With the recent diagnosis of my husband and the possibility of this cancer passed onto our children & grandchildren. Which companies are the best? I have a phone interview set up with FORCE Peer Navigation Program. Does anyone know about this or have any experience?
Next questions/advise: Genomic Testing: What companies are the best for this type of testing. Since we are finishing up chemo on Jan 21/ Scans Feb 11th..trying to be pro-active on which kind of treatment will be next or what will work. I want the best for my husband and not play around with let's try this until it does not work, etc. Want to know the exact make up of the cancer cells.
Details of Diagnosis: Sept 13, 2018 PSA 50, Gleason 9, Mets to bones & nodes Advanced Prostate Cancer-No Pain which is a blessing..He is young- 63. weight- 179, Healthy other than the cancer. We are on a Ketogenetic diet. Try to walk everyday and working on an exercise program. We pray together and have lots of support from our family & friends. Making changes to our current life by downsizing our home. Hope to plan some trips as he loves to travel once we know the next treatment plan.
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WifeofD
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For somatic testing, Caris and Foundation One are big. I'm not sure that they provide much actionable info beyond what you would learn from immunohistology. There's also "the liquid biopsy" from Guardant360 that looks at non-cellular DNA - the advantage is that you're not dependent on any one tumor, the disadvantage is cost - I heard $4000. There are limited treatments based on genomics.
I don't care what they wrote about you on the walls in the ladies room I still think you're a mensch. I know you ask, what was I doing in the ladies room? It's coed nowadays...
Check out Fred Hutch Gentelmens study. If metastatic, free testing through Color. Just did for our boys. It's free if you are accepted to the trial and they will direct you to upcoming trial for your mutations. Just completed it this weekend for my husband. I totally get where you are coming from. My husband's father died if prostate cancer 16 years ago and I want our boys to take if seroiusly.
Thank you for that info. Met with both of our docs and they are encouraging us to move forward on genetic testing. It will help with the next move on treatment. My husband just completed chemo and we are on Eliguard and X-Geva . Watching him closely with PSA test every 3 mos and every 6 mos scans...Praying for him to have a quality of life for many years to come..
Our local oncologist told us there is no treatment for any gene mutations so why bother. We have four boys in the family so I have a somewhat different perspective.
Hope you husband does well on his treatment. Sounds like he still has a lot of options if he is not taken Zitiga or xtandi yet. My husband ended his chemo in early 2016 and was on zitiga until Dec of last year. He is still enjoying life and very active. we are hoping Xtandi does good things too. He is also currently in a lu177 trial at Mayo. Am hoping to see the psa number at zero again.
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