we've been in Omaha now for almost two months. I had my first Lu-177 in the end of April....fast approaching the time for my second infusion on June 22nd. HOWEVER, my platelets, my hemoglobin, WBC,RBC, and now...importantly my ANC have all decided to do the opposite of my PSA...they're dropping ! ! ! Today my ANC is down to 0.8
,,,, If it does NOT improve very quickly that alone will probably have me kicked out of the trial. I worked so hard...and jumped through so many hoops to get into this trial...to get here to Omaha...I made it! Now I could be really depressed about what looks like will be happening...BUT instead I am choosing to realize I did ALL I could do. I even ate grilled beef liver (hate it) in hopes of it raising my hemoglobin or raising anything. I did all I could do...I "fought the good fight"....(and don't take this as me giving up) but I am relaxed now. I realize that there is nothing I can do to fix things it's in the hands of "fate" "God"....Destiny. I am going home to Ft. Lauderdale on Thursday to get 1000 kisses from my puppy Sparky and to coordinate some loose ends there and then heading right back to Omaha...in hopes of still being in the trial and getting at least ONE MORE infusion.
If I am released .....we'll be packing up the car about 4 months earlier than we had planned and heading back down south. I am on Antibiotics to prevent me (my counts are so low) from getting infections....I'm wearing my mask(again) everywhere...and I have been told not to cut myself...bang myself...bump myself....I could have internal bleeding. (My platelets are down to 16,000) Still enjoying every day...*pic is of me out at a beautiful lake near where we are staying called Lake Zorinsky. It was a gorgeous (not too hot or humid) Omaha day!
**that's my story and I'm sticking with it.