Artificial urinary sphincter - Advanced Prostate...

Advanced Prostate Cancer

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Artificial urinary sphincter

Istomin profile image
9 Replies

Hello! I'm going to Memorial Sloan Kettering this week to consult with Dr. Jaspreet Sandhu about having the device implanted. (Here's where I am now: 26 months post radical prostatectomy; 14 months post 39 sessions of radiation; in 22nd month of Lupron out of planned 36. I've been undetectable for 12 months). After many kegels, biofeedback sessions with a specialist pelvic floor therapist, and sessions on an Emsella chair, I remain around 80% incontinent (hard to quantify, but I use a pad 24 hrs a day and go through 6 or so every day). Does anyone have any experience with Dr. Sandhu, or any advice or suggestions about the procedure? I live 2 hours away from MSK but the good local hospital (Yale New Haven/Smilow Cancer) doesn't have any surgeons who specialize in this procedure, although there is one who does it in addition to a range of other procedures with women and some men. It would be better to be near the hospital where the procedure was done if something goes wrong after it, but having it done by a real specialist is of course very important.

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Istomin profile image
Istomin
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9 Replies
j-o-h-n profile image
j-o-h-n

Good Thinking..... Now just make sure they install a hot and a cold spigot...

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/09/2020 6:17 PM EST

Istomin profile image
Istomin in reply toj-o-h-n

Thanks, j-o-h-n! Actually, I was thinking of asking them to fill the fluid reservoir with a nice Pinot Noir rather than sterile water.

j-o-h-n profile image
j-o-h-n in reply toIstomin

Now that's thinking.... (for drinking) You're a better man than me, that's for sure....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 02/10/2020 2:26 PM EST

Rich_Rad profile image
Rich_Rad

Hi there.

Don’t have any info on this procedure, but generally speaking, I would totally travel to where they have much more experience.

I am being treated at Smilow currently, and although it is great, I had made the decision to have my robotic prostatectomy at Hartford Hospital with a surgeon who had done more. I ended up with an aborted prostatectomy in Dec, 2019, after he found lymph node and seminal vesicle involvement and a close proximity to rectum. His experience lead his to decide to abort, because the odds were I would have needed a colostomy. Although disappointed at first, I am grateful he took the more conservative root.

Anyway, all that to say, experience matters. If you want to connect, drop me a line here.

Rich

Istomin profile image
Istomin in reply toRich_Rad

Thanks Rich_Rad--glad that your surgeon had the necessary knowledge. No question, experience is crucial!

My friend has this already ... Said it was a tough procedure but This will improve your QOL over what you’re suffering today friend. Good luck !🌵

Istomin profile image
Istomin in reply to

Thanks, Whimpy-p. Do you mind saying what your friend said was tough about the procedure? (Some things I can probably imagine.)

in reply toIstomin

He also had a Rp and I havent . Said this was a bit harder than the RP.. but I’d say it’s a life saver once you recover. Didn’t mean to scare you . My friend is happy with it . Best of luck and recovery..

Istomin profile image
Istomin

Many thanks, Whimpy-p!

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