Poems and Prayers and Promises. Radia... - Advanced Prostate...

Advanced Prostate Cancer

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Poems and Prayers and Promises. Radiation to two lymph nodes in abdomen and to a bone met on left Pelvic bone.... 18 session done out of 25.

greatjohn profile image
greatjohn
โ€ข28 Replies

and this last week I've been "feeling the burn"...LOL. The doctor kept saying it would get more and more tough. He says I am "doing GREAT"....so far.

Quite a bit of nausea and bloating and some pain. A bit MORE fatigue and weakness than with just Lupron and Xgeva and Xtandi ~~BUT, luckily NO BLOOD in my urine yet or any major G.I. issues(but I really have to watch eating any fiber or fried things)....

AND this Coronavirus is making every day going to the hospital another adventure. The staff seems to be all "tense" and stressed out. I was notified by the radiation clinic that someone had been in our waiting room on March 2nd that had tested positive for it...so I was suppose to self-monitor and stay away from people for 14 days...I made it through that hurdle unscathed. I do no think having the new virus would be good at this point.

My PSA ...done after about 10 sessions actually dropped half a point from 6.5 to 6.0 My oncologist had said to hope for "steady" and be prepared for a flare up...so I guess that was good news. My white cells and red cells and all that stuff are down a bit low due to the radiation...so still trying to be quarantined and very careful when leaving the house. Hope all out there are being EXTRA careful and smart and just staying in and avoiding people. If I was not in the throes of this radiation I would certainly not be going out every day like I see people doing.

All the Best,

gJohn

p.s. Photo....Just before the virus started getting bad here in Broward Country, FL...we went for a sundae to celebrate the start of the radiation treatments. It was delicious!

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greatjohn
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6357axbz profile image
6357axbz

Looks delicious. Is that at Jaxson's Ice Cream Parlor & Restaurant in Hollywood?

greatjohn profile image
greatjohnโ€ข in reply to6357axbz

No... just our local Dennyโ€™s ๐Ÿ˜œ๐Ÿ˜œ๐Ÿ˜œ

So I am 9 out of 35 in my treatments.

I have actually counted the # of doorknobs I have to open between here and there (4). I use the sleeve of my jacket to operate the knobs. I stay out of the elevators opting for the stairs. I dont touch handrails. I wash my hands when i get there, i gel in and out of the treatment room, wash my hands before I leave. and I wash my hands when I get home. I put my jacket in the wash.

Just a little OCD for me, but I am vertical!

Good luck with your remaining treatments. I hope they evict Pca from your system.

greatjohn profile image
greatjohnโ€ข in reply to

Thanks and the same to you!

gJohn

โ€ข in reply to

Good luck to both of you guys. Finish up and stay home ๐Ÿก. OCD is us now. We must be . ๐Ÿ•Š

spinosa profile image
spinosa

John - good to hear about your positive progress! Keep hanging in there. I'm stuck at home, as classes are canelled for... "a while," and even AP Exam are modified - usually a 3 hour exam - it will be abbrviated to 45 minutes, and kids can take it on line. Our reading will be done on-line, which will be a new expereince - usually, we met (for AP Lit) in Salt Lake, with hundreds of people in a large convention center, 7-8 at a table. Now, no way.

Take good care - keep up the sundae diet.

greatjohn profile image
greatjohnโ€ข in reply tospinosa

Thanks, stay safe.

Daddybearblue profile image
Daddybearblue

Sundae looked delicious. We have to have those little rewards along the way in order to keep going forward to the next step. I send my best thoughts and prayers to you.๐Ÿ™๐Ÿ™. Arlis

Hex40 profile image
Hex40

My pelvic radiation made it tough to โ€œsitโ€ for about a month after it endedโ€. I took hot baths with Epsom salts and lots of ibuprofen. I wish you continued success.

greatjohn profile image
greatjohnโ€ข in reply toHex40

Thanks ๐Ÿ˜Š

nobaday profile image
nobaday

Hi John

At least having a good zap. Itโ€™s selective and proven to take out those Mets. Crossing my fingers for awesome results for you!

Fenbendazole which seems to be proven for some but mostly anecdotal has you on my radar as one of the group taking fenben. Are you still taking it and what are your comments on any benefit for you?

I am trying to get mebendazole OTC from friends travelling to Mexico but my friend who is just on way back today could not find any in Cabo. And my friend who found 100mg pills in Mexico City for under $1 did not want to bring back with him into Canada as his girlfriend is trying to get residency here and mebendazole is prescription so did not want any border issues.

Who knows when my next friend will be travelling to Mexico with Corona locking us in our countries.

Ramp7 profile image
Ramp7โ€ข in reply tonobaday

In the next few months I too will be probably going down the same road with Mets to hip, lower back and nodes.

I found this for FenBen, it's Liposomal as well. healthydrops.net/product/li...

tallguy2 profile image
tallguy2

Great report, keep up the positive attitude and wonderful ice cream treats!

greatjohn profile image
greatjohn

I have so much nausea from radiation treatment that I am taking a few weeks off from the Fenben. Probably will start back afterwards at some point.

Take care and be safe,

gJohn

โ€ข in reply togreatjohn

John I have nausea often from the med Iโ€™m on tak -700. But nothing like during and after finishing 8 weeks rt. Itโ€™s a real mo fo bro . Hang in there !๐Ÿค™๐Ÿฝ

scarlino profile image
scarlino

Stay strong gj. You can make it through!

Haniff profile image
Haniff

Hi greatjohn

Keep the faith and stay strong. Glad to know that youโ€™re staying positive and determined.

That sundae sure looks delicious, have fun.

โค๏ธ

Haniff

Charlesd profile image
Charlesd

Great John, I HAVE BEEN FOLLOWING YOU SINCE YOU CAME ON BOARD . MY HUSBAND ( 50 Years) fought the good fight for nearly 6 years. I HAVE KEPT YOU IN MY PRAYERS & THINK YOU HAVE A LOT OF COURAGE & STRENGTH. GOD LOVES YOU & IS WITH YOU. YOU HAVE BEEN AN ENCOURAGEMENT TO MANY๐Ÿค—

โ€ข in reply toCharlesd

Thanks for your kind words and prayers. May you find peace and may husband Rest In Peace . ๐Ÿ™๐Ÿผ๐Ÿ•Š

Collarpurple profile image
Collarpurple

โค๏ธ Loads of good thoughts& prayers

NWLiving profile image
NWLiving

Take care Great John!

Wow greatjohn! You look darn good ..Get thru and get back home and isolate brother. ๐Ÿ™๐Ÿผ

NOCanceros profile image
NOCanceros

Good Luck

LF27 profile image
LF27

Good luck w everything, John. Hope you feel better soon.

rocket09 profile image
rocket09

Good luck on the treatments, I feel you have great inner strength!

keepinon profile image
keepinon

Glad to see I am not the only one to indulge in a sugary treat now and then๐Ÿ˜‰

Best wishes for a successful treatment!

j-o-h-n profile image
j-o-h-n

May your radiation be as delicious as your chocolate fudge sundae.....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 03/22/2020 5:16 PM DST

GoBucks profile image
GoBucks

That ice cream is what is helping you succeed! Continued good wishes.

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