War on drugs -- license to torture Am... - Advanced Prostate...

Advanced Prostate Cancer

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War on drugs -- license to torture Americans in pain?

WSOPeddie profile image

This is a very disturbing development. The DEA / CDC have succeeded in bullying physicians into not prescribing, or reducing doses of pain medications. I'm not dealing with pain now but is this another thing I need to fear in my journey with prostate cancer? Is Malecare speaking up on this subject?


16 Replies
Darryl profile image

Opioid regulation has been a Malecare advocacy issue for almost three years. During that time, we have yet to meet a prostate cancer patient or prostate cancer focused doctor who felt that appropriate pain reduction care was stymied because of a regulation. If you know of anyone who feels that their pain medications were negatively affected by CDC regulations, please let me know via email (to preserve their privacy). darryl at malecare.org Also, please donate generously so we can devote more time and resources towards patient care advocacy. Unlike other so-called patient advocacy organizations, Malecare doesn't take ten's of millions of dollars from pharmaceutical companies, and then bow to do their bidding. To work for all of us, we need your generosity. malecare.org/donate

j-o-h-n profile image
j-o-h-n in reply to Darryl


Malecare doesn't take tens of millions of dollars from pharmaceutical companies, and then bow to do their bidding. To work for all of us, we need your generosity. malecare.org/donate <===<<<

GIVE TILL IT HURTS, you won't need a pain killer, donating will stop the pain...

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 12/12/2018 7:07 PM EST

This does not apply to cancer patients, more to orthopedic cases.

WSOPeddie profile image
WSOPeddie in reply to Drcrunch

I hope that remains true. My personal experience with this crack-down on opioids was that I was denied a refill on lorazepam, which I used on an as-needed basis for insomnia. It was inexpensive and worked very well and I'd been using it for years. Not any more. My doctor was obviously afraid to prescribe it.

Shooter1 profile image
Shooter1 in reply to WSOPeddie

lorazepam worked well for me too.... insurance and pharmacy decided I was to at risk to use it at 68. Thought dr's were the ones to decide things like that.

Mkeman profile image
Mkeman in reply to Shooter1

Same advice as above.

Mkeman profile image
Mkeman in reply to WSOPeddie

Get a different doctor. Or try Xanax.

I have a plan in case----there is no doubt that high dose Nsaid's combined with Indica THC, will do the trick--I know from people suffering from massive Orthopedic pain, having to resort to this, as their Opiods were removed-or taken down so low it was a waste of time. Shame on our Country, and all involved in the Miscarriage of Care for those truly in pain. So far those with Cancer, are suppose to be protected. But if we are next, as I said I have a plan if I ever need to eliminate pain, when and if they take Opiods away from Cancer Patients.

Of course you need to be in a state where THC and Marijuana is legal---Trump has plans to legalize in all 50 States for medical use--hopefully in 2019 this will occur.

AND DO DONATE TO MALECARE---Darryl, et al, have a voice when representing 5500 members.


Don1157 profile image
Don1157 in reply to Nalakrats

Good luck with that plan.

Nalakrats profile image
Nalakrats in reply to Don1157

Do not need luck, need Prayer that I never have to resort to using the combo I described.


Don1157 profile image
Don1157 in reply to Nalakrats

I meant to sound more supportive than I did, especially with the marijuana.

Generally, the DEA leaves Oncologists alone.....

I've noticed a hesitancy since 2 1/2 years ago.

I have found that pot took a lot of pain away after surgery. And now after someone on this board told me to try pot oil for the hot flashes. Let me tell ya it works. We all will agree that opiate addiction is a terrible thing. But, my body, my Life.

The opioid guidelines used by the Medicare and Medicaid Services exempt patients in palliative and hospice care or those being treated for "active" cancer-related pain. I am so tired of my husband being made to jump through the Prior Authorization hoops supposedly required by his Medicare drug plan. They have no right to be interfering with a cancer patient's right to have his prescriptions for pain medications filled without all the b.s. of multiple prior authorizations.

I finally found a senior representative who works for Express Scripts admit that it is not the correct policy according to CMS. I suggested that he educate his employees about the application of the guidelines. After going through a two week delay in getting the prior authorization because of the doctor's office not replying in a timely manner, I was thoroughly disgusted at what E.S. attempts to get away with in trying to deny filling opioid RXs. Maybe if more people correct them that these guidelines do not apply to active cancer patients they will stop their harassment.

WSOPeddie profile image
WSOPeddie in reply to yucca13

Right. And I am a cancer patient with some back and neck problems. I could be a cancer patient with non-cancer related orthopedic pain, then I'm in the same boat with these other people who are being denied the pain meds that they need. I suppose I could lie and claim cancer related pain. I hate bureaucrats and self righteous drug war fighters.

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