the wife of "TenscTexan" spoke with me today. His name was Steve.
We had become Pen pals and had talked a lot on the phone and emailed...over the past few months and become friends. He just turned 60 back in September. He had recently gone through the LU-Psma (or something like that) trials in Dallas....had done two of the treatments.
After the second treatment he wasn't breathing well...and had to go to the emergency room. They discovered more cancer (non-related to prostate cancer) and he died comfortably just a week ago in the hospital.
Enjoy every moment!
John
Written by
greatjohn
To view profiles and participate in discussions please or .
23 Replies
•
Thanks for letting us know. Really sorry to lose another brother to this disease. He and I had been messaging back and forth about SSDI. I was able to share my SSDI experience with him and it seemed to be helpful for him. I also spoke with him by phone, seemed like a really good guy.
I am so sorry for your loss Sir. It hurts to know that we have lost another to this horrible disease. My thoughts and prayers will be with his family and yourself.
John, thank you for posting. I privately communicated with Steve quite a bit. I know he was going for treatment in Arizona and wasn't handling it well. I'm extremely shocked and saddened. I prayed for him every night along with everyone else I got to know personally. Rest in Peace Steve. Prayers to his wife and family.
Thanks for letting us know, John. Even the sad news is important to us, and serves to ground us and remind us of what we would rather forget...that this disease, especially for those of us with a Stage 4 metastatic PCa, is out to kill us, anD in spite of all of the recent treatment advances there is still a long way to go before this becomes a chronic, manageable disease. My heartfelt sympathy and prayers go out to his family, and to you.
I had messaged Steve about the LU 177 trial he was participating in a couple of times. 2 weeks ago, he let me know that he was in the hospital and they were trying to figure out what was causing his breathing difficulties. I'm so sorry to hear of his death. Such a nice man and he was so full of hope that the LU 177 would help. If possible, would you please share my condolences with his wife?
Wow. I am devastated. I had a number of private conversations with Steve. Including one right after he got his first treatment. He was joking because he was “radioactive” and had to be isolated for a few days. I am so sad to confess that I am the one who actually found the clinical trial for him . It was thru a dr I had seen for a special scan in Arizona and I saw it on his newsletter. He was so excited he got in. There had been only a new spot left. What a nice nice human being Steve was. I know intellectually that he felt like this was his only chance and he was happy to take that chance. But in my heart I feel so guilty and sad that I am the one responsible for getting him in that trial. What a horrible disease we all live with guys. Just horrible.
This was an unrelated type of Lung cancer..squamous...his wife said. The treatment seemed to bring him a lot of joy and hope to be able to do....so feel good about helping him get in it. We can never know what our destiny will be. Just have to find joy every day.
our ages...were very similar...I'm 61...that's part of the reason we started chatting. It seems so young....and it came rather quickly in the midst of his Trial....and from a completely different type of cancer. I'm super-shocked that the tests that they ran to qualify him for the study didn't catch the lung cancer earlier.
-John
R.I.P brother Steve! God bless the family! Thanks John!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
MontyB Has Passed Away
Sometimes You Just Can’t Get Away From It. 
Awww, an HU member got me this and I just added pix of AIS Staff
