Josh just had his first Firmagon and Xgeva injections. 99.5-100.5 fever last night and today. Very achey and discomfort beneath belly button- not at injection site.
Anyone else have this kind of reaction? He starts low-dose chemo Tuesday, Dr Bob’s protocol. Check out compassionateoncology.org
John not Josh...
I never had Xgeva, so not sure about combination. However, I was very achy and had a small fever (felt very much like the flu) for 2-3 days each time I received a Firmagon injection.
Been on both one year now it gets better. I get under the weather once in awhile but very slight. Hang in there it gets better. Leo
Thanks Leo.
Have you considered Lupron? That Firmigon seems to cause local...injection site reactions , as well as the systemic ones you are experiencing.
Hi there,
Sorry about your pain. My husband had been on Xgeva for a few years and he always experienced pain ,& fever and hard knots at the injection site.
Our Oncol. changed him to Lupron mo. injection.
Good luck
BOOGEE
Yes, I have been getting Firmagon injections for 4+ years now and so far so good as PSA is undetectable. My doctor wants me to stay on Firmagon even though the injection site is sometimes painful for a couple of days after and I feel like a truck hit me the day after, also have mild fever after some injections, but not all.
The skill of the nurse administering the injection is also very critical. I found that if I pinch and hold the spot the injection will go in, while the nurse injects it at a 75 degree angle, not a 45 degree, as some suggest, then I have her hold the needle in after the drug is infected for 15 seconds, I hold the pinch for another 15 seconds after she pulls the needle out in order to allow the drug enough time to form a depot deep into my belly. By doing this proceedure, the drug does not leak into the outer dermis layer which is what I found causes the site pain afterwards. I also insist on the same skilled nurse give the injection every time.
BTW , I never had any side effects from Xgeva or Prolia, only Firmagon
Hope this helps
My dad had that same reaction with those. His belly hurt so bad. after about 2 weeks he felt better. Now back to Lupron and now on Xtandi. Xgeva will be given again around week 6 or 8. I hope Josh feels better. Blessings!
my husband takes firmagon, zometa 1 x month and a steroid and chemo every 3 wks.
3 days before either treatment and for week after he takes Claritin and Zyrtec. . Don't buy generic. This protocol reduced his pain significantly, to our relief. hope it helps. His MO recommended it.
Firmagon?
Firmagon
Xgeva 
Firmagon
