still in the hospital…..

[Cateydid]

Joe is still abed in the hospital, although they have let him get up briefly. (I would have thought movement would help)

Partner from onc practice stopped by to say he would get two more doses of chemo (his primary ordered 10, not 6 doses). This onc said that, since Joe developed pneumonia while on taxotere, he won’t get all the doses.

He asked Joe what his plan is after chemo (I’m sorry….is Joe supposed to design a treatment plan after chemo?)

I said I have asked for a PSMA. Doc seemed surprised that I had initiated the request 🥴

Doc suggested clinical trials. His primary told him 6 weeks ago that he was running out of options.

I’m trying to get him in to see Eugene Keon at Mayo.

What thoughts have you, oh wise, fellow travelers???

[EdBacon]

Has he had genetic sequencing done to see if there are any treatable mutations?

If the chemotherapy is working and he wants to continue there might be other places you could go to get it. I'm pretty sure if I had a working treatment and nothing else available then my doctor said "well, you might get pneumonia so let's stop" I'd say, "I'm sorry, but what's the risk? I've got cancer killing me, I'll take my chances." That's me though and it's his decision.

If you can't get the PSMA scan and LU-177 there are options outside the US if you have the funds and you both can travel. Several countries are doing it. Many people on this forum have done this so you'd probably be able to get some information here.

There's also Xofigo (for bone mets only) but he won't be able to do LU-177 after that.

And of course as you know, there are clinical trials.

[Cateydid in reply to EdBacon]

Joe did have the genetic testing done (reminds me: I just got another bill for it)

No dice😢

The onc suggested we look for clinical trials, too….

Thank you so much for staying in touch. I just don’t feel so alone with you folks in our corner!!!

[Kaliber]

cateydid .. sounds like you still have a few more irons in the fire …. some forward momentum. A big ehug out to both you and Joe … I’m thinking positive thoughts ( put your names on my transfer of merit board ) for both of you.

❤️❤️❤️

[Cateydid in reply to Kaliber]

Thanks ever so much, Kaliber…..your support matters!!!

[Tall_Allen]

If you're in Minnesota, I suggest you see Emmanuel Antonarakis at U of MN.

Is your husband getting Neulasta every time he has a chemo infusion?

[Cateydid in reply to Tall_Allen]

He does get Neulasta three days after his taxotere, TA.

He never had it with his first 6 doses in 2017, it I guess it’s new since then.

[CAMPSOUPS]

Maybe ask if possibly Cabazitaxel or Jevtana is a chemo option.

Less side effects but will it (Cabazitaxel or Jevtana) be as beneficial in reducing his cancer or is the wrong chemo at this time?

[Cateydid in reply to CAMPSOUPS]

Great question/consideration, Campsoups. Thank you.

[Hidden]

I hope the best for you and Joe! Prayers lifted up.