I received the results from my bone scan and along with my right pelvic femur hip area, which I already knew I had . It also stated a uniform uptake in skull and spine. Radiologist said I shouldn't spot radiate the pelvic area because I just had it done 9 months ago and if I can handle the soreness in that area to leave it alone because it can weaken the bone more. But I just started getting back of skull headaches last week. Not fun. My nose runs a lot too. Could this be from the uptake in my skull? I also just had a 6 month Lupron shot two weeks ago. I know that can give you headaches too. Anyone out there have any info on skull uptakes. Any same experience?
Thanks
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RalphieJr64
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I would not worry about the "uptake" of the Technetium-99m agent used in the Nuclear Medicine Bone Scan causing any lasting symptoms or headaches a week later. It is a short-lived metastable nuclear isomer which has a half-life only about about 6 hours. A lot of it had already decayed by the time you got out from under the detector and went home! After a week, it's essentially gone, for all practical purposes.
Sorry. No specific ideas. I'd report it to a doctor for a history, work-up, exam(s), etc. At least rule out some potential root causes, while also addressing appropriate pain relief.
Have you tried Durogesic plasters? They contain fentanyl and you can increase or decrease the plasters, which come in different strengths, like 12.5 micrograms to 100, with 25, 50 and 75 included. You can attach as many as you like, as long as you don't take too large an increase or decrease at one time, as it will give you a jolt. They are great against pain. I take 50mgr at the moment, but have been as high as 150. The taxotere chemo seems to work well against the pain as well, which is the reason I can decrease. Hope it is of some help
Thanks Kevin, yes I take them according to the advice of my oncologist. You are right that you need to be careful. Just this evening I reduced my patch from 50 to 25mcgr. You need to slowly step up and down, otherwise your body gets funny. Three patches is way too much in one go, even the smaller ones. Though I think she probably attached 100mcgr patches.
I really don't know much except she was found dead on the couch. I certainly don't deny that those in pain may need to use it. It's hard now to get any doctor around here to RX it. I take Ibuprofen, nuerontin, and aspercream w/ lidocaine. I was in terrible pain today though. It shows I'm clean on cat, bone scan, and PET but pain still exists for some reason.
I sometimes have pains, especially when I cannot continue the chemo because of blood issues. Then nothing seems to help. Here in Belgium the doctors are quite relaxed about giving fentanyl. I now have a collection from 12.5 to 100mcgr plasters, as I keep changing according to my condition. I hope that tomorrow is a better day for you. By the way, do you use Dafalgan/paracetamol? I found that the 1gr pill 4x per day is also quite effective. Good luck and wishing you strength
Im told oxy won’t really help with some headaches as much as some NSAIDs. Aleve sometimes works better for me. If the headaches keep up, you may want to discuss with your MedOnc weather he/she wants to order a head CT.
Melatonin a possibility? In some it has helped with migraine headaches and is amazing with 'ice pick' headaches. It fixed me with the latter, instant almost.
I also take with many other drugs, Trazadone an antidepressant that helps me sleep. Do you think melatonin would be ok to take with? I'm willing to try anything.
Maybe check with your medico if on multiple other drugs, or pharmacy...? Or perhaps a call to the Life Extension people who seem very knowledgeable and could perhaps advise on relevant dosage etc.
some meds also cause headaches. Anything with codeine in it can give you rebound headaches. Sometimes stress can also cause clenching of teeth which causes headaches.
Codeine adversely affects many. My husband's ENT guy post surgery on neck attributes my husband's partial hearing loss to codeine. He said he had also had patients who had become totally and permanently deaf after codeine reaction. In Australia, codeine and co-codeine meds, as of last year, are no longer available over the counter ( I would never seek a script for them for anyone or myself).
I had some headaches before, also very sore trying to turn my head, but it went away by itself. My nose runs a lot too, especially when eating. I don't know why this happens. I also have part of my face numb, because of a problem with a nerve in the jaw. Anybody else has had this? I have had pictures taken as well as an MRI, but they cannot find out why this is happening. Already more than 1 month.
I have had a runny nose for the past three years now, I believe some ADT meds can cause this. I also developed dull headaches about a year and a half ago, they can really wear you down. It s likely from Xtandi however there are several meds that I take that can cause them too. Dr. Sartor prescribed Celebrex to help with the headaches as well as joint pain. Most of the time it does the trick.
He said to do whatever I have to to mitigate the SE’s from xtandi since it seems to be working. My local medonc had an MRI done of my head just to rule any other issues out that could cause headaches but they found nothing (I could have told them that 😀).
My cardiologist doesn’t have a problem with me taking Celebrex, she said in her 17 years of practicing she’s never encountered someone who had cardiac issues from it.
Ibuprofen was doing the trick too but can be rough on your stomach that’s why Celebrex was recommended and prescribed, it’s much easier on your stomach but I still always take it with food. It’s made a big difference in my headaches and QOL.
I take Pantoprazole to protect against the side effects of other medicines. I take it before food and other medicines in the mornings, and have nog had any problems from Dexamethasone or Medrol
This post is great, Ralphie. It is nice to know that my runny nose when I eat, when I poop, and at random times is not unusual! I have been concerned.
Regarding your headaches, I suggest starting small and simply get a neck and shoulder massage. If it helps, this will rule out stress or positional issues.
I understand the fear factor very well - one of my tumors is in the C2 vertebra and affects my neck rotation and flexibility. Unsurprisingly, I get headaches, but massage helps and I can differentiate between the built-up stress and something else like a head cold or sinus infection....luckily no new tumors or treatment side effects (so far)!
I got headaches after my first Lupron injection, every day, random times, some nagging, some bad. Ibuprofen does the trick for the bad ones. They have disappeared the last three weeks. I am guessing because I am due a Lupton dose early April. I hope the headaches do not return, but am expecting them . I also get a runny nose at random times.
That is where most people get headaches. "Uptake" only means activity. If you are over 30 you have arthritis in your neck bones. That is a _much more likely_ cause of headache and should respond to massage/stretching/home exercise/chiropractic/physical therapy.
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