma profile image
patandemma

did you suffer radiation cystitis after external beam radiation?

I am assuming it was a urethral stricture from your description of "wires" to treat the blockage.

Filiforms (they look like wires) with followers (dilators) most likely were used to get a reasonable size catheter into your bladder.

urethral stricture can be a complication of radiation cystitis

Brightman profile image
Brightman in reply to patandemma

Yes I did suffer radiation cystitis after radiation was completed In October 2016 and the urologist did mention urethral stricture last Thursday. So will google it . Thanks for reply.

LVRob129 profile image
LVRob129

I just suffered a urethral stricture from excessive debris and had a turp done. With scarring you might have the option of a laser turp. My catheter comes out tomorrow.

j-o-h-n profile image
j-o-h-n

I had 39 salvage sessions of "Frying" at MSKcc. A few years later it turns out that my left urinary tract was scarred which to this day requires a (in and out) stent to alleviate the blockage.

Sidebar. My urologist's name is Lee, so I had a lucite paper weight made for him which reads "TROUBLE WITH YOUR PEE, SEE DR. LEE". He loved it and was showing it around to everyone in his office. He's cool or as they say now He's RAD.

Good Luck and Good Health.

j-o-h-n Sunday 07/29/2018 1:13 PM EDT

Kimmilemo profile image
Kimmilemo in reply to j-o-h-n

Did you have any kidney issues? From the blockages and do many catheters his kidneys are not functioning well. He just now had stents and tubes put out his back from his kidneys. He’s not sure what to do next. He has cancer still around the bladder neck.

j-o-h-n profile image
j-o-h-n in reply to Kimmilemo

Well, my left kidney atrophied and resulted in only 20% of my (right one 80%) urine flow. So far that is where I stand now. No pain, no blood thank goodness. Hopefully he's seeing a good urologist. If he's a veteran and lives close to New York City, I would advise him to see Dr. Ernest Sosa at the VA on East 23rd Street in NYC. He used to be my urologist in private practice but he decided to "teach" at the VA. He wrote the book(s) on stents. He's very good and with good bedside (friendly) manners. I would still use him as my urologist but that's a long story why I don't even though I'm a veteran. With my current urologist (Dr. Lee) he pokes me in the back on both sides and asks if it's painful. It's not. Sorry about the bladder neck issue that he has. If I can help in the future just post me.

Good Luck and Good Health.

j-o-h-n Thursday 12/20/2018 11:16 AM EDT

Kimmilemo profile image
Kimmilemo in reply to j-o-h-n

Thank you John , we live in Saint Louis MO but thank you for your advise.

Brightman profile image
Brightman

Ha ha. We certainly need a few laughs with this disease!! Thanks for your information. The nurse has just been in to take my catheter out (ouch)so hopefully home tomorrow. I had a TURP in June 2015 with no PCa in the pathology then. By May 2015 after biopsies I had a Gleason score of 9 and mets to 4 boney areas including my hip which has just been replaced. So after ADT, radiation and Chemo my psa is 0.01 so all is ok at the moment. I have had continual urgency and frequency so now this can be treated by my urologist.

paulofaus profile image
paulofaus

I had a TURP 10 days ago, so far it hasn't worked, so I have an indwelling catheter, for 1 more week. Hopefully the catheter will come out then and I will be able to pee again. Mine was not caused by radiation though as I haven't had radiation to the prostate yet.

Kimmilemo profile image
Kimmilemo in reply to paulofaus

Did you have your prostate removed?

paulofaus profile image
paulofaus in reply to Kimmilemo

Nope, just a TURP or commonly known as a re-bore, where they open up the urethra by resecting prostate tissue. I have since had radiation to the prostate.

Brightman profile image
Brightman

Have just seen my urologist today. He said that because my urine flow is good that he does not want to interfere any more with the urethra so will leave it as it is unless I have a blockage in the future. He thought that all my blood test results were on track so to continue as is at present.

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