the following words are from a chat with another member here from 2 years ago. Wow...so much has happened...nothing really good...but my prediction of doing Lu 177 was spot on. I had (at this point) viewed it as a miracle drug coming up. Now that I've done it...and had (so far) horrible results and horrible side effects...this post seem so amazing. My oncologist(back home) says she has had two clients who (like me) did the Lu 177 and both did badly (had flare ups) with first treatment. They did the second treatment.....and the results are. "they both died shortly after the second treatment". After getting advice from HER and also from the doctor here to do the second treatment.....well....you know what I'm thinking (LOL). Affairs are already in order...but I do not want to die in OMAHA ! ! ! yipes... Over the next few days waiting for a sign....(and hoping a UFO lands and announces a miracle cure for prostate cancer)
Life is Beautiful.
p.s. still feeling and looking great...hard to believe...but thankful every day! ! !
****July 2/19****I did do Provenge (fairly new) over the past summer. If I don't get a "miracle" remission on just Lupron and Xtandi (and BIRM and melatonin and mushrooms and lighting incense and chanting)....then I am probably seeing the Lu-PSMA kind of thing in my near future. I asked my oncologist for gene mapping a couple of visits ago. She said they could use my biopsied material...I'm waiting to hear if I have any groovy mutations. This Lupron crap (castration) has to be the worse of the things we do...because we know it will NOT end...short of a miracle. Hence I keep plugging along and hoping for a miracle ! I think you were 55 on diagnosis...I was 57 (now 62) ....but I didn't get the added fun of STAGE 4 aggressive and castrate resistant until I almost 60! What a present! I don't think of this as a battle, but rather a "journey"...(mostly up the mountain)...with ever turn a new danger, a new fear...but a NEW VISTA (kind of like the marked "vistas" on scenic highways. A place to go Wow...and then move on.
**I hear more about herbs, diets, etc and combinations of old drugs than I do about new actual drugs...but there are a few in the pipeline...if we can hang on as we scale the mountain...****