Getting thick and tired: I am 2 and... - Advanced Prostate...

Advanced Prostate Cancer

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Getting thick and tired

Costarica1961
Costarica1961

I am 2 and half year veteran of the prostate. C wars. I've been on zytiga for the last 7 months with a shot of lupron. I've done well on the PSA front undetectable. Here's the but, I'm gaining some weight maybe 10 lbs since June 2016 since diagnosis. That's not so horrible but muscle loss is dramatic. I look now what I have always feared, flabby. I swim and walk no weights yet, my energy level very low. I'm eating only organic and. GF. This helps, although I feel like I'm putting fingers in a dike thats gaining momentum too overtake my best efforts. Yes i am grateful for the 0. 006 psa and no visable mets. I just don't feel like the me anymore like some stranger. To myself. My quality of life has diminished enormously. I owned and worked in the fitness center for 20 years and know the beauty of being fit and healthy. I love life as it was. far less as is. I am not a quitter and always look at the bright side , the brightness has dimmed considerably. How do others cope long term when the testosterone is less than a male gerble. How do you cope when your joints hurts to get out of bed. I know all of you have your struggles, and the sun doesn't rise or set on my. Me but I am open to inspiration.

14 Replies

Had every trouble you are describing and more. I am on Xtandi not Zytiga. Full dose was too toxic for me. Cut dose and recovered from being a complete invalid to being productive again with help form PE gal who works me hard. Gained the 10 lbs also, but all in the last month after I retired at 68 and have been traveling, visiting family and eating way more than at home. Now pealing it off a litle at a time. Lots harder than packing it on. Got off Lupron with orchiectomy, but at 68 two jelly beans in a sack did little for me.

Its nice to know your truly not alone probably just a feel sorry moment for me. Thank you.

I have been on lupron and Zytega for 14 months now. My MO told me that the only thing that helps a lot is weight training. I shared your fears so I hired a trainer and I do weight training for about 1:10 minutes theee days a week. I’ve only missed 3 sessions in 14 months. I’ve actually lost 5 pounds and gained muscle mass. I feel great with good energy. Buy trust me it isn’t easy. This guy works me like a fool. Light weights but large reps to exhaustion. Each time I swear will be my last. No cardio but my headset rate during my sessions is at 125 or more. If you can’t afford a full time trainee then get one once a month to put you on a program. I used to go to the gym and talk with the guys a lot. Now it’s all bussiness. Interestingly the back pain I had before is gone. That’s your answer my friend. Make the commitment. As far as the joint pain have your MO put you on Celebrex and the Zometa for osteoporosis, the combination was shown in a double blind study to reduce death by 22% with minimal side affects. And the added benefit is Celebrex is great for joInt pain.

Schwah

Hidden
Hidden in reply to Schwah

Thanks for sharing your experience with the joint meds. Sounds promising..

Costarica1961
Costarica1961 in reply to Hidden

Thankyou

Hidden
Hidden

I’ve got four years with no t and over 3 yrs no signs or PSA. We live in limbo... dreading the day of a return of the beast . We are in the same boat . On this web -cite however we need show gratitude that the cancer is not ripping us to shreds at the moment.. we live diminished but we live.. women have more T than I do . Fatigue is a constant companion but dear sir we’ ve got to remember the severity of our opponent’s will to do us in. Live for today Hermano.. I could write a book on living with no T .. better than writing one on living with Actively agressive APC.. strength , stamina and cognition will all suffer.. Hang in there .It is what it is. I am feeling slightly better after the three year mark. You will work out your out happiness out of what’s left.. Pura vida!

Costarica1961
Costarica1961 in reply to Hidden

Profound and spot on thanks.

Hidden
Hidden

You might discuss with your mo to take a holiday from the adt. It is risky but it can help your QOL. Regardless of statistics against intermittent you might need the break. I struggled on it as well. Hang in there emotionally. Find what you can tolerate from an exercise standpoint knowing too much could leave you in bed the rest of the day. Balance life, stay positive.

Hidden
Hidden in reply to Hidden

Knowing too much is dangerous, very funny .. Take care..

Costarica1961: First of all get rid of all the mirrors in your house. Then do what I do, laugh your ass off. When life gives you lemons... make lemonade, pee in it and serve it to people you don't like. My wife calls me B4... yep I'm the model for all those before pictures. She said if I wanted to lose 20 lbs. of ugly fat fast, to cut off my head. In due course you would have gotten older and looked like an old dude anyway....so think of it this way, you just speeded up the process. YOU'RE ALIVE SO DON'T PISS AND MOAN... It's God's way of a wake up call for all of us to live every day like it's our last. Work out as much as you can and pretend that your Drill Instructor (mine was a real prick) is counting your reps. without missing a beat, otherwise it was K.P. for the duration. I hope I didn't tick you off, but if I did I really don't shive a git.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/11/2018 10:09 PM EST

Not so sure I would send you to talk somebody down. but I get it. I am a. former college linebacker with a marine Corp father and older brother. I live and breathe toughin shit out. I Had a lupron and zytiga induced pity party, which your dis invited the next time. Thanks. For the pep talk LoL.

Yes the ADT has given me a bit of a belly (but so has continued enjoyment of adult beverages, even during Taxotere chemo!). Keep doing aerobic exercises, be it walking, swimming, etc. Continue to fight every step of the way!

Thank you.

Tough love, my speacialty Nice George clinton reference. I always liked and I quote everybody's funking when they don't know how you should of seen the bull when he funked the cow.

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