A minority opinion for sure, but it comes up a lot because men on ADT or fearing it are so attracted to it.
I’d be a little more persuaded but it seems Morgentaler is the only known ‘expert’ proponent of it. I’ve been around this disease for 3 years now and have heard from a lot of people about this, almost always mentioning his name.
T replacement for early stage, low volume successfully treated with a 5 year track or longer record of no disease I can believe. The problem is this is an advanced Pca site. You’re telling guys exactly what they want to hear, but they are not likely to be the ones that can safely do it.
I would have to see a lot more than this to be convinced of it’s safety for high risk men.
Spot on as they say. Nice summary. And coming from you a guy who despite advanced dx is in a rather comfortable spot I think (kitchen sink approach has for now brought you off ADT and undetectable?).
Yes CAMPSOUPS, thank you kindly! I guess you could say it’s a ‘comfortable’ spot, if you define comfortable as being drug free with significant testosterone return and a undetectable PSA.
I do!
Obviously, a lot of guys go through this disease and its admittedly difficult treatments, and bemoan loss of sexual function, vitality and much more.
Understandable, but unfortunately these losses can often just as easily be ascribed to aging itself!
Not for me to claim, but I do know that growing old gracefully remains an elusive skill for many boomers.
I should know, I still play in a working rock and roll band😀
Yea I guess for some guys their dx is a little to close to active surveillance and they lull themselves into thinking they can treat it however they like.I was hit in the face with high PSA, high met load and scared #$%&less.
I would have drank battery acid if asked to do so. Became clear the way I felt was because I was dying right in front of myself.
R&R band, no way. I guess as most of us are boomers its not unique to be impressed but nonetheless that is really cool. I never got anywhere on guitar but have been able to live vicariously thru my son. He has absolutely excelled. My guitar collects dust. Not practicing is why when I pick it up I can still only play what I picked up when I was more on top of it many, many years ago. (Funk 49 by Joe Walsh anyone ? Ha. Or I'll join you with my 4 or so open chords)
Does you band do well known artists music or are you morphed from influences.
A link to a you tube page if you have one and want to share would be great but no pressure here from me.
Personally, the worry and dread was on the front end. Once I got past that initial shock and self-pity it changed completely. Now it’s nothing but carpe diem!
It’s a neat trick, I wish I knew how I do it. If I did I’d definitely bottle and sell it😀
so, you had cryo focal teatment as your original primary treatment, some time later focal cryo of another lesion area, then a PSA recurrence , and then zapped detected local recurrence with another focal cryo? You also did high risk SOC ADT, via ochiectomy......though lifetime ADT that requires T administration for "recovery" of T.
T extremely high.....other than that, you used focal cryo in hopes of lower SEs than you feared from surgery or radiation, correct? Unconventional, but results good for a 5+5 !!! and good for the double whammy of not only 5+5, but also the very high PSA.......highest risk!!
Did you experience the hoped for lower side effects?
maley2711 wrote --- " so, you had cryo focal teatment as your original primary treatment... "
NO ADT but Orchiectomy instead began treatment then the first cryo was a *hemi-ablation* of the entire right half destroying the 5+5 tumor. After 7 months the PCa in the left half was cryo'd plus the immuno drugs injected in the right half. One month later *T* injections began. Left side recurrence was 3 years after the hemi-cryo and it was treated. Now 3 years later continue with blood testing and scans should numbers indicate.
The side effects were minimal following castration AND cryo.In my case, the addition of *T* does not result in a return of youthfulness men sometime experience when adding *T* following their discontinuation of ADT.
One small step for me, maybe a giant and less stressful leap for others.
I saw similar results from a Dr doing high dose T therapy, his name is Dr Paul H Lange at compassionateoncology.org and he was saying some men do well with the treatment and again not all cos there is no one size fits all, but there are other Drs doing this and showing results
I was diagnosed in 2018 at Mayo. RP in 12/2018. Both of my Mayo docs "guaranteed" me that my PSA would skyrocket and I would be in pain within 3 months. G4+5, N1, M0, T3b/c.
I did estrogen patch ADT for 6 months. Then switched to 400 mg/week of testosterone cypionate. T was 1800-4000. I did that for two years but two weeks ago my PSA went from 0.039 to 0.170. So now I'm doing a BAT-like program. I'm using SARMs to keep the libido, muscle, bone, and QoL, then 400 mg/week of testosterone. And 50 mg/day of Casodex until my T goes below 50 (should be 10 more days). We'll see where this takes me.
By the way, my Mayo urologist was "shocked" at the 4-month mark because my PSA was zero and I wasn't in pain. A little over a year ago I told my new MO about the cypionate. She repeatedly told me to just do what you're doing because it's working. For months she didn't even want to see me because there was nothing to do. I'm seeing her next week for SOC backup plan discussion.
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