What a great surprise 💙!
Mahalo nui loa Bruddah
I'll let him reveal himself, if he wants to🤣
I blame the Sun for making me look even more AZN
Party on
Randy
Awww, an HU member got me this and I ... - Advanced Prostate...
Awww, an HU member got me this and I just added pix of AIS Staff
Written by
dockam
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This brings great humor and a new meaning to sparkles . It fits you well . Haha . Great shirt !
awwwww … how cool bruddha . Looks great on you.
There are 4.5 billion Asians on planet earth, “ vastly “ more than any other group …. Just say’in. As people clubs go, yours has way the most members , it must be the best / most popular .
Mahalo Bruddah Kal , will wear it to an IMRT appt
And we all look alike Lol, so that's wayyyy confusing 😂
look’in good bruddha, that’s all that really matters.
Yasss Bruddah Kal , you're Right On
But, I ain't no youtu.be/7wRHBLwpASw
LoL
dunno buddy … never saw any of them fart sparkles .. just say’in.
😂😂😂😂
I gotta get a wide mouth mason jar and fill it up and I'll ship it up to you 
uh dunno ….. we’ll ok …as long as they deodorized….. maybe a teny tiny bit of fhartilitios.
😂😂😂
I'll throw in a pine scented car air freshner😂
yayahahahaya yayahahahaya that makes the offer irresistible.
😂😂😂
No wait a Black Truffle scented one😂
hummmmmmmm ….. dunno about that one, I’d probably start salivating all over myself and try to eat the air freshener yaya yayahahahaya.
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In to Kaiser this morning for my next Lupron implant ( ouch ) and bloodwork panels …back tomorrow morning for my Zometa pain train infusion. Next few days gonna be a very uncomfortable , nasty, ride . Oh ..the joy of it all 🎼.
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Be your own Buddha. Sending metta blessings your way
Or go Zen : youtu.be/D8Dd999DOc4
yayahahahaya … no biggie buddy. I’ve done this over 50 times so far, I should be an old hand at it now. I get thru it easier these days. Early on it was downright scary at times ….. especially the can’t breathe part from paralyzed thorax joints , and those extreme involuntary cold shakes . I hardly ever have SEs , now, that are anywhere near as strong as at first. That’s a good thing. Still it can get pretty uncomfortable for a few days , I don’t look forward to that part but I do need this treatment for my bones…. You gotta do whatever it takes. Yesterday was put off until this afternoon at 2. My labs were late getting back. I’ll be glad to get on with it and get it over with. Thanks for the nice thoughts .
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Damn! No biggie? Over 50 times so far, You are a bigger man than I. The no biggie part is only true because you are a phenom.
Best of luck riding out this treatment cycle. And looking forward to seeing spring and food pics when you are back on your trike.
Hey Kal, hope all went well at Kaiser, I did Blood Work at Kaiser and maybe PSA dropped from 34 - fingers crossed
Sending out Big Ole Positive Vibes for a quick recovery💙
You got this Big Bruddah, report in whenever you are up to it
Love ya Man
QoL on Shine on
Randy
let me know when you get the results back … hoping to see a nice drop in that PSA for sure.
went in yesterday, oncology has changed back to the Lupron butt implant instead of the flaming burning hellish fat implant of the other brand. ( usually in stomach or arm fat).
And got my bloodwork back, ….. nothing awful … could be lots worse yayahahahaya. Still hang’in in there. Supposed to get my Zometa pain train today, but bloodwork late arrival, had to shift me to tomorrow afternoon. Lil fresh Lupron implant sickness but not bad. Tomorrow I’ll get the big fun that’ll take me out for a few days. It’s all good and this spacing makes it easier to adjust as everything transpires….
I added the delta-8 cbd gummies … ( 25mg of delta -8 cbd per gummie and nothing else ) to manage the Lupron and Zometa SEs, I cut them in quarters for daily use , a half for more serious comfort and a whole one if I want to nap and feel LOTS better. Delta-8 is a common legal CBD ( it’s NOT delta-9 THC ) … the gummies are stunning delicious ( via the amazing infused turpines ) . I had tried delta 8 when they sold it on Amazon ( stopped now tho ) and I was impressed back then. Now it’s improved a lot and amazing at reducing pain med needs and its crowning ability is long term mood elevation. Right now I like it WAY better than dangerous benzos and it’s not addictive. I’m using “ moon walker “ brand gummies in a small jar , …. everyone on here ( in states where available ) should run out and get some to try. I’m putting these “ HIGH “ ( pun ) in my mental and physical cancer management toolbox. Cbd stores sell those, there is one up the street from my house. They are all over Tehachapi as well. 1/4 gummie , for me is nearly imperceptible, but I’m very mood elevated and smiling. Just say’in.
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Hey Bruddah Kal, it dropped from 34 to 22 - F yeah! I had an Eligard in belly and that hurt for days, I do better with Lupron in my butt cheek
Had it last Friday
Oh, nice about CBD gummies
I have a Delta 9 THC vape pen😊
Glad that they can replace ur opiates
And that it lifts your mood and makes you smile 😁
Love you Kal
PSAs
Delta 8 doesn’t replace opiates but seems to make it work better.
Wharze the active cancer located , the cancer producing the psa ? It must be too widespread to spot treat it individually. My friend Mark ( Urang on the group, ) had psa readings that looked kinda similar to yours , and went higher . He wrestled with those kinds of numbers for several years. He had to get a spinal repair now and then , but overall he lasted 23 years. He started running out of treatment possibilities and his psa climbed up into the 300 - 500 range for several years. Eventually the V.A. sent him home to home hospice and he lasted another three years puttering around his garden and playing with his computers. Heck I was 1400 - 1600 psa when dx’d and I’m still here. We’re all different and probably have different strains of aPCa that act differently …
Your PCa has a lot of similarity to Marks when he was 8 to 9 years along …. But he lasted all those years anyway. Hopefully you’ll last that long as well. Things got rough for mark when all the treatments started failing , he needed a lot of pain management later on. Still he persisted, you are in much better condition than Mark.
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PSMA showed SUV Max at 87. 5 in L of Prostate growing into perineum 😜1st MO said amazing that it wasn't widespread, so hopefully IMRT will get it all
Asked about Carboplatin and a Taxane for down the road.
Maybe Lu - 177
He said Meh on Provenge
Life is Beautiful
Still some Fight in me
Love you Kal 💙
Good morning Kaliber
I have admired you and your beautiful posts and just wanted to say thank goodness for people like you. You’re the kind of person who is always willing to help others with humor and kindness. I don’t know if I should post again but wanted you to realize how special you are.
thank you for those nice words , I appreciate it. I’m “ am “ willing to try a bit of sideways humor and extra kindness if it seems like someone needs it . ….. I dunno about that being special tho, yayayaya yayayayaya. I think “ kindness “ is fairly prevalent on this group, you being a great , nice, example. It’s natural for old geezers to be grouchy anyway ( geriatric syndromes ) , but add in being faced with death all the time and life altering drugs …. Man, that can Jack it up to another level. Probably those guys that get on here being combative or attacking things are often the most needy. Lots of them are angry, boy howdy …we all get that.
Being negative or combative on here , tho inappropriate , can also be someone calling out for help too.
Just say’in
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You are so sweet and also intuitive. Yes, I think when someone continually exhibits cruelty to others it is they, that are in need of kindness.......Yesterday when i posted What is a Nutritionist and gave a couple examples of how and what a person could do, I said drink half your weight in water, never thinking I needed to say in ounces not pounds. Sorry I am so loquacious. anyhow when so many people wrote me cruel replies, and shut down my post, I realized I still need to try to help. What immediately came to mind is the kindness you have always shown people and just wanted to tell you how much I admire you. Thank you for being you. I also presume you have Cancer pain and yet you "keep on keeping on.🦊💜"
awwwww ….. now I’m red faced. 😂. Thanks for the great kudos, I appreciate it.
I do have to put a lot of energy into staying “ comfortable “ most of the time. It’s complicated and it’s a battle that I’m definitely not always winning yayahahahaya. I’m not down and out yet tho … I’m trying to make the most of my possibilities before I actually slide downhill too far to keep this up. 😁😁😁
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good Thursday evening Kaliber. I’m not on HU anymore except to post. Since they deleted my post yesterday, what is nutrition? I posted an apology this morning but didn’t peruse the site. It was my own fault because I’n the post I suggested people should drink half their weight in water. I didn’t say drink in ounces how silly of me not to explain
Next week I am already thinking what I’m going to write. Sorry but I warned you I’m a little bit loquacious lol
Long story short is there any specific cancer situation you deal with that I may be able to assist you with?💜💜💜💜
How about writing something that isn’t a misquote, isn’t bad advice, isn’t dangerous advice, and isn’t just parroting the ideas of quacks frauds and snake oil salesmen like Chris Wark?
Not being mean, just suggesting what topics you post that rile some of us up. I’m sure as a certified nutritionist with two degrees you can come up with some actual scientifically proven advice beyond “eat your veggies”. I’d look forward to that kind of post.
Also, don’t play the victim, here either. Those of us dying of prostate cancer are the victims here, not healthy people who sometimes get criticism for bad information they post.
🦊🍌🤡
you’re absolutely right. I’m going to Try to post something that I think might be helpful, I don’t think you’re mean I think you’re hurting and I want to surround you and everyone on here with something that might ease suffering and bring peace. I wrote an apology this morning for not saying drink half your weight in water in ounces.💜💜💜
lol …. at one time a couple - three years ago, I used to brag I got more 24 hour “ time outs “ than anyone on the group. I’ve tried to stop triggering the mods with better behavior, I haven’t been kicked out recently, but my posts do seem to receive a fair amount of editing sometimes. I appreciate it that the mods would take time to edit or clean up some of my posts for me yayahahahaya yayahahahaya. I’m a big time nurd, sometimes. You’ll get things sorted out . Maybe make some QOL posts and contribute that way …. It’s a thought while you get comfortable here.
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this is a picture of one of my Supplements Setups … below that a slightly changed version. We often take some away or add to them …depending upon new discoveries usually associated with cancer med contraindications. As always, I run everything by my pcp and oncologist before using them.
Suppliments
slightly changed line up
Suppliments
Wow that looks like a full time job taking and monitoring the inventory :0)
a lot of guys’ regimen dwarfs my cabinet. They have the shrooms section, chemical suppliments, biologically active section, herbal section … long as it doesn’t hurt anything, then why not ? I’ve run everything by my pcp, …sometimes she adds a prescription med that kicks one supplement out of my lineup. The hammer manages my meds. I’ve got the cabinet supplements meds that I take when I wake up plus my pain meds , I’ve got my daily 7 day compartment dispenser on the table by my couch ( siennas, and two bg meds at different times each day ) and a table full of stuff like pain management, respiratory wheezing mgt, albuterol inhailers, and Xanax , delta-8 cbd mental section ….. Other stuff. I guess that I eat between $500 - $600 worth of meds / supplements every day. $400 of that the Xtandi ( including my depot Lupron and my Zometa infusion ) Lots of supplements don’t come cheap … like that modified peach pectin.
I stole a lot of these ( ideal wise ) from Scott, recommendations TA has made ( this or that is worthless or dangerous ), Kal ( modified peach pectin ), and many others here. The guys that have persisted the longest , like Scott and many others , … I cross all the med lists and use those that match. I know it’s most likely fallacy but if they are long lasting on the group, then I want some of that yayahahahaya so far , it’s working for me too.
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I think your right in all of your strategies and no doubt Scott is doing well as far as keeping the beast at bay. I am not surprised at the cost of peach pectin dried peaches are $27 a pound. Maybe I should get on the supplement train but for now I just take three. Glad its working for you buddy.
Love your cabinet. I'm sitting at my desk top and just saw your cabinet in large view@💜💜💜 we take the same things, except citrus pectin but i will research ad then order that..........lol
yea the peach pectin is one of the potentially more helpful ones, a surprisingly large number of guys here take it. It’s pricey if bought already packaged. I’ve heard of guys that buy it in bulk and use a “ cap-‘em- quick “ machine and save nearly half.
Like the techs and nurses in your video, “They come runnin' just as fast as they can'. Cause every girl crazy 'bout a sharp-dressed man”
One of my favorites, but in that case I will need to look at you through my Cheap Sunglasses
LoL Bruddah, maybe it's those wild colored shoes. Maybe it's Maybelline?
They usually run away from dentists 😂
photos.app.goo.gl/FgB91hbM2...
LoL shoes
awesome kicks
I can’t love this enough ❤️ Fartin’ sparkles. I’m dying. 😂 If you can’t have humor, what’s left?
Yup, Laughter is good medicine💙
So, the gift giver obviously knew how irreverent I am and that I wouldn't even hesitate to wear it💙
Live, love, laugh, and QoL on y'all
Randy
Obviously. Your energy is something “special” 😂
LoL, yea just a wee bit hyper😜, wish I could bottle it and pass it around
I'll tell you what I want, what I really, really want
So tell me what you want, what you really, really want
I wanna, I wanna, I wanna, I wanna
I really, really, really wanna zigazig ah
I wanna, I wanna, I wanna
I really, really, really wanna zigazig ah
I'm a Wild one
You look good Doc. We glad!👍👍👍
As the Filipino Romeo said to Filipina Juliet "Farting is such sweet sorrow".........
j-o-h-n <===<<< Senior management is about to spike my spikes....
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 04/11/2023 12:34 PM DST
Dear Defarted, we are gathered here today.... youtu.be/Euq8Z4l6Iwk
Please keep posting your QoL journey, dockam — inspiring to me and others, I’m sure!
these posts are related to the QOL aspects of this disease and the camaraderie they generate as well. They are positive uplifting events intended to balance out the fully negative complexion of men clinging to their last moments of life.
Life here is more than medical advice and death notices … it is and should be about living more as well.
If you don’t like the QOL posts, you are encouraged to skip them. A large number of men and ladies on this group look forward to this type of post and love to contribute as well.
Humor, irreverence, and a DGAF (Don't give a F) attitude offsets us croakers from dwelling on outcomes, side effects, money, and no mo boners 😂
Life's too short to be too damn serious/grumpy/mean/racist 🤣
you got it buddy …❤️❤️❤️
Tourist to a native sitting on the beach: "Excuse me sir but is it pronounced Hawaii or Havaii?"
Native: "Havaii."
Tourist: "Thank you."
Native: "You're Velcome."
j-o-h-n <===<<< Senior management is about to spike my spikes....
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 04/11/2023 8:06 PM DST
Incoming QoL pix
Caution smiles ahead💙
Radiation Oncologist
😊💙
2nd Floor Chemo staff
Looks like you got a few sparkles on your team members. Good for you, and lucky for them
Being in Healthcare for 4 decades, having a fun-loving pt really makes our day💙
Now, as a pt I wanna have the staff enjoy the time that I'm there and make their day maybe a lil better.
And it started with an irreverent Tee that I knew I had to wear for IMRT.
Even my RO was jazzed about getting a pic. The Blonde RT came back after the 1st pic and said we gotta get a crazy shoe pic too
Then snuck upstairs to ask the Chemo girls and also showed them that vid
I always go in with a Happy Heart and the Staff senses it
#bekind
#Lifeisbeautiful
#fartingsparkles
Shine on, Smile on
Golden Rule: do unto others...
I'm sure that a pt like yourself really makes their day. The pics made mine
That's wonderful Brother😀, a lil act of generosity generated a ripple and that turned into a Smile Tsunami 💙
I am making plans for the last IMRT on 04/26, I asked the RT to move my 8am spot to the end of the day, so I'll be their last pt😍
You're almost there, that's fantastic. Too bad we don't have PC Conqueror Challenge medals to hand out. You'd have a slew of them
Mahalo nui loa my Brother💙
Ya prolly have me figured out as a lil bit goal oriented and maybe that's part of why "I'm still Standing" coming up on 9 yrs in October
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