Life is good

[Petefromstpete]

Wanting to know what others are doing about advanced prostate cancer

[6357axbz]

👍 I agree Nal

[Hidden]

Checking MaleCare every day to see if the cure has been found yet. Rats, not today. Maybe tomorrow.

[Kaliber in reply to Hidden]

Dang …lol yayahahahaya

❤️❤️

[Javelin18 in reply to Hidden]

Thanks for the laugh. This site has become my obsession too.

[dhccpa in reply to Hidden]

Yes, those "game-changing" developments are coming fast. Cures, however, are not in sight.

[Hidden in reply to dhccpa]

I know, really. I met with an MO yesterday. Basically just hormonal stuff is still all there is. Lutetium was a disappointment

[mrscruffy]

Working out, eating right, watching my weight taking my meds and supplements, doing my treatments and never missing an appointment Mostly living my life like I am 30 again with no boundaries and tons of fun.

[LearnAll]

Eating (1) Sulforaphane rich foods (Daikon Radishes, Cauliflower, Mustard Greens, etc)(2) One big pomegranade , Dark red dried resins, Guava, Purple Yam, Sweet potatoes,

(3) 7 Betel leaves with pinch of Saffron, Cardamon and Rose petals. Moringa powder in fruit smoothies. AND the list goes on and on. Last meal at 7 pm...first meal at 10am. weight not allowed to go higher than 150 lbs (BMI less than 24) Animal fat ZERO.

(4) Walking atleast 4 miles each day and resitance exercise with Rubber streching bands.

(5) And praying each morning for 8 to 10 years more...Yes...Life is Good !

[Kaliber in reply to LearnAll]

Good for you brother … rejoice that you can persevere with this course …. Seems to be working very well. Kewl ……

. 😁😁😁

[dhccpa in reply to LearnAll]

I hope to hell you're on the right track, cause your diet sounds like mine. All roots, stems, peels, and leaves.

[LearnAll in reply to dhccpa]

Yes..dhccpa. Roots(sweet potatoes, Yams, potatoes, Ginger, Turmeric etc.)Leaves (many green leafy veggies, betel leaves, moringa leaves, Neem Leaves etc.)

Peels...My wife says I have become a monkey...because now I eat fruits like monkeys do..eating oranges with peel and seeds, Apples with Skin and Seeds, Most fruits I eat raw without discarding skin or seeds. That's how monkeys eat.

My breakfast this morning was a big glass of Starfruit juice made at home from freshly picked starfruits (carambola) from our backyard. Lets become "primitive" in our eating.

[NotAlwaysSunshine]

The best moments in our lives is the 10 minutes a day where we don't think about it. The rest of the day is asking questions, going over possible treatments and fighting back.

[Hidden in reply to NotAlwaysSunshine]

Those are a good ten minutes!😂👏🏼

[Bunkerboy in reply to Hidden]

Indeed👍🏻🤓✌️

[ARIES29]

Just living life as there is no tomorrow but sadly reminded every month when the injection time cometh that there is a tomorrow & it can end any time...

[Doseydoe]

What am I doing about having APCa? I simply followed the advice of my MD, Urologist, Oncologist and then Radio Oncologist. As I became better educated about APCa, I began to negotiate procedures, treatments and medications to the point where, to some extent, I was calling the shots. I asked to have my Ureter stent removed to see if I could live without one - I could and I continue to do so. I am now having intermittent Eligard shots to keep my PSA down (currently 0.02) it seems to work for me. Everyone is different and at the end of the day it's your trainset. To some extent, you get to decide where you lay your tracks. I've pretty much kept my diet the same and try to do what I use to do. But I am not the same man I use to be. APCa has refocused my priorities, and without testosterone, I'm less aggressive and competitive as I use to be. I can't do anything about it and it's better than the alternative. So I'm now learning to accept the new me. I feel I've dodged a bullet as I responded well to the treatments so far. But one day I will not and then I will have to decide whether the juice is worth the squeeze. I currently think quality over quantity is best but it's easy to say that now. So I've got my affairs in order and tidied up our finances. I've stopped working and started our retirement income streams to provide for my wife. That's about it for now, what are you doing? Keep up the fight, cheers 🥂 DD.

[dhccpa in reply to Doseydoe]

How often do you break your hormone shots?

[MateoBeach in reply to Doseydoe]

I like your perspectives, your thoughts and your cool metaphors. Cheers!

[London441]

Living well! Present moment compares favorably to the other 2 alternatives for me.

I’m in a solid remission now, so that compares favorably to being bludgeoned with treatment as I was for 2 years.

Yes it can come back at any time, but I’m not giving up today thinking about it. I was grateful then and am now. My skills as a husband, musician, uncle, friend and teammate are at their peak.

And at the end of the day I scroll through my HealthUnlocked news feed and see what you knuckleheads are up to.

It takes one to know one of course.

[Poowater]

You need to document your journey, and treatment.

[Bodysculpture]

Acceptance and moving forward with optimism You are not alone

We are right here with you

[Muffin2019]

Living with it, enjoying life, feel like 60 but body says 70, trying to keep the weight at 193 but up to 203, more veggies and fruit and using the treadmill weekly. How do you keep your weight down when the predisone or steroids say eat ? One thing about the stomach shelf it does hold food nicely. Happy and persporous new year.

[Doseydoe in reply to Muffin2019]

I used steroids while I was on chemo but only then. I was wondering if you could share your thoughts as to the benefits of on going steroid use, thanks. DD 😎

[Muffin2019 in reply to Doseydoe]

I have used them for the past 5 years due to the medicine I am taking for ADT, the only effect is the weight gain you have to watch. Some form of exercise is important, I try to walk 8000 steps a day, no heavy lifting due to a hernia in the chest. It cuts the inflammation when taking the medications, in fact my one cat is on them for life due to IBD that causes inflammation.

[PeteLG]

Living within means, learning something new daily, doing something for someone else every day, physical labor every other day and moderation in all but love...

[Ramp7]

Lance Armstrong in his book, describes the before cancer person and the after cancer person. It changes everyone in different ways. If you have an advocate fantastic. If not, you have many here that share ideas whether technical or supportive. The rest is up to you.

[leo2634]

Living life as best we can Brother. Never give up Never surrender. Leo

[Carlosbach in reply to leo2634]

Activate the Omega 13 👍

[j-o-h-n]

Wanting to know what others are doing about advanced prostate cancer?

Having sex morning, noon and night.....

*** Click on Play youtube to play the video ***

youtube.com/watch?v=MO00aFu...(Not working as expected?)

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 01/05/2022 6:09 PM EST

[Hidden in reply to j-o-h-n]

Wake up ! You are dreaming and maybe sleep typing too! 😂😂sex ? what’s that? 😳

[j-o-h-n in reply to Hidden]

Dreaming.............Oh, SEX? It's nothing special, it's like I'm having Social Security sex. I get a little each month, but not enough to live on.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 01/08/2022 6:52 PM EST

[Hidden in reply to j-o-h-n]

All that I can say about sex is . 40 yrs was a good roll .

[Carlosbach in reply to j-o-h-n]

I'm with you j-o-h-n.

Best sex of my life since my 20's has been since ADT. Didn't want to let my sex life go without a fight, and we have hit it 29 out of the last 30 days. Just requires some ingenuity and planning. Can't wait until later tonight.

[j-o-h-n in reply to Carlosbach]

Yahoo!!!

*** click on watch on youtube ***

youtube.com/watch?v=yURRmWt...(Not working as expected?)

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 01/13/2022 9:36 PM EST

[JPnSD]

Volunteering. Representing on a Patient Advocate Committee for cancer clinical study reviews and as a member of the SWOG GU Committee, helping to develop and get a free web based Resistance Training Program online for everyone on ADT and volunteering with AARP to get healthcare reform to make sure Rx costs get contained and Medicare can negotiate Rx costs. APC has pissed me off....and when I get pissed....I get motivated. Best to all in 2022.

[Purple-Bike]

Grateful for staying alive and well, doing all I can beating the cancer so far. Thanks to the cancer getting into anti-aging and got rid of my only other health issue. Living a full life.

[Spyder54]

Hi Pete from St Pete, I’m Mike from St Pete.You can see a mans journey by clicking on their photo icon.

I’m age 68, stage 4 metastatic. Inoperable, and incurable. Decided to not take no for an answer and just go along w typical SOC, and take ADT until I die. Several studies out of John Hopkins, Mayo, and Memorial Sloan Kettering showed by throwing everything plus the kitchen sink Men often lived twice as long as SOC. Have turned down by 7 surgeons, 2 Radiologists, and 1 Nano Knife trial, but from that was introduced to Dr Sean McBride at MSK in NYC. He said studies have shown that Image Guided Stereo Tactic Radiation of the main Prostate Gland have shown extension of life.

I now have 3 gold seeds implanted, 2 Body Casts to restrict movement, 10 Tatoo’s (dots) which align with 10 fixed laser beams and am about to do 5 doses of SBRT/SABR of the Prostate and 3 doses of the Vertebral body for a T5 met. Every other day over 10 days.

Not curative. Just trying to extend life. As Dr Patrick Walsf, the famous Hopkins Surgeon said….whenever possible, take the prostate out. She is the Mother Ship and she sends out signals that could become mets down the road.

Best of luck to you and yours,

Mike🍀