Lupron

[Rockslinger]

My husband is on a six month shot of Lupron. He is having issues with energy. He has the shot in February. Is the shot a time release he has low energy back aches feeling drained. Other day not so much. Has anyone took sublingual B12.

[6357axbz]

I take sublingual b12 for pernicious anemia. Not sure it helped with post lupron energy but I doubt it. I do serious exercise nearly daily and, like many here, think that mitigated any energy issues.

[Rockslinger in reply to 6357axbz]

He does walk every day for exercise how about sleeping goes to sleep but wakes up often

[6357axbz in reply to Rockslinger]

Yeah, hot flashes and having to pee still has me up but I’ve adjusted to it. If he’s peeing often he might consider taking tamsulosin.

[Rockslinger in reply to 6357axbz]

He does take the tamsulosin dr said he can skip a day or two on it thanks

[6357axbz in reply to Rockslinger]

It appears he has a curable, stage 3 PCa, not an non-curable Advanced PCa. You may find more assistance on one of the other PCa blogs in the MaleCare group.

[Rockslinger in reply to 6357axbz]

Thanks

[Rockslinger]

Thanks I have taken lemon balm also to calm the mind just wasn’t sure what he can take with the Lupron.

[Hidden]

I had one 6 month shot because my long distance dr. Wanted my next visit 6 months later. I went to sleep for 3 days in my chair. 3 month is bad enough.

[Tall_Allen]

Yes, the shot is time-released. He should increase his exercise level - both weight-bearing and cardiovascular exercise. Unless he is a vegetarian, he probably does not need B-12, unless his doctor prescribed it

[London441 in reply to Tall_Allen]

This

[Hidden]

It was my last one as we stopped at 18 months. Waiting for psa to move and at this time I just missed my second month blood draw since stopping. Not worth the chance going to the lab. Covid is worse than pc at this time.

[Hidden in reply to Hidden]

🤙🏽👏🏼👏🏼

[EdBar]

My MO, Dr. Sartor at Tulane in NOLA advised me to avoid taking vitamin B12, he commented that it feeds prostate cancer.

Ed

[pilot52]

Exercise , Exercise and more Exercise.....I gave up my US Citizenship and moved to Pelotonia. I have been on Lupron for5 years add Xtandi for 15 months ....I feel great....started with 12 cores Gleason 9, RP, and 36 hits of Proton.....PSA hovers around 4 to 5 but trending down ...PET Scans redone 4 weeks ago all clear.....get busy.....no magic pill......They call it work out not relax out , sit out , or fun out....Blue Skies , Sky King and Penny (woof)

[Scootman in reply to pilot52]

Has the XTANDI had any side effects to you. I am to start XTANDI on monday currently taking Lupron every three months and casodex daily. Psa had risen then found a couple of spots on pelvis. Just wondering what your experience has been. Just a little nervous starting another medication.

[David20451 in reply to Scootman]

I've been on Xtandi for more than 6 years. Side effects much milder than other forms of ADT. Certainly know of guys who have had different reactions to it.

[Scootman in reply to David20451]

Has it worked for you in stopping the PCA. Did you have any spread prior to XTANDI

[David20451 in reply to Scootman]

This November will be 20 years since diagnosis for me. I've had lots of different treatments. Yes it had spread to lymph node in the Iliac Chain. Just prior to Xtandi I did the Provenge protocol. My PSA is undetectable but I can't tell you for sure what that is attributable to.

[pilot52 in reply to Scootman]

I am serious......when you read a new med it can cause concern....I have nothing to report except mild hot flashes maybe one in the day which I may or may not notice and one around 5am in the morning lasting all of 20 seconds...I was able to retain my Classs II flight medical necessary to continue operating as a commercial pilot...Blue Skies...

[Survivor1965]

I had to switch to 3 month Lupron. The 6 month was wiping me out. I use ambien for sleep. Usually get about 4-5 solid hours of sleep, then up to pee, then spotty sleep for a few more hours. And a nap most days at 1pm since Im up at 4-5 am. I think the Xtandi doesn’t help either.

[Hidden in reply to Survivor1965]

I have been taking Lupron for about 20 months, every three months. I do not look forward to going to sleep, as my body gets hot, sweats, urination about 3-4 times a night. Started eating a special chocolate cookie before bed, and also keep a half cookie on my nightstand. The “special” cookie is made with CBC and does help me. I don’t wait up as many times.

[RonnyBaby]

Energy levels and B-12 deficiency are not directly related when you factor in ADT. Loss of energy is typical and exercise and life style modification can help. Howver, B-12 should be checked to see if supplementation is in order. I took B-12 to help rebuild my immune system which crashed due to anemia - another side effect of ADT. I had regularly scheduled bloodwork done along with my other tests (3 month intervals) to see where I was at. That practice is worth pursuing, as opposed to guessing. I took B-12 for only 3 months. Beyond that, it was deemed unnecessary. Today, I take a high quality vitamin B complex that covers all of the Bs'. I also use(d) medicinal mushrooms to maintain my immune system, which has fully recovered, post ADT (16 months and counting).

We wish you well on your journey ....

[Boywonder56]

Excercise......the rest is the price we pau

[Moespy]

Every other day 5 mile hike or Golf. If I do not follow this regimen I suffer fatigue. I take 75 mg of Fenlafaxine for hot flashes which works for me. Best wishes.

[j-o-h-n]

Give us more info regarding the ROCK.... bio/treatments/location/psa - gleason scores/ treatment center(s)/doctor's name(s)? All info is voluntary but it helps us help him/you and helps us too. Thank you...

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 04/10/2020 2:07 PM DST

[teacherdude70]

Most side effects have treatment options. Press the doc for help.

In my 24 month experience the 4 month shots wore off at about 3 months so I went monthly.

I was in a vitamin D study and found out I was significantly deficient.

After carching up I had more energy.