Has anybody compiled a current list of potentially useful supplements / medications / treatments etc ? If not I think it would be a good idea if we collectively made one?
I feel like it would be useful if there was an updatable PDF that could be stored online that collated the latest options? With a caveat that the onus was on each person to research each option of course and the list does not necessarily endorse any particulate treatment or supplement. For example my Father was taking ProsStay / Apatone - but the FDA have got their claws into K3 now so it has been discontinued and they have been forced to use K2. So it would be nice to have a list of other agents that could potentially slow down the PSA doubling time.
I feel like some kind of document which outlined options when or if a treatment fails could be of use as well? Might help people plan better, rather than ask the same question every-time a treatment fails or becomes less effective.
My Father is currently on his second hormone blockade honeymoon. His PSA in June was 4.2, and we will retest on August 3rd.
We are trying what we can to help slow progression to delay the need to start round 3. He has also been taking low dose thalidomide but it has caused some ankle swelling.
Any information on latest bits from anybody would be great?