I just got my bone scan and ct scan results. No new metastases no new lymph node spots. Old metastases appear to be scarring over and old lymph node invasion reduced by 50%.
I was DX in March 2019, Gleason 9. PSA 99. First treatment late May. Lupron, Zytiga and Prednisone. My T is below 5 and PSA .58.
I am posting this for those who are just beginning their journey. I want you to know that there is hope, maybe no cure at the present, but today's modern medicine can and will extend your life. Keep fighting and smile. Here is to each and all who are in this fight.🍸🍸🤠
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Drphil1938
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WooHoo! That's great news, Drphil1938. Your encouragement and compassion for others who are newly diagnosed is very commendable and goes a long way toward helping those who face similar initial diagnoses. Hope you get a nice long run on your initial treatments.
I recall my original painful diagnosis back in Nov 2013. A ridiculous PSA of 5,006 was quickly brought down to 1.0 with Lupron (and some Zometa) alone. In light of later findings from the STAMPEDE, CHAARTED, and LATITUDE Clinical Trials, I might have had even better, more lasting results by adding either early Docetaxel chemo or early Zytiga to the initial Androgen Deprivation Therapy treatment, but there was not yet any strong evidence clinical trial data available back in 2013. Again, glad to hear that such a combination is now working very well for you.
Meanwhile ... Enjoy Life in the Present Moment .... and every now and then take some time to learn and explore about your evolving future Options, ... hopefully not needed until years from now.
You are a long term survivor and I never heard of a PSA in the 5000's, but you are here walking, talking and enjoying life. Thats wonderful!
I will be 81 day after tomorrow and have lived a good life but I am not ready to lie down and quit. As Robert frost said: " I have things to do and miles to go before I sleep". Or something like that. I think you feel the same way.
For this voice the woods represent the enticement of death (lovely, dark, and deep), perhaps at his own hand, but he rejects that path and chooses life and his commitments.
Great news Dr. Phil I have almost the exact numbers and treatments. I am now going on 21 months with PSA at 0.1 . I go to my Doctor tomorrow but already seen my blood work all good and still at 0.1. The only difference in treatments is I was administered Provenge infusions in June but my PSA was already at 0.1 then and now it was added as an additional treatment in the arsenal. Never give up never surrender. Leo
Congratulations! My recent scan produced the same results: ld "metastases appear to be scarring over and old lymph node invasion reduced by 50%." Nice to know when things take a positive turn, but still recognizing it's incurable and our best reports give us hope for a longer, better quality of life.
Great news! I was diagnosed March 2017, extensive bone mets, abdominal lymph node mets, T-12 compression fracture. Right now lymph node mets gone, bone mets stable after chemo, still on lupron, xtandi 28 months, psa 0.1 Wishing you the best.
Thanks for the encouraging news! I'm 8 months in after dx in March of Gleason 9/10, psa 15.1, lymph and paracaval mets. Currently .7 psa on Lupron and Zytiga. Let's all keep the beast at bay. Suspect Doc will order new scans in January to see what's happening..
That parallels my DX and the SOC my MO suggested for me. My last blood test in Feb. Showed <.01 psa. So you are on the right track, in my opinion your MO is doing a good job for you.
I have been on this SOC for one yr next month. I had a bone scan after six mos and the scan shows that my mets on seven areas were healing or scaring over. The CAT scan shows the tumor in the groin lymph nodes shrunk by 50%.
I wish you the best and hope you achieve the same or better.
Wow, you sound very similar to me. Scan in December showed a met on left hip, lower back and lymph node left groin. Since Lupron, pain has dissipated in all three areas. Inflammation in groin is easily down over 50%. I can play golf again. I think this summer another scan is scheduled. The hospital pharmacist is supposed to contact me regarding Zytiga costs and arrangements. Cost is a little concerning. Shall see.
If things dont work out with the pharmacy, check with Johnson and Johnson foundation my MO got me into it and I receive mine free. I am talking about Zytiga. I assume they are assisting people.
Thanks for the heads up. I was approved for the grant to receive Zytiga with zero cost. If I was denied, the cost would have been $500/monthly.
This is an older post but I came across it just before going to bed . Thanks you for your positive thoughts - they have a calming effect for a good nights sleep. Blessings 🦋
Thanks for the blessing, right back at you! As a follow up I just had a 6mo follow up and all is still going great. PSA is .1. Set for new scans 1st week in August will update the site at that time.🍸🍸🤠
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