Is it best to admit defeat from the get go and have less ADT or is that a misassumption?
Better to have testicles removed at o... - Advanced Prostate...
Better to have testicles removed at outset
Written by
Farn
To view profiles and participate in discussions please or .
Read more about...
42 Replies
•
I am at the one year mark since my bilateral orchiectomy. There has been no chemo at this point or any other medications. I feel great with no loss of strength or other side effects. Later this month I will get a bone and cat scan--will update at that point.
To me this makes the most sense of any treatment. At age 64 with an initial PSA of 248 and Gleason scores of 9-10 on all 16 cores, the orchiectomy produced a dramatic drop in PSA almost immediately. If chemo becomes necessary in the future it will remain an option.
Have you got bone mets currently?
No. The spread was to local lymph nodes. At the last test my PSA was at 0.43 and dropping.
I had a CT and bone scan yesterday. The CT showed no new cancer in soft tissues, and both the prostate and metastasized lymph gland had considerably decreased in size. The bone scan showed no lesions and only inflammation normally associated with aging. This was the best result possible. I am so glad I went the orchiectomy route!
That is fantastic news thank you so much for the updateI wish you continued good health
Sounds reasonable. On a funny note, I mentioned that this was an option to a female friend of mine. Her response was "Do every female in the world a favor and have them removed, balls are ugly as hell"
Off ===that was my decision. 2 lupron shots, chemo, and at time of 3rd lupron shot went for orchiectomy and another elective surgery for concurrent recovery. Haven't regretted it for one minute. Some guys want to keep ADT vacation option open, but with a non-nerve sparing prostatectomy and invasion into nerves out of prostate area, I had permanent ED so loss when my jelly beans were removed..
If chopping the balls spells defeat for you ? Then don’t do it .For me,it affirmed my will to live … It did it 4 yrs ago allowing me to drop Lupron . No t has is own set of charms .. either way chemically or surgery . Of course, I felt shutting down the t factory itself was a benefit . I was already chemically castrated . To me it s like the guy with his arm trapped by a Boulder. Trimming the dead wood . Trying to survive! Good luck
Farn• in reply to
Thank you for sharing
Hey brother! I found that the biblical prophet Danial was in fact forced into slavery and they made him a eunich .. this didn’t deter his strong faith in God . He emerged from the lions den unscathed . They removed him and then other were fed to the lions .,and instantly devoured . His friends ( Shadrach ,Meshach, and Abednego withstood the kings oven solely due to their strong faith in their God ,not the kings false idols . No balls doesn’t delete faith or make us less a man in gods eyes. Great chatting with you friend . Hang in there 🙏🏋🏽♂️
Keep your faith and your beliefs strong . This is a muscle sucking macho sucking disease bent on eating us alive . When m pc specialist told me that m pc was feeding on T , I said off with the juevos , he told to wait a yr to be sure . I waited 18 months . I hated the lupron shots . For me it’s the best move . I’ve had friends tell me that they’d rather die than chop the boys . Not me .
Farn• in reply to
You’ve got to do what’s right for the hope of additional life and qol thank you for your comments
Farn wrote --- "You’ve got to do what’s right for the hope of additional life and qol thank you for your comments"
👍👍
MarkBC wrote --- "I had this discussion with my urologist. He advised against it and hasn't performed the operation for several years. His points:
1. The side effects we experience come from a lack of testosterone so there is no difference in side effects from chemical or physical castration.
2. ADT drugs are safe with many years of experience demonstrating that.
3. Orchiectomy is surgery with the potential complications that come from all surgeries - infections, etc.
4. While it is unlikely to happen in the next 10 years, it is possible that science may develop a new treatment that will allow patients to return to normal testosterone levels. An orchiectomy is permanent. ADT injections can be stopped if we ever get to that state.
He convinced me to stay on ADT."
Soon to be celebrating the 7th Anniversary of my Orchiectomy --- I disagree with the *points* listed above.
I am a rare case because I pay for all of my treatment out of pocket. Money was my reason for having bilateral orchiectomy, after two years of ADT . That was two years ago.
Frankly, I did not notice any difference!
By the time I was castrated, I had lost lots muscle mass. Now I concentrate on developing internal strength through Tai Chi and I feel strong even if I look like a “97 pound weakling” outfitted with the skin of a much larger man.
I've had conversations with many men who were hit extremely hard with physical and psychological issues while on ADT.
If you have advanced prostate cancer and no curative path and lifetime adt prescribed then I think orchiectomy is the better pathway rather than extended chemical castration. I dont think voluntarily having your testicles removed is about admitting defeat though. It's about taking control of what you can and making a really ballsy decision (forgive the pun). Maybe the most manly decision of ones life.Regards to all
John
Do you need testicles? I don't want more kids so no reason for them.I still have mine because it doesn't make sense today but, maybe in the future.
IMO - it's ok if a guy is attached to his balls but I'm not of that persuasion 
A few months ago I was contemplating an orchiectomy and my urologist was against it. One of his reasons was that if I ever wanted testosterone again I wouldn't have any. I replied that I would just do TRT (testosterone replacement therapy). Next objection please...
My MO on the other hand agreed 100% with me. She's a woman and the urologist is a man. I wonder if that had anything to do with it - scratching head and raising eyebrow like The Rock.
Vangogh1961• in reply to
I spoke with MO about it, a younger female and she was hesitant, but recommended I speak to a urologist. He said no problem if I want it. Went to my PCP an older woman who said, certainly if you're on life-long ADT, it makes sense. Three people three varying opinions. I'm opting for it, but started a new job and want to wait a few months before taking more time off, but anticipate this fall saying goodbye to the T producing culprits.
It's a relatively simple surgery. I was only off work for 1 1/2 days.
• in reply to
Putting on my cynic's hat I would suggest that urologists do a pretty profitable business dispensing ADT shots or pills.
• in reply to
I would be thinking the same thing. But he's a very nice guy. After our last talk, I told my wife that I wanted to try to emulate his behavior.I started our meeting in a combative mood. He did not react. He simply continued to discuss things calmly and clearly and did not force his view on me. So I ended up becoming calm and actually listened to him. I ended up congratulating him on his professionalism. I was impressed.
In my case, my MO gives the shots and pills. My urologist is only for consultation and he would do business only if I did a surgery (like the orchiectomy).
I have a friend that had them chopped off as soon as he was diagnosed with PCA & to this day he is free of it. My own history was when I asked the urologist about it he showed me his new knife he uses to remove them so to this day I still have the boys tucked away & no urologist.
I had this discussion with my urologist. He advised against it and hasn't performed the operation for several years. His points:
1. The side effects we experience come from a lack of testosterone so there is no difference in side effects from chemical or physical castration.
2. ADT drugs are safe with many years of experience demonstrating that.
3. Orchiectomy is surgery with the potential complications that come from all surgeries - infections, etc.
4. While it is unlikely to happen in the next 10 years, it is possible that science may develop a new treatment that will allow patients to return to normal testosterone levels. An orchiectomy is permanent. ADT injections can be stopped if we ever get to that state.
He convinced me to stay on ADT.
Don’t forget that he makes more money on the injections.
I'm in Canada so the profit motive doesn't really apply. My injections are done at a nursing office.
Ouch. No. And that goes for my dog too.
I chose removal earlier on, PSA 3500 not a typo, 3500, bone Mets. Surgery and 5 targeted radiations to relieve pain and Abiraterone/prednisone for two years, Now PSA .1 as in too low to detect. Low to no side effects and feeling good. Two great years and I’m grateful
I've never seen a good reason to sharpen the blades yet. I'm 3 1/4 years in on Lupron only.
My PSA was 200 at high around diagnosis. My Gleason was 8-9. I had 3-10 bone Mets (at least 7 we're uncertain). 12 of 12 cores 50-80 per cent cancerous.
I've never discussed the issue with my MO, or with my urologist before him.
Farn: My first couple of rounds of Lupron kicked my butt, and I had every intent of getting them chopped off. But, I tolerate the meds much better now, work out, walk and feel pretty damn good most days. Even with testosterone at non-detect levels my wife and I are having a blast in the bedroom. I'm glad now that I waited. When (hopefully never) I finally lose my libido to the disease, then the balls will be history.
Thank you for your response
Farn, I'm 72 and was on Lupron for 7 years. It was driving me crazy, literally. As I started out stage 4, Gleason 4+5, extensive bone mets, I still have my prostate. When I needed PBH treated last year (a "roto-rooter" job) I had them do the deed at the same time.
I am calmer now, T holding at 19, PSA rising slowly. But I am much happier without the Lupron and the "boys" were completely atrophied. My original, diagnosing, urologist had offered it at the beginning but as caregiver for two dying parents with a "grim" outlook, I decided against it. I wish I had had it done back at the beginning so I would not have had all the side effects of Lupron. For me, the worst was a huge emotional turmoil every three months and between the Lupron and the Xtandi I was having almost constant hot flashes (living in Florida at the time didn't help).
BTW, my father was treated with ADT for a few years starting in his late 80s and never recovered his strength or muscle tone after he stopped (he lived to be 98). It was devastating for him. So I don't know how accurate it is to say they will come back if you stop ADT.
Now if my MO and I can just get my PSA under control...
As you can see there are many different points of view on Lupron vs orchiectomy. A personal decision if ever there was one!
However, it’s a fact that both serve the same purpose-testosterone annihilation. Although different in severity per man, the same side effects result from the removal of T, not the method. Any perceived difference between the two is almost always psychological.
I imagine there must be a relief factor for many who do get them removed. A way of moving on, no longer wistful.
In truth we are all losing testosterone as we age, with or without ADT. No need to ‘admit defeat’ though. Plenty of weight bearing and cardiovascular exercise matters far more than how much testosterone we are still holding at 60, 70 years and older. A mix of those 2 types of exercise is the key to having the quality of life we want so much.
I had total T of over 800 when I was younger, and over 700 at 64 when I was diagnosed. Total suppression was admittedly a little tough, but I feel just as good with 300 as with more.
To this end, supplemental T is always an option too, though controversial.
You state with confidence that no T no matter the method has same SE's.I am pretty much in agreement from what has come into my "view " the last couple years since dx.
None the less I still wish I had more definitive information.
Is there any SE with Lupron/Eligard that does not occur with orichtomy ?
I still feel I haven't had the research presented to inform me completely.
"Do every female in the world a favor and have them removed, balls are ugly as hell"
If that's true then why did the women "I knew" like to juggle them?
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 03/05/2022 6:48 PM EST
Not what you're looking for?
You may also like...
How long to get testicles back.
To size after stopping Lupron.
OK J-O-H-N have fun with this!!
Should I have prostate removed
I got to lupron for about 4 months my Gleason score was 9 my PSA was 69s down to 2.75 now from the...
ICYMI: Time to Tan your Testicles, Tucker
Probably b/c of a bit too much wine with dinner, and more likely b/c I wanted to be the first one...
Have you any better ideas?
I have posted before re my progression. 12 years down the line now .Original PSA37 Gl 8. Ext Beam...
Maybe I can Have My Prostate Removed After All
I came across this in my e-mail feed. I have an upcoming appointment with Dr. Kim on 2/6. This can...
MRI better at detecting PC than PSMA Pet
PSA went from undetectable to 0.2 7 years after prostate removed
At the airport, now have WiFi 😊
Which Scan to have.
I have to start worrying
