Nalakrats

The numbered Drug is I believe a Checkpoint inhibitor--I believe my Research and Clinical Trials Head, and my MO, has it. If I call he will not tell me I am sure---as I am not a candidate. Good luck. But I use to have--and should still------

a Clinical Trials Advocate---if you post back to me in the morning , I can get a Tel # or certainly an e-mail--they locate all trials. I once asked a question, and got 14 pages of emails. Whoa.

Nalakrats

MontyB in reply to Nalakrats

Thanks Nalakrats. Yes, you are right...it is an investigational immune checkpoint inhibitor...or to me...an immunotherapy drug. I was hoping there might be a patient here taking part in it who I could talk (PM) with about it. Would love to get a patient participant's perspective on it.

Reply (0)Report

Nalakrats in reply to MontyB

You can take what my MO told me--he just said in his words,"I am very high on this". Levine Cancer Institute---> my MO is participating--how many patients--no idea.

Nalakrats

Reply (1)Report

MontyB in reply to Nalakrats

Thank you Nalakrats!

Reply (0)Report

Tall_Allen

Because there are only 60 participants in the worldwide study, I think the odds of finding one on this site to talk to are small. You may have more luck in asking your doctor (or possibly the lead investigator at Janssen) if there is anyone you can speak to about it who has been enrolled in it. They can't give anyone's contact info without his permission, of course, but sometimes participants volunteer to talk to others - I did when I was in a clinical trial.

MontyB in reply to Tall_Allen

Thanks Tall_Allen. Good advice. You are right...no question...the odds are very small here, but I thought it was worth a shot. If there are no participants here who reply, I'll do as you suggest and start with asking the study medical team if there are any participants who may be willing to discuss it with me.

Reply (2)Report