Onc's visit results: Traveled to... - Advanced Prostate...

Advanced Prostate Cancer

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Onc's visit results

thevvy profile image
13 Replies

Traveled to Adelaide to visit my Onc on the 9th April.

My PSA has been at <.05 since November 2018, and the last test came back the same.

Good news, for me, is that my mets (left ilium, right iliac crest, t5, 7th right rib, and both clavicles) are now undetectable. I've been fighting this bastard since May 2013 (gleason 4+5) ADT and targeted beam radiation therapy. Zytiga/prednisolone/Triptorelin since April 2018.

Hell of a ride, but it's been worth it. We (My Onc, my angel and I have decided to keep going with the Zytiga for as long as it works, as it seems to be doing the job. We dropped the dose of prednisolone back from 10mg to 7.5mg a few months ago and the side effects have diminished quite a bit.

The plan is for a Gallium 68 PSMA/PET scan and an MRI in June, so I'll know more how things a going.

This last summer was the first time I have not been on the fire truck in 10 years as a first responder. Was called in to help out mopping up a couple of times, but I consider myself at 70 to be a bit of a liability when the heat is on!

Keep your spirits up guys! We might not live to be 100, but hey, we can have a hell of a time trying.

Cheers

Thevvy

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thevvy
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13 Replies
beatPC profile image
beatPC

Best of luck. Very inspired by your fighting spirit. Happy to hear about your progress.

thevvy profile image
thevvy in reply to beatPC

Thanks beat!! Keepin' on keepin' on!

NPfisherman profile image
NPfisherman

Congratulations....That is fabulous news... I have to go test next week and can feel a knot in my gut already...keep fighting...

All the best,

Don Pescado

Thanks for this great news. It gives hope to us that follow behind you in this journey. Especially the newly diagnosed that fear immediate death. Keep under the radar thevvy... 👏

thevvy profile image
thevvy in reply to

Thanks LuLu .... off out to cut a ton of sugar gum for firewood .... then split it with an axe!!

Wont be doing much tomorrow tho ... lol

in reply to thevvy

I haven’t heard of sugar gum , must burn well and smell good ? I am a one or at the most two hrs of work , the next day down for sure . No stamina. 1/2 ton , you are better than I compadre .. Take care.

thevvy profile image
thevvy in reply to

Sugar Gum is a very dense and heavy hard wood. Burns very clean and hot and leaves almost no ash. A log about 18 inches long and about 8 or 9 inches thick will burn for about 6 - 8 hours if you turn the air down a bit!

in reply to thevvy

I want sugar wood .to burn ,don’t have it here. hard to,chop,I’d assume .. we have native ironwood trees here in our desert . Won’t float , protected species ,ironwood natl monument is one hr from our place. Keep chopping with that good news. Peace thevvy .

thevvy profile image
thevvy in reply to

Maybe if I was a few years younger, there could be a business oportuniy exporting sugar gum to USA for fire wood. The only way to cut it with an axe (when it's dry) is with the grain ... still hard to do though ...

in reply to thevvy

Our native ironwood will

Destroy a chainsaw quickly . In our sister state of Sonora south of the border the Native Seri Indians started carving this ironwood into to rustic figures mostly of sea life in the sixties. Especially in Bahia de Keno . Close to Tucson Dad took us camping a lot in mex. when I was 7-8-9 yrs old . and he bought a few from the ladies hands that carved them , some now collectible art work . . In the 80’s they . started mass producing copies and now Import and sell mucho to tourists...In The US ironwood is protected. They live from

800 to 1200 years and then after their death another 1400 yrs to finally disintegrate . The most drought tolerant tree in our desert .

j-o-h-n profile image
j-o-h-n

Good news. Congrats!!!

Question: Why are fire trucks red? Answer: If someone pulled your hose you'd be red too.

Give my regards to your girl friend Adelaide.

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 04/25/2019 6:10 PM DST

in reply to j-o-h-n

Oooch!

thevvy profile image
thevvy

Thanks cobber .... I'll be with her again in June, so I'll make sure to pass on your regards ...

Our fire trucks are white with stripes and red and blue flashing things and something that makes a hell of a din.

Following on from your joke .... if a bloke pulled my hose Id be a bit white too ....

Cheers cobber, keep up the good work!

Thevvy

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