Dead or Alive: Have been taking Xtandi... - Advanced Prostate...

Advanced Prostate Cancer

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Dead or Alive

Fastingguy profile image

Have been taking Xtandi and Lupron for nearly four years following chemotherapy. Medications have effects. Some are desirable, some are undesirable. My PSA is down from a high of 59.9 to around an average of about 5. I am still alive. The 6-month dose of Lupron kicks my butt for several weeks after the jab. When I do the calculus on gain/pain I am satisfied that it is worth it. I like being alive.

37 Replies

Life is Good. I chose an orchiectomy over "Lupron for life" as my personal choice.

bean1008 profile image
bean1008 in reply to Shooter1

I’m leaning that way as well if it ends up that I have to take Lupron and abiraterone for life.

RayF profile image
RayF in reply to bean1008

Im leaning that way too, I'll never be off Lupron. If a miracle happens. there is always injectable T.

Shooter1 wrote --- "Life is Good. I chose an orchiectomy over "Lupron for life" as my personal choice."

After my biopsy and scan results were finally obtained the urologist told me I needed to start immediately with ADT and as he began explaining the *pro's and con's* I stopped him immediately AND SAID I WANT A BILATERAL ORCHIECTOMY. Following a couple of *but-but,* the appointment was made for the next day. Soprano rehearsals began 26 hours later.

owwww Owwww OWWWW !!!😵‍💫😵‍💫😵‍💫

😂😂😂😂

My mo made me wait for 18 months. To be sure? He said. To be sure of what? I thought. After 18 months of luppey I was more than ready to chop chop.

I have had from my first bit of research regarding ADT and the possible side effects the utmost admiration for all who have chosen to follow that path. I've always felt that my guillotining of the boys was the EASY WAY OUT. They're gone and so there's no TUG OF WAR of testicles hanging around wanting to do their job but chemicals telling them not to work or chemicals telling the body to fuggedaboutit r.e. what's being made.

I feel the same .. 🏋🏽‍♂️😳

That was my choice also. I had mine done in April 2021 and have put on about 5 lbs. Diet and exercise the same. I have to change something.

Lulu700 profile image
Lulu700 in reply to ctflatlander

No t can drive lethargy . I fight it constantly . I just want a ride in the back of that pick -up! 😎

ctflatlander profile image
ctflatlander in reply to Lulu700

I have great energy since I had it done. I need to be more vigilant on my food intake volume.

This is a hobby that keeps me going.

Hobby? That looks like full fledged company work. lol.

RayF profile image
RayF in reply to ctflatlander

Is that a Wood Mizer? I follow a guy on YouTube who uses one.

ctflatlander profile image
ctflatlander in reply to RayF

Yes, its a woodmizer LT15. Bought it in 2005 and it will do a log 27"diax 17 1/2 ft long. I've done logs up to 24 ft long but its a hassle. Love it.

After my ORCHIE I managed to keep the weight down by doing the best I could continuing "fast bicycling and speed walking." Not only did the extra effort make me feel good about myself it BURNT CALLORIES!!! so I could eat like I used too.👍👍

My gym reopened allowed to use equipment 2 days a week but have to wear a mask. Hard to breath when I get the HR up. I E bike here in the mountains, but not consecutive days. My goal of 1000 miles this year is well short, now at 470 miles. I eat a healthy diet but it's volumn thats killing me. Having family over tonight celebrating 54 married years. Will make an exception on that diet. Bob

FANTASTIC and Happy A. I'm having a glass of "PACIFIC REDWOOD ORGANIC RED" to toast y'all. 👍👍

I had a glass of Pa. Mountain Springs Latrobe "Rolling Rock" Thanks for the toast and enjoy. We are working on 55.

I wasn't aware that 6-months doses of Lupron existed. Thought it was either 3 or 4. Mine is every 4 months. Yes side effects suck but I still enjoy being alive. Best wishes to you.

monte1111 profile image
monte1111 in reply to Mascouche

My Lupron is every 6 months for the last 4 and a half years. Seems to be working for me but .... is a Lupron shot every 3 months more effective? Why do they call them side effects? Should be expected effects.

Mascouche profile image
Mascouche in reply to monte1111

The expected effect is a lowering of testosterone. The side effects are the undesirable shit that may potentially hit us. If the adt was an army's bomb, the undesirable shit would be collateral damage.

Some have reported lesser side effects in the first few weeks from a 3 month shot vs a 6 month shot. Something you might ask your doctor about.

j-o-h-n profile image
j-o-h-n in reply to john_in_pa

Greetings john_in_pa

Please tell us your bio. Age? Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?

All info is voluntary, but it helps us help you and helps us too. When you respond, copy and paste it in your home page for your use and for other members’ reference.

THANK YOU AND KEEP POSTING!!!

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 09/14/2021 7:59 PM DST

RayF profile image
RayF in reply to john_in_pa

I've had 4 months and 6 month jabs, both equally miserable for about 3 weeks.

I’m picking up some Bon Jovi vibes here. Keep going fastingguy!

Barry Gibbs ? “ stay’ in alive “ . 😂😂😂

Fastingguy profile image
Fastingguy in reply to Kaliber

Keeps me spinning like a record

Kaliber profile image
Kaliber in reply to Fastingguy

Yayahahahaya Pete always had that wicked finger in a light socket look.

😂😂😂😂. 🎼😵‍💫

Yes, agree w John in PA. Makes sense. 3 mos inject is less volume all at once than 6 months. My side effects are all there, but spread evenly over the 3 mos, not heavy upfront. Best of luck,

Mike

I prefer the 3 monther...... Get to see my lovely nurse more often that way...(stick it to me baby)...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 09/14/2021 8:07 PM DST

Newyork6264 profile image
Newyork6264 in reply to j-o-h-n

Glad to see your back. Missed the humor. My nurse is old enough to be my mother but she’s nice.

Nobody is old enough to be my mother! If I find myself attracted to a nurse I start worrying that my testosterone is too high. LOL, but true.

Kaliber profile image
Kaliber in reply to Fastingguy

Omg …. Rotflol ….😂😂😂

j-o-h-n profile image
j-o-h-n in reply to Newyork6264

Thank you..... could be one I dated................who always wanted to give me DREs???

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 09/15/2021 7:36 PM DST

Keep up the fight warrior 🙏🙏🙏

Keep up the good fight.

You are certainly wanted alive.

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