chemotherapy

[NRYnurse]

please share experiences with Jevtana/Carboplatin treatment

[Darryl Partner]

Why do you ask? Please tell us more about you.

[Kaliber in reply to Darryl]

lol

[NRYnurse in reply to Darryl]

My husband has had prostate cancer for 24 years. He is 74 years old. He had surgery, radiation, Zytiga and Lynparza over the course of time. A petscan revealed it has metastasized in his bladder, lymph nodes in prostate bed and one rib. Hence, chemotherapy starts January 3. Any recommendations on diet, help with side effects, etc would be helpful. Your support and prayers are appreciated. Blessings to you all!

[NotAlwaysSunshine]

We are having a difficult time getting it approved with private pay Aetna. Jevtana alone so far.

[Leps]

I had my first cabazitaxel infusion a week ago. So far, zero side effects. That said, there was a PSA flare, which apparently occurs in about 15% of patients. My read is that with cabazitaxel there is no standard response as is the case with so many treatment regimens.

[NRYnurse in reply to Leps]

Thank you for your reply. I hope it continues to go well for you - and us!

[Cynthgob]

following you as husband just started adding carbo to jevtana. So far no side effects.

[Newyork6264]

I had to stop after three treatments. Pain was severe as was fatigue.

[NRYnurse in reply to Newyork6264]

Thank you for your reply and I hope you are able to find a helpful treatment without such bad side effects.

[Muffin2019]

Have had 6 treatments, PSA is at 25.7, had CT scan on chest, abdomen and thorax. The liver Mets still there but the largest has shrunk a little, the lymph nodes have decreased in size. There are multiple heterogeneous hypotension liver masses, consistent in appearance with metastatic disease. Not sure what that means but the last scan before starting this treatment said - multiple ill-defined low attenuation lesions were present in the liver with various sizes. These lesions were new and were highly suggestive of metastatic disease. Not sure whether that is an improvement over the last scan or not, anybody want to weigh in on this ? The treatments give me some dry mouth, down for 3 days with fatigue and taste buds are weird for a week or so. Good luck and stay strong.

[NRYnurse in reply to Muffin2019]

Thank you for your response and I wish you well!

[MateoBeach in reply to Muffin2019]

Have to just keep fighting. Invaded and under attack (like Ukraine as metaphor), fight back and not surrender. Sending you strength.

[robert570]

I started Jevtana in May of this year and round 12 is coming January 3rd. My only side effects are fatigue and a weird taste in my mouth for about a week after. All my blood work has been in the normal range since 2014. I had a prosectomy, May 2014. I have been in stage 4 since then. My PSA is currently 1.96 and is going down but has never gone above 4. I have metastatic bone cancer. The back of my neck and the middle of my back were the major problems with bone deterioration. Thankfully the Xgeva has helped and the muscle has grown around the problem and no further action is needed at this time. Started out with radiation in 2015 and was prescribed Abiterone Acetate along with prednisone. This combination worked for 3 years and my PSA fell to .26. Then in the fall of 2017 the oncologist started chemo, taxotere, for 6 rounds, to combat the areas of metastasis concerns. My PSA remained constant until December of 2021, when it started to rise. He then put me on Xtandi, which didn't work. He monitored PSA levels for about 4 months and decided to give me Jevtana for 6 rounds starting in May of this year along with Abiterone and prednisone again. He has kept me on Jevtana, since I'm tolerating it well, and my PSA is slowly declining. Im starting to wear down from being on it, but I usually bounce back after 1 week. Im at a low point right now and my nerves are shot, but I still have the drive and determination to beat this disease. I also have been receiving Lupron Depot every 6 months since the beginning. We are now waiting for the approval of Pluvicto next.