3 to 6months to live! I don’t accept... - Advanced Prostate...

Advanced Prostate Cancer

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3 to 6months to live! I don’t accept this.

savingdaddy profile image
37 Replies

How is that possible?! I wasn’t expecting that at my dad’s appointment today. This was supposed to be his 5th treatment with Jevtana but one of his kidney tubes is engulfed in a tumor which is preventing it from emptying urine. He has bone Mets all over but you wouldn t know it by looking at him. He is 77 and a fighter. Walks just fine but he is fatigued....MO says he needs to drain kidney via needle through back and empty into a bag for 2-4 weeks to see if his kidney function Is better and maybe a chance with 3 rd type of chemo that has 20-30% chance of helping him. He had 10 rounds of docytaxel last year and 4 rounds of Jevtana this year...I am DEVASTATED! My Daddy is dying?! There has to be more. Gene mapping was done. We did everything! No missed appointments. I just don’t understand. I want to do more for my Dad. I am not giving up and he isnt either. Please friends....give me clarity, advice, anything...Kimberly

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savingdaddy
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37 Replies
Daddyishealing profile image
Daddyishealing

I am sending love bc I don't have advice. I lost my mom to lung cancer in four months . My dad has been fighting advanced pca four years. Btw your dad looks so adorable. Treasure every moment and attitude matters bc I saw the difference btwn my mom and dad. My dad's optimism and spirit and will and acceptance is why I have him though things are taking a bad turn I just posted on.

I am going to pray for you. I so wish I had advice or something more, but we are in this together, us daughters so please reach out whenever you wish xo

I love your dad's smiling eyes! His spirit shines!

LearnAll profile image
LearnAll

Don't know what to say about this sad news to a loving daughter. All I can say is that we humans have our limitations...We have no choice but to honor Almighty God's Will. Prayers.

noirhole profile image
noirhole

I failed Jevtana after 3 infusions. Lymph nodes blocked both ureters. Putting me in renal failure and spending a week in the hospital as sick as I have ever been. I now have tubes draining both kidneys. We are rechallengeing Zytiga with dexmethizone with a 50 percent chance to shrink the lymph nodes then hit with radiation so the tubes can be removed. We shall see. I am 60 and treatments have included LU-177. Good luck to you.

savingdaddy profile image
savingdaddy in reply tonoirhole

How hard is it with the tubes? Can you empty the bag yourself or do you have help?

noirhole profile image
noirhole in reply tosavingdaddy

Luckily my daughter is a nurse so she and my wife change the dressings which I can not reach. The bags are easy to drain. The worst part is the diverter valve which can stick into your back and be uncomfortable when sleeping or sitting. A gauze pad and tape will fix that. Tubes need irrigated daily with saline. Not what I would have choosen but still alive and no dialysis. We modified some underwear with pockets to hold bags for outings works great. Good Luck.

Doseydoe profile image
Doseydoe in reply tonoirhole

I salute you brother, you must be made of tough stuff, 😎DD.

savingdaddy profile image
savingdaddy in reply tonoirhole

Once you got the nephrostomy, how long did it take your kidneys to improve before you started another treatment?? My dad has been told that until his kidney function and hemoglobin improve, he can’t go forward with treatment.

noirhole profile image
noirhole in reply tosavingdaddy

My kidneys rebounded very quickly. I am now rechallenging Zytiga to see if I can get my lymph nodes to shrink and then hit them with radiation. Low hemoglobin is a side effect of chemo you can always get a transfusion. Good luck.

garyi profile image
garyi

AS you said, don't give up, and don't let you father lose faith either. While we are all dying, it's God, not doctors, who decides when. Praying for both of you.

Magnus1964 profile image
Magnus1964

Having a loving daughter is the greatest gift. Prayers.

Kaliber profile image
Kaliber in reply toMagnus1964

Well said 👍👍👍🌸🌻❤️🌼🌞

SPEEDYX profile image
SPEEDYX

Fight on....and pray for specific needs that he has....I have see miracles thru my life....his will be done!!!

Kaliber profile image
Kaliber

Kimberly , you are such a good daughter , if my daughter was still with us, I would have wished she was just like you.

No one can say exactly when the end will come, and humans can be surprisingly resilient. I was asked to enter hospice with a few weeks to two months to live ... and that was 23 months ago. I’m still around .... you just can never tell. There are many similar cases here on the group.

There is an old saying that I like that says “ please ( insert your religion here ) grant me : the courage to change the things that I can change , the serenity to accept the things that I cannot change, and the insight to know one from the other. “ Your father looks great and you didn’t say he was in hospice yet ... seems like there could be quite a bit of time remaining.

Hang in there girl ... give your father those hugs and kisses he needs right now ... that’s a lot of support that he will appreciate very much. It will do him worlds of good.

Best wishes for both your father and for you Kimberly 🌼🌻🌸🌈🦋❤️

savingdaddy profile image
savingdaddy in reply toKaliber

Thank you so much for those words❤️ Gives me hope❤️

Kaliber profile image
Kaliber in reply tosavingdaddy

💪💪💪👍

Collarpurple profile image
Collarpurple in reply toKaliber

You always say the right thing with ❤️

Kaliber profile image
Kaliber in reply toCollarpurple

Tharze a lot of people in despair hanging around these parts sometimes... it tugs at your heart strings. Croakers understand despair. Maybe now and then you can just put your arm around someone and try to lift them up a little. Give them a little hug , so to speak, and point out the possibilities that are obscured by all the grief sometimes. You can nearly always find some half full in a half empty glass.

Seems like you are always a positive influence here collarpurple .. Taking time to stop and say something nice yourself. Thanks

Just say’in. ❤️❤️❤️

Tall_Allen profile image
Tall_Allen

My heart goes out to you. I've been where you are now with both parents, and know all to well that sinking feeling, like someone has thrown you down a deep hole. Ureteral stents sometimes help maintain kidney function.

Oh, I am so sorry. It is so difficult. My dad is struggling with prostate cancer too and I've been doing so much research for him. We are desperate too.

He just completed a five day water fast and has cut out dairy and moved to a mostly raw food vegan diet.

My research has continually pointed me to a few well-researched supplements and methods specifically for prostate, and those include:

Turmeric/Curcumin

Resveratrol

Black seed oil or seed powder

Low choline diet

Vegan diet

No dairy

Dandelion root

Barley grass

Modified citrus pectin

Berberine

Grape seed and skin

Pumpkin seeds

Quercetin

Lycopene

Broccoli treatment (boiled broccoli floret and stalk juice 2x a day)

Apigenin

Milk thistle

CoQ10

Astragalus

Green tea

Beta Glucans

Papaya leaf, seeds (black), and fruit

Red clover

Raw food diet

Broccoli sprouts

Medicinal Mushrooms

Please do research on these. I have found that there is very promising research on these therapies, and if you used in conjunction with each other and others, there is a lot of hope. If you would like any of the links to the studies and reviews, please let me know. I would be more than happy to share them.

Here's one for choline intake and risk of lethal prostate cancer: ncbi.nlm.nih.gov/pmc/articl...

Sending lots of love and healing your dad's way.

savingdaddy profile image
savingdaddy in reply to

Thank you❤️

Kevinski65 profile image
Kevinski65 in reply to

I do about 5 of these at a time. Along with lupron and Xtandi. 8 years out. Last PSA

.04.

JC531 profile image
JC531

Hi Kimberly- my dad is also fighting this deadly killer for the past 6 years and now has liver metastasis. You mentioned your dad has done the gene mapping, does he have the BRCA and CHEK 2 gene mutation? If so, he might be able to Lynparza- my dad just started taking it. Stay strong!

savingdaddy profile image
savingdaddy

We did the 360 Guardiant and 1 mutation was found for colon cancer. That’s all I was told. I dont know what to do.

Thank you!

scarlino profile image
scarlino

There might be some clinical trials he could qualify for. Stay strong and pray for direction. Love on him. He is blessed to have you in his corner!

CalBear74 profile image
CalBear74

Kimberly,

Tova has offered many good natural supplements for you to research; however, it must seem overwhelming. I would suggest one natural supplement that has been under intense research for more than 25 years. Dr. AKM Shamsuddin at the University of Maryland is responsible for much of the work on IP6, which I have been taking since 2015. See his book on Amazon. Also, see my previous posts. Private message me for dosage instructions. Dr Rajesh Agarwal of the University of Colorado is another outstanding contributor to the IP6 research on prostate cancer.

j-o-h-n profile image
j-o-h-n

Stay strong Kimberly. As strong as you Father looks. As far as anyone predicting how long someone will live is a lot of hockey puck.....Kisses and hugs help... prayers too. I will say a prayer for you Dad and address him in my prayer as sweet Kimberly's Dad...Bless you all...

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 09/04/2020 6:27 PM DST

savingdaddy profile image
savingdaddy

Thank you sweet John ❤️

dvcarola2 profile image
dvcarola2

Im sorry to hear this but your dad is lucky to have a loving, supportive daughter in you. I hope and pray that your dad is not in pain. Stay strong and spend the most of each day with him. Sending you love and prayers Kimberly 🙏🙏🙏

Daddyishealing profile image
Daddyishealing

I am thinking of you both just want you to know I stopped to pray for you both . Hugs and love, Erica

savingdaddy profile image
savingdaddy

Thank you so much!! It means more than you know <3

Kimberly

Doseydoe profile image
Doseydoe

Kimberly, I went through the procedure where they punched a hole in my back and into the kidney to relive the pressure caused by a tumor in my bladder which closed off the ureter. I was preparing to live with a bag, however, the urologist was able to insert a urteral antegrade stent instead. I pray🙏 that your Father may be able to have a similar outcome. Fingers crossed 🤞, 😎 DD.

Brackenridge profile image
Brackenridge

You’re in my heart Kimberly.

gcman profile image
gcman

Reach out to Dr. Beltran at Dana Farber/Boston.

savingdaddy profile image
savingdaddy in reply togcman

Thank you. I have sent her an email w/recs. I hope she responds.

Collarpurple profile image
Collarpurple

To love like you love your Dad, is what every

Person hopes for. You both already have won

🙏❤️

paige20180 profile image
paige20180

We are currently in New Delhi India for Lu177 treatment. We are also meeting with APAC Biotech which uses vaccines to turn around the disease. Could you seek better medical care abroad? Our experience is that SOC is a bit behind the rest of the planet. Best wishes. I totally understand how you feel. Much love coming your way.

paige20180 profile image
paige20180

If you are interested, Dr. Sen at Fortis Memorial Research Institute and her staff have been incredible. It's a bit rustic but the costs for treatment are very low compared to Germany and we have been treated like royalty. I love the Indian people. Hotels are very inexpensive. I hope some of this information helps.

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