Getting off testosterone blockers
Can you get off testosterone blockers after 10 years. Does your body stop making testosterone?
Anyone doing complementary therapy. Alive with “fast growing” 14 years. Please respond.
New to this.
Oreoking and wife
Thanks
Hi Oreo King...Give details. about your prostate cancer...which testosterone blocker you are on and why you want to get off it ? your last PSA and Testo level..symptoms etc ?
My husband has been on Lupron and casodex for most of last six years plus On and off before. His lymph nodes are larger. No mets. He is starting natural protocol and wants to stop drugs that cause fatigue, weight gain and possible dementia that might interfere with new detox protocol. It compromised his immune system. I guess it is too late to stop now. Thanks.
Many people may not recover testosterone production by the testis after so many years in Lupron. I had only one shot of Lupron and put my testis to sleep for the last 3 years.
I wonder if you could tell us the history of your cancer and its treatment. If you do, people at this forum will have more information to answer your questions correctly.
There are two different kindss of "testosterone blockers," and which you've been taking makes a difference. If you've been taking Casodex, your ability to generate testosterone was not impaired. If you've been taking a GnRH agonist, like Lupron, it shut down your ability to generate testosterone. In that case, it may take months to years to wake your testicles from hibernation. You can sometimes help them along with Clomid or hCG. If that doesn't work, you will have to supplement testosterone. I have no idea why you are doing this, or why you took a "testosterone blocker" in the first place.
Thanks see above reply.
Please let us know your treatment history, including what you are currently taking.
So Oreo, I guess you got the message... We need more info from you to help you and to help us too.
age, location, treatments, treatment center(s), Doctor's names(s)? All info voluntary. Thank you.
Good Luck, Good Health and Good Humor.
j-o-h-n Wednesday 09/04/2019 2:18 PM DST - Pinnes
I was on Lupron/Eligard for six years when my research medical oncologist took me off. I have been a clinical trial guinea pig since 2004. Testosterone did not come back after a year. His words, sometimes is does; sometimes it does not. To jumpstart the production of testosterone, he prescribed 4 mg of Androgel twice a week. It did not work, so I have been taking testosterone supplement since 2010. Testosterone levels with the above dosage ranges from 350 to 750 depending when I apply and when I have blood draw. If I were to not use for a month, T would be less than 50. This is the only drug that I currently take for my Stage 4 metastatic PCa. I remain undetectable.
The reason for continued supplemental testosterone therapy is that I feel good and able to loose weight.
Point. The Pharmacist questioned its use until he saw the prescribing doctor was my medical oncologist. The insurance company questioned until the medical oncologist wrote a letter. Some people in this group questioned, until I explain. I feel great with more energy and able to tone my muscles. However, it is not the norm and be sure that your pro is on board. Before I started in 2010, I had nuclear bone scans and soft tissue CT scans. I had another set in 2016. Previous mets were resolved and no new mets.
Second point, when I went off Lupron and again when I added testosterone, I questioned, “Won’t my cancer come back?” His response was, “I don’t think so, if it does them we will restart Lupron. I am telling that I can not find any cancer in your body. The only way to know for sure is .....”
I wish you the best.
Gourd Dancer
Dear Gourd Dancer
Thank you for your wonderful reply. I wish oreoking would do what you have done but he is conditioned to believing the blockers saved him so far.
We have done energy work, biomat infrared heat, prayer, energy healings etc and both miraculously survived so far, Him 14 years, me 9 from breast cancer. Starting diet protocol. (Chris Beat Cancer and I Refused Chemo).
His testosterone is only 10. It is taking a toll.
How did you heal your cancer, Dancer? Love that name.
Thanks for sharing. This is new info for us. Blessings. Are you a Shaman? In MN?
Good Dancer, On this forum, many people trumpet repeatedly that Lupron fails in 1 to 2 years....BUT..you are shining example of the fact that Lupron can keep working for many many years..in your case, after 6 years on Lupron, your mets resolved proving the fear mongerers wrong who say it is not possible to get rid of mets once they occur.
Thank you for this post as it gives honest possibilities about PCa getting better forever.
Learn. The Mets were resolved by the conclusion of the six months of chemo and in the process of building new bone grow. The Lupron continue to hold in check any residual cancer cells starving the little bastards. Lupron alone did not resolve.
GD
thanks for clarification
No, not a Shaman..... below is information which I have already posted. Note since you had breast cancer, you might be familiar with the Red Devil - doxorubicin or Adrimyacin. BTW, my cousin who was metastatic breast cancer on diagnosis this year was given chemotherapy - Docetaxel alternated with Adrimyacin as a part of her first line treatment plan with IRMT. She is being treated at Baylor College of Medicine where my Medical Oncologist taught and researched when I met him. There are some who believe that breast cancer and prostate cancer are related.
“Each course of chemotherapy lasts for 8 weeks. Patients were treated in weeks 1, 3, and 5 with doxorubicin 20 mg/m2 as a 24-hour intravenous infusion on the first day of every week in combination with ketoconazole 400 mg orally 3 times a day daily for 7 days. In weeks 2, 4, and 6, treatment consisted of paclitaxel 100 mg/m2 intravenously on the first day of every week in combination with estramustine 280 mg orally 3 times a day for 7 days. 30 mg of Prednisone everyday through the three courses of chemotherapy.”
Additionally published about 2012: The Trial cohort:
"Forty-six patients were enrolled, and forty-five patients were evaluable. Median progression-free survival (PFS) was 23.4 months. Median overall survival (OS) was 53.7 months.
Out of 45 patients with measurable disease, 22 patients had an objective response: 9 patients achieved a complete response; 2 patients achieved a partial response; 10 patients achieved stable disease.
Frequent grade 3 adverse events included elevated ALT (17 %), hypokalemia (13 %), and hypophosphatemia (13 %). Grade 4 adverse events were rare and included low bicarbonate (2 %), hypokalemia (2 %), leukocytopenia (2 %), and neutropenia (2 %)."
GD
Victorq1 answering. I have been on Lupron intermittent and permanent therapy,together with Bicalutamide for 10 years.
My Oncologist without warning me about side-effects of Nilutamide (Nilandron),a replacament of Bicalutamide
almost killed me ,since nilutamide has 4-6 % probability of starting "chemical Pneumonitis?
"
and while traveling in Mexico i was "misdiagnosed".
Nilandron is not prescribed there because of the high cost.
I am Professional Chemist
and together with my class mate from Germany,a medical Doctor and
we "auto-diagnosed" what is getting on.
He immediately took me off Nilutamide and
prescribed anti-inflammatory cortisone.
Meanwhile i was unnecessarily on strong Antibiotics
even administered intravenously.
A horror medical story,which I fortunately survived.
Please be careful with replacement of Hormone - Anti PC medicine.
Another replacement Oncologist citing the damage to eg my liver (High GGT and LHT tests
removed even Bicalutamide,and left me on Lupron -monotherapy
-until PSA rises.
The PSA contrary to expectation and experience of 10 years
is steady ,around 5 .
That leads me also to a question.
Is Lupron mono-therapy after the age 70 appropriate?
Or
taking no medicine at all ?
As medical texts say:
An old man will usually die with Prostate Cancer
but not because of it !
What is an opinion?
Cheers and wishing long and happy life
Victorq1
Testosterone patches after finishing adt
Treating Prostate Cancer with Testosterone
High Dose Testosterone 
Is there seasonality to testosterone levels?
Raising testosterone numbers
