IMRT delay? Significant?: I am... - Advanced Prostate...

Advanced Prostate Cancer

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IMRT delay? Significant?

JPnSD profile image
26 Replies

I am presently in my 2nd month of ADT (Firmagon), and as a result after 1st month my PSA went from .16 to <.01 (undetectable) and T from 128 to 19. Due to the spike in Covid...and some insurance issues....instead of starting Dec. 21 (just before the holidays)....we are looking at moving it to mid to late January 2021. Anyone see any reason not to move it back? T2N1, Gleason 9, post RP (8/2019) and Decipher .78. No other sign of metastatic activity as yet (Auximin PET). We started ADT to be aggressive before hitting .2 PSA.

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JPnSD
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26 Replies
Magnus1964 profile image
Magnus1964

Since you can get firmagon almost anywhere I see no reason not to move unless your moving to the wilderness.

JPnSD profile image
JPnSD in reply to Magnus1964

I'm not moving :)

noirhole profile image
noirhole

If you have met your insurance catastrophic limit and copays you may want to start in December since your treatments will be covered 100 percent by insurance. Otherwise see no reason not to wait.

tango65 profile image
tango65

I believe if you PSA is undetectable you could wait until the end of January. I did something similar in 2005. I was started in ADT when the PSA was 0.2. IMRT was started a few months later after I consulted in a couple of places.

Tall_Allen profile image
Tall_Allen

Sounds good. You can be on ADT almost indefinitely before beginning RT.

JPnSD profile image
JPnSD

Thanks all. Looks like a happier holiday then :). Best to all for the holidays. I look forward to a calmer 2021!

Jmr11820 profile image
Jmr11820

How are you feeling and dealing with your treatment? Did your doctors give DECIPHER much consideration in your treatment plan?

JPnSD profile image
JPnSD in reply to Jmr11820

Firmagon is a bitch right after the injection (pain for 3 days)....and the hot flashes have been fast and furious. Getting enough sleep is a challenge...and my blood pressure is running a bit high....something I have never had to deal with before. A bit lethargic....so a few pounds added as not "into" my usual work out routine. Getting a fit bit device to try to motivate activity and monitor bp a bit more (also bought a cuff to check it).

Ahk1 profile image
Ahk1 in reply to JPnSD

I have the exact same side effects. I started on 11/10/2020. Have you tried changing firmogon to Lupron? They offered me to take the lupron shot for 6 months two days ago when my second firmogon injection was due but I got nervous and said no, not to rock the boat. Now, I am laying in bed with the swollen from the injection site. Are you going to stick to firmogon or change it to something else?

JPnSD profile image
JPnSD in reply to Ahk1

Sticking with Firmagon for now...until after the SRT. I will know more when I get my next PSA and T reading Friday before my next injection. Doesn't make sense to change anything until after RT is done.

I am hoping the pain and swelling from injections decrease a bit each time.

j-o-h-n profile image
j-o-h-n

Get more than "a bit".......

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 7:40 PM EST

JPnSD profile image
JPnSD in reply to j-o-h-n

Sorry...what?

j-o-h-n profile image
j-o-h-n in reply to JPnSD

Getting a fit bit ....Get more than "a bit".......

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 8:14 PM EST

SPEEDYX profile image
SPEEDYX in reply to j-o-h-n

Us cool guys use Apple watch

j-o-h-n profile image
j-o-h-n in reply to SPEEDYX

Yep and we're doing time ever since Adam wore one.......

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 10:21 PM EST

SPEEDYX profile image
SPEEDYX in reply to j-o-h-n

Amen!!😂

j-o-h-n profile image
j-o-h-n in reply to SPEEDYX

Aperson!!! <===<<< P. C.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 10:25 PM EST

SPEEDYX profile image
SPEEDYX in reply to j-o-h-n

Not there yet until official

j-o-h-n profile image
j-o-h-n in reply to SPEEDYX

Well people hole covers instead of man hole covers are........

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 10:38 PM EST

j-o-h-n profile image
j-o-h-n in reply to j-o-h-n

And heroes are instead of heroines..... (and now they say hero can be used for both male and female, but heroine can only be used for females).....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 10:42 PM EST

SPEEDYX profile image
SPEEDYX in reply to j-o-h-n

I hear that heroin Is legal in Oregone

j-o-h-n profile image
j-o-h-n in reply to j-o-h-n

Time to watch boxing if it isn't over yet (my favorite sport)Good Night....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 10:56 PM EST

SPEEDYX profile image
SPEEDYX in reply to j-o-h-n

Nite Nite

j-o-h-n profile image
j-o-h-n in reply to j-o-h-n

so is rioting.........In OreFARgone

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/21/2020 10:38 PM EST

Fightinghard profile image
Fightinghard

IMHO. With the very low PSA achieved by the ADT, you should be ok to delay the IMRT for awhile. Personally, I would get the Covid vaccine then schedule the IMRT asap

JPnSD profile image
JPnSD

Good point.

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