Hello allI had my fourth infusion of this new drug in this clinical trial. The MO and sponsor have stopped premedicating me with steroids and the infusion had been for 1 hour. They have cut the infusion time to 30 minutes. I am still running a low grade fever at times. Where my lesions are located has caused me to have increased pain in those locations. I will be having full body CT scan after the 8th treatment. I felt really rough when I got up this morning but some Tylenol helped with that. Please continue to keep the prayers and good thoughts coming my way.
Thanks
Eddie
Written by
ehoneycutt29
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Thanks my friend, I will keep everyone updated. I pray this works. There is a lot of us in the same boat that could benefit from this. I would be happy if in put me in remission for 7 or 8 years and buy all of us more time. My MO says there will be a cure by 2035. He seemed very confident about that. So this is day 2 after number 4 and I feel pretty good. Just a little fatigue and some mild pain at the lesion sights. Which was to be expected. I still run a low grade fever at night but tyenol takes care of that. The MO stated if this works he will want me to stay on the treatment for a couple of years.
Eddie, I want to thank you for being a subject in this clinical trial. Of course you hope it buys you more time but you're also contributing to finding a cure for this cancer. Without people like you, there wouldn't have been all the advances in treatments. My husband has a PCa recurrence after 2 years remission. He was first diagnosed 5 years ago. There are new treatments that weren't available then or even a year ago.
When you cited your MO's prediction of a cure by 2035, I quickly did the math- my son will be 45 then. Prostate cancer runs in the family. So thank you again for all the sons, grandsons and generations to come who may benefit from men like you who advance science. Mary
good for you , that you jumped in on this trial. I hope you can hang in there for the full course and bring some good news back to the group. I’ll bet there are a lot of guys here strongly rooting for success for you…. I know I am. Looking forward to hearing about how your scan, after your 8th treatment, goes.
hoping it works for you. Thanks for you courage going where no man has gone before. What did you know about the genetics of your tumor before the trial. Did you have to have high mutational burden to get into trial.
Sorry I haven't replied back and sooner. There was nothing unusual with my genetic testing. To qualify for the trial your Mets need to be expressing PSMA. I just took my 5th treatment. I am afraid it may not be working. My psa has risen from like 18 to 41 and I am having some moderate pain at my metastasis. I will be having a bone density and CT scan Tuesday to find out if it is growing or unchanged. If it is not working which my MO says I have a 80/20 chance it is working. If it isn't then I will start Pluvicto. Kinda numb and stumped right now. I really had faith this new drug was going to work.Thanks
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