My 82 yr old dad kicked prostate canc... - Advanced Prostate...

Advanced Prostate Cancer
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My 82 yr old dad kicked prostate cancer 10 yrs ago. Yesterday, a CT scan revealed a tumor on his sacrum. Has anyone had this experience?

teresa927
teresa927

My 82 yr old dad kicked prostate cancer 10 yrs ago. He's suffered with severe pain in his back and leg for the past few months, and yesterday, a CT scan revealed a tumor on his sacrum. Has anyone had this experience, and if so, what is/was the result?

17 Replies
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Hi, Teresa. I can speak from experience, as I have numerous bone mets throughout my body, including my spine. First - there are multiple reasons for bone tumors, but the fact that your dad had prostate cancer in the past is suspicious and indicative that PC may be back and has metastasized to bone (a common site). If it is PC, you will first have to decide whether to treat with ADT (androgen-deprivation therapy). If successful, this should retard the growth of all PC-associated tumors, including those in bone. Patients are often given Xtandi to prevent the bone-brittleness that ADT can promote.

In these instances of bone mets, the position of the bone tumors is key, and whether they pose pain (as this tumor obviously does with your dad). The standard of care for painful bone mets is focused radiotherapy...your run-of-the-mill nuclear (literally) response. Unfortunately, the collateral damage to healthy bone can be considerable, and may lead to bone fracture...again, I speak from experience.

SO...given the location of the sacrum, and how critical it is to the entire lower body, you and your dad are in for some tough choices. If radiotherapy is offered, I would really push the docs to answer the questions on collateral damage risk and longer-term outcomes.

I also strongly suggest seeking out a medical (!! - no froo-froo!) massage therapist with experience with the elderly that can perhaps help loosen the tissue around the sacrum and hips. Frankly, this massage is not nice, but it has helped me tremendously....granted, I am a "young" 51 when I write this!

Good luck to you and your father! - Joe M.

SeosamhM
SeosamhM
in reply to SeosamhM

CORRECTION - I should've written Xgeva, NOT Xtandi.... the drug names in the PC world are as unfathomable as elsewhere in medicine! - Joe M.

teresa927
teresa927
in reply to SeosamhM

Thank you so very much for taking the time to respond to us, joe! Your info is helpful. I hope you're doing well?

SeosamhM
SeosamhM
in reply to teresa927

I won't complain, T! ... Okay, at least I won't complain about PC - I'm a man and I complain about a lot, and reserve the right to continue to do so! :)

Just to confuse us, Xgeva is also known as prolia, is also known as Denosumab

HiddenThis reply has been deleted
teresa927
teresa927
in reply to Hidden

Thank you so much for this post. My dad symptoms sounded exactly like yours, and I read this to him. It cheered him up considerably! Thank you so much.

Sorry--but according to my research, and yet to Post, as it is a part of a larger post yet to be put on this site--- almost everyone that has survived PC[In Remission] for more than 5 years, will have a return of the disease--->Bio Chemical Recurrence, unless one dies of something else. The only cures are those that remove 100%, every last Pca cell, or Kills every last Pca cell. Leaving just one, cell, be it a TIC, a STEM or Cancer Cell, identified from original Biopsy, often always leads to a BCR, if you live long enough. There are case histories of BCR, at 30 years.

I have said my PC plan is to live long enough to die of something else--hopefully by natural causes.

Nalakrats

Saying nearly everyone that has survived five years will have a recurrance is grossly scientifically inaccurate.

Well, Want to show me your proof?

Nalakrats

mcp1941
mcp1941
in reply to Bravesfan33

I went 14 years before BCR. In my support group there are some that have gone longer belore BCR.

Abiathar
Abiathar
in reply to Nalakrats

I can't imagine you include those that had the pc confined to the prostate. If you did.....you need to give reference articles.

Abiathar

Nalakrats
Nalakrats
in reply to Abiathar

I said if all cancer cells were removed or killed. Removed by surgery where every cancer cell is contained, and killed where every cancer cell is radiated to death--these folks are cured. I have a post coming but it has been 4 months in the making--will answer some of what I say. Answers the question about BCR after 5 years to 30 years.

Nalakrats

Cmdrdata
Cmdrdata
in reply to Nalakrats

The keyword Nalakrats said in this post is “ALL”. There is no scientific way to determine that all cancer cells in our body is killed after we receive any treatment. Cancer by definition is our own damaged cell that mutate to become tumor as it grows because our immune system doesn’t know it is damaged cells. So Nalakrats is correct about BCR potential. That’s why we cancer patients “never” said cured but in remission when we are not seeing BCR (potentially someday!).

Nalakrats
Nalakrats
in reply to Cmdrdata

Thanks.

Nalakrats

j-o-h-n
j-o-h-n
in reply to Nalakrats

Cure? Remember the difference between love and Herpes? Herpes is forever...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 01/10/2019 6:06 PM EST

Nalakrats
Nalakrats
in reply to j-o-h-n

So True

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