I appreciate ALL your input. After receiving unfavorable news last week, I went into a wee bit of a tailspin.
Of course no one wants to die! I sure don’t - I have no death wish. We ALL have built-in defense mechanisms; that was my immediate reaction.
When my falsehoods about my own longevity were brought to light, I realized I HAVE TO FIGHT!
There ARE burgeoning treatments out there, maybe a cure will be found!!
I cannot throw in the towel and NEITHER should you! There is ALWAYS HOPE! I know it sounds cliche - but with the case of any disease, that is what we HAVE to hold on to.
For others with nmCPRC, please share any news you may have! I AM not a quitter. This thinks it can fuck with me? When provoked, I can become one mean mother fucker.
Well prostate cancer, you bitch, you HAVE provoked me and I am going to fight you with all my heart and soul!
And let’s remember, not everyone shares your same viewpoint, be kind to one another. We all have a dick; we don’t have to be one!
Written by
MJCA
To view profiles and participate in discussions please or .
Stick around a while. Never know what will turn up or how it will work for you. Until QOL declines to unbearable you have a life and don' know what is just around the corner. My QOL was way low last Christmas and I was a complete invalid. Med changes and I'm up and around and enjoying life this Christmas and New Year. PSA 0.134 at last check and lots of life left in me. Guess i'll go out and see if I can start my Snow blower and move some snow while the temp is still below 20* and it hasn't thawed and refrozen to ice.
great news - but did they tell u ur T Levels.... during SRT I was at nadir, but T levels were in the 20s....Now, post-SRT PSA is- .19, t Levels at 421... I think the Dr will put me back on Lupron. Some say, stay away from ADT till PSA hits 2 - don't know what to do..
Keep up the fight bud - wishing the best for u ---- did u have any treatment yet? ---- did then tell u your GS, etc ---- I had the RP, ADT along SRT and still a .19 PSA --- QOL on ADT can be a bitch, however, u sound strong and my money/bet would go on u...sometimes I wonder if a cure and others are there - but not being totally released. This is NO hit on the Dr - but my trust in BIG Pharma is questionable.
I am going on!! I first met Lupron 13 years ago; I have not had any new treatment for nmCRPC. My RO recommended Erleuda. But there are other options as well as clinical trials. I left a message on Monday. Luckily I am in California. Clinical trials not too far at UCSF and Stanford. I can obtain lu177 treatment in San Diego.
I sent one reply and then ur profile --- u been fighting and winning since 2005? You are a winner by anyone's definition. Did u take any treatment at all? ADT, anything...... I had c lost close to zero QOL on ADT, but afraid I might be going back there at some point.
If you care to share, please tell me more ---- cause, the thought has crossed my mind to let it take it's own course and maintain my QOL...best you u Ken...
Kudos for you MJAC. Keep the towel for wiping off the sweat after exercising. I'm 82 and was dx at 59. I hope to die in a brothel. I'll be the one sweeping the floor.
Would that be a brothel in Deadwood, South Dakota? That's where I was first arrested: 3 years old, my tricycle was impounded. Been a wild ride ever since.
Well said. That’s the spirit! You get the “attaboy” award for the day. I had the same bout of negativity on New Years Eve day when my PSA went above undetectable for the first time in the 3 1/2 years since I got my Stage 4 oligometastatic diagnosis. I think for me it was more like self pity. With the help and encouragement of my wife, some prayers, and reading your post and the replies to it I was able to turn that negativity around into thanks for all the good things in my life and how blessed I am to have what I do in spite of the PCa. Like you, I am even now more determined to fight harder and keep a positive outlook on life. Most of us would kill to have 13 years of being on the winning side of the battle. I’m betting that you have many more years of good life still in you.
For instance, like Shooter, whose PSA just slightly higher than my 0.12, there is the hope that better drugs and treatments will show up in the near future...maybe even this year. Unlike Shooter, who is going out in sub freezing weather to blow snow, I’m facing a sunny 82* day on the golf course. 🏌️⛳️😎. Life is good.
P.S. I liked your comments about being kind to each other. I have said more than once in here that we’re all on the same train. We need to be civil to, and supportive of, each other.
MJCA, stick around. You will be here for a long time. Our brothers in this group are big inspiration to me and motivate me to keep fighting and never giving up. If you're in the Philly area, cheesesteaks, soft pretzels, hoagies and roast pork sandwiches are on me. Go Eagles.
What an inspiring post! Although I'm just starting on my journey, I find I do need to give the "no treatment" option brief consideration from time to time. It reminds me why I'm enduring the side effects of treatment, and clarifies for me that it's my choice and not something forced on me. A jedi mind trick of sorts.
A medal for you! As we use to do as kids (and I still do)..... I Lick my thumb, I Paste it above your heart and say "Quick run home and show it to mom before it dries"...
I'm glad you changed your mind. It is good to hear from you, and by the way yesterday I awoke with an erection! It didn't last long, but it was the first in 12 years. Who knows, maybe I'll be a whore again! I'll keep you posted.
Ahhh....deadwood....remember when swearingen had the clap or sumin....and sawbones ran a hot rod up his pecker....my how medicines changed...cmon whores get to fu×&n
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Staying Alive….
Should I stay, or should I go
What’s new? (Well, I’m new here, for starters.)
Is there hope? I’m dreading asking the question of “how long”…
Your thoughts on getting off ADT while staying on AR inhibitor?
