Pet scans: For those of you with bone... - Advanced Prostate...

Advanced Prostate Cancer

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Pet scans

Madbeach profile image
11 Replies

For those of you with bone Mets, how often does your oncologist order pet scans? Does your oncologist recommended this only if PSA is on the rise during ur ADT treatments?

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Madbeach profile image
Madbeach
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11 Replies
Tall_Allen profile image
Tall_Allen

Yes, only used to see if treatment effectiveness is waning. PSA alone is not enough.

GoBucks profile image
GoBucks in reply to Tall_Allen

I have a PSA <0.01. No real symptoms from my bone mets. Next month will be 3 years since last PET scan. Should patients like me be getting "regular" scans?

Tall_Allen profile image
Tall_Allen in reply to GoBucks

Nothing to test.

dhccpa profile image
dhccpa

About once a year. I just had one, and I have an MRI of the prostate/pelvis tomorrow. I'm stable at 0.6 after three years on Lupron.

garyi profile image
garyi

I'm getting a NM CT/PET scan next week to check for Sarcoma tumor growth. Second time in three months. Maybe it can be a PCa 'twofer" 😜 scan.

MarkBC profile image
MarkBC

My cancer is stable so my oncologist says we only need to scan once per year to confirm the stability. While they are low risk, scans can still cause some damage to healthy tissue so we shouldn't do more than necessary. We will scan earlier if my PSA starts rising significantly. We are only using conventional CT and bone scans because the additional details from a PET scan wouldn't change my treatment plan at this point.

Walkingwell profile image
Walkingwell

I have scans if there's a significant PSA rise, or in August when there was a small PSA rise but big rise in ALP and rise in CRP. Found increase in number of bone mets from scinti scan. This week, ALP and CRP close to normal, but PSA up again, so CT ordered for October.

CAMPSOUPS profile image
CAMPSOUPS in reply to Walkingwell

Off subject but I like your Avatar ha.

Walkingwell profile image
Walkingwell in reply to CAMPSOUPS

Thanks, CAMPSOUPS, yours is good, too - one-eyed king?

Walking well, in the other direction
CAMPSOUPS profile image
CAMPSOUPS in reply to Walkingwell

Thanks and thanks for the full rendition of your "horse" I might print it and hang it.One eyed yes. King..hmmm. I might have to replace it if it comes across like that ha.

When we moved about a year ago some of my old artwork showed up in the move "boxes".

That was a self portrait although I didn't realize it was a self portrait until years later.

I have one more self portrait and same thing happened when I discovered it stashed away many years later " that's not some dude I replicated, that's me"! ha.

self portrait retrospect altered state
Walkingwell profile image
Walkingwell in reply to CAMPSOUPS

King or not I like your portrait - colours and shapes. And glad you made it yourself. Very glad you like my picture, thanks. It's painting and collage. I draw something most days.

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