Gleason 9 and the urologists all suggest surgery. I want to consult with a radiation oncologist or other doctor to see if radiation is a viable option for my treatment. Please help me find such a doctor here in Florida or elsewhere.
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snugrose
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What the doctor describes in this video is interesting and a great option, but I still opted for surgery because I wanted to have radiation available for reoccurrence(s). I understand that there is only a certain amount of radiation that one can take as well as no longer being effective.
Hi there, I've completed my radiation therapy at Dana-Farber/Brigham and Women's Cancer Center Department of Radiation Oncology. The six weeks of treatments were a breeze with minimal side affects.
Would you please be kind enough to tell us your bio. Age? Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?
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The treatment with the best stats is whole pelvic external beam radiation, with a brachytherapy boost to the prostate. There are two kinds of brachytherapy that can be used - "high dose rate (HDR)" or "low dose rate (LDR)" In the hands of an expert practitioner HDR will probably provide fewer side effects. Don't confuse this with non-boost therapy. It also entails at least 12 months of ADT.
In Florida, Matthew Biagioli in Orlando is an expert practitioner of HDR brachytherapy. In Lakewood Ranch, Florida, there is John Sylvester - one of the pioneers of LDR brachytherapy (seeds).
I just read this info about whole pelvic external beam radiation with brachytherapy. I wish that I'd had that information a year ago. My RO put me through IMRT (which was a breeze anyway) after chemo but here I am less than a year later getting abiraterone added because PSA is taking off. I wonder what salvage radiation possibilities exist?
snugrose My DX at age 47 was also Gleason 9, Group 5 with full involvement of the prostate from my biopsy. At UCSF, my surgeon strongly recommended against surgery and Dr. Meng the former Chair concurred. I finished in Dec 2021 with whole pelvic External Beam Radiation + HDR brachytherapy, along with two different hormonal treatments (Zytiga + Prednisone & Lupron) through July 2023. So it's definitely treatment used more broadly for advanced PC w/o bone involvement. Did your MO also recommend a dual hormonal treatment plan?
Agree w Nal. I am going to Moffitt. They use a multi discipline team approach to review your case periodically and agree on best option for you. Plus they have on-site specialists and equipment to provide whatever treatment is needed.
If he is within your reach distance-wise, Dr. Matthew Biagioli with AdventHealth in Orlando is truly excellent. He was my husband's RO in 2019. He consults with selected other radiologists in the state if that's what you need.
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