Thank you for sharing all that you do! I'm trying to learn, but this feels like a science class wayyyy over my paygrade.
My boyfriend had his prostate removed six months before I met him. I don't know a lot about it because he doesn't like to talk about it. In fact, he doesn't seem to want to know a lot about it. Personally, I am a reader and I want to have all the info I can get!
About 18 months after his prostatectomy, his PSA was found high after a routine physical. From all that I've read and gathered, he has recurrent stage four prostate cancer. His physicians have not ever used "stage" when speaking with him, nor have they mentioned Gleason score to him. I do not know his PSA at any time or his Gleason score. I've been to several of his 32 radiation treatments, and he is getting quarterly or bi-annual (I'm not sure on this) hormone shots with some pills for a booster just after the shot. I have the names of the meds if that would help y'all. His next shot and follow-up are in February, and I will attend that also. He seems relieved and grateful that I take an interest, but he still prefers to ignore the details. I do know that he has mets in the lymph nodes near the prostate bed and possibly in his hip. The doc told him his hip "could be arthritis but we will just go ahead and hit it with the radiation".
He finished his 32 radiation treatments just before Christmas, so just three weeks ago. Since that time, he has had ongoing constant pain in the area where the prostate was, plus stabbing pains that seem to happen every few minutes. He has had a low-grade fever this whole time, plus painful urination, sometimes chills and shivering, loss of appetite, night sweats that soak the sheets, and so much fatigue. He thinks it's a UTI, but I'm not so sure of that. His PCP had him do a urine test, which came back negative, but they prescribed anti-biotics anyway because "it sounds like one". His oncologist and assistant, who I thought we liked, sort of blew him off when he called to ask questions about this. Because after a week there has been no improvement, his urologist had him do another urine test today (haven't heard results yet).
My question (the one at the forefront...I have dozens!) is this: Would the radiation cause all of this stuff he is going through? Is there something more cancer-wise or infection happening? I know y'all can't diagnose, but from experience, please share what you went through. I looked into the caregiver message board, but it's not very active. Thank you in advance for all the sharing y'all do!