Rare form of prostrate cancer -need help!

[Lisa1414]

Has anyone been diagnosed with this rare type of prostrate cancer: small cell carcinoma of the prostrate which has spread to the pancreas and lung? We have little answers and dont know where to go Prostrate and pancreas both show small cell carcinoma. Unable to go to the bathroom.

[LearnAll]

Its true that small cell prostate cancer is an aggressive variant. But..without full details..such as biopsy report, PSA, ALP, Scan results, type of bone corrosion and other test results..it is very hard for anyone to provide useful guidance. About 2 to 3 % of all prostate cancer come under small cell category. Not so rare.

[Tall_Allen]

It is rare, but a few men on this site have been diagnosed with it. See this recent post, for example:

healthunlocked.com/advanced...

You may find some answers in this article:

prostatecancer.news/2016/12...

Because of the pancreas involvement, you might want to explore somatostatin or Lutathera if IHC of a tumor shows that somatostatin is expressed.

I recommend that you go for a second opinion from Misha Beltran at Dana Farber. She is as close to a world expert in it as there is.

[GP24]

This is also called neuroendocrine tumor. Standard treatment is Chemo with docetaxel and carboplatin.

However, I would try to apply 177Lu-DOTATATE therapy: pubmed.ncbi.nlm.nih.gov/315... This therapy is approved by the FDA for some neuroendocrine tumors: ascopost.com/News/58482

[Chugach]

I had a small cell component to my PC - threw the kitchen sink at it: ADT, pelvic radiation (35 days) and chemo at the same time (etoposide and cisplatin). It knocked me down but not out, that was five years ago. The small cell component was gone after that initial round

[kayak212]

A friend of mine has it and just completed an intensive program of chemo, radiation, scans etc and is now in remission after about 9 months since diagnosis. He used his local MO and RO for the treatments but Tall_Allen on this website recommended to me Dr.Misha Beltran in Boston as a specialist with extensive experience in small cell carcinoma, so my friend contacted her and she took over the management of his case remotely from Boston and he has been delirious with joy about the results so far. He is 57 years old. I recommend you call Dr. Beltran's office at the Dana Farber Cancer Inst in Boston and discuss your situation with her. Good luck!

[j-o-h-n]

Greeting Lisa1414, You should give us more info so we can answer your inquiry...

Please tell us his bio. Age? Location? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)? Thank You!!!

All info is voluntary, but it helps us help him and helps us too. If you do respond, copy and paste it in his/your home page for his/your use and for other members’ reference.

Note: ask your question again on a new post and with more detail (as shown above).

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 12/05/2020 10:42 PM EST

[Nous]

hi Lisa1414 ... consider checking-out envita.com ... they specialize in such situations ... best wishes ,,, Nous